Re: RSS/SGA Convention - RSS Adults-VERY LONG-to Sharon

[Guest guest]

and -

> They should start checking... Because 1) they check the reproductive system

> of girls with s.. and 2) they check the boys (testicles etc) with

> SGA/RSS.. So why not the girls???

I guess it's easier with boys, because most of their reproductive organs are on

the outside,

so it's pretty obvious if they have hypospadius or undescended testes or

whatever else.

Unless there's an obvious problem with the (outside the body) labias or

clitoris, there's no

way of knowing with a girl, unless you do an ultrasound, pelvic exam, etc. And

all of the

problems that the female RSS adults mentioned were " inside the body " issues.

I don't know if any doctor would would be interested in these more " adult "

possible

aspects of RSS...I figure Dr's Harbison and Stanhope had enough work with

" their " kids, or

perhaps they would've asked, after all these years, if there are " adult-related "

aspects of

RSS that they might be interested in knowing. When I brought the " coincidence

of similar

gynecological problems " up to someone at Magic, to see if they would like the

information

for someone to begin some sort of study, the response lead me to believe that

they didn't

know what to do with the information either...so I just let it be.

-Sharon-

Just an RSS kid who grew up

Orlando FL