Re: RSS/SGA Convention - RSS Adults-VERY LONG

[Guest guest]

> Kim what is this, " only rss adults have discovered this possible

> unrecognized rss characteristic. " you are talking about, I would like to

> know. My son is 3 and on periactin, no ght, and I don't know what I will do

> about that in the future, Torn. What unrecognized characteristic are you

> talking about?

Debbie-

When the RSS adults (all female) got together in Chicago last year, we started

talking a

LOT. Topics seguayed from one to another and we discovered that several of us

had one

or more gynecological issues, i.e. tipped/tilted uterus, lack of uterus, etc. I

don't recall

ever reading about that as a symptom of RSS, but then again, virtually all

information

about the syndrome is about kids, so it's not surprising that this possible new

information

had never been noted before, since who would be looking at a little RSS girl's

reproductive

system? <wink>

-Sharon-

Just an RSS kid who grew up

Orlando FL