Re: scared

[Guest guest]

,

When it comes to weight loss, less is not necessarily better.

If you cut back your intake too low...your metabolism will shut down

and you'll stall in your weight loss attempts as your body tries to

prevent itself from starvation. I am very serious!

Your body needs fuel in order to function. This surgery will not

really allow you to overeat if you listen to your body. Two ounces

of pureed chicken and an ounce of two of vegies is not high in

calories and is not going to make you gain weight.

Be good to your body and give it the fuel it needs.

Kathy

[Guest guest]

I experienced the same thing - I have been afraid to eat sometimes

for fear of gaining back the weight that I've lost. Like if I

consume more than the 'recommended calories' I'll immediately gain

back all that I've lost. I know in my head that my fear is

irrational, but it does help keep me on track. lol.

I'm 17 weeks out and I'm supposed to consume 1,000 calories a day. I

have yet to do that, but I'm getting closer. I usually have a

protein shake a day (breakfast) some form of protein for lunch and

dinner and a small snack twice a day.

I've lost 98 pounds in 17 weeks - 309 down to 211 as of Sunday

evening. I want to lose an additional 71 pounds to reach my goal of

140. (The doctor's goal is 150).

thanks

[Guest guest]

...We sound about the same. I am 5'6 " and weigh 310. I want to get down

to 140. I am one week from surgery and getting nervous. I hope I do even near as

well as you. Congrats!!!

Alice hardestyal hardesty@...

Re: scared

I experienced the same thing - I have been afraid to eat sometimes

for fear of gaining back the weight that I've lost. Like if I

consume more than the 'recommended calories' I'll immediately gain

back all that I've lost. I know in my head that my fear is

irrational, but it does help keep me on track. lol.

I'm 17 weeks out and I'm supposed to consume 1,000 calories a day. I

have yet to do that, but I'm getting closer. I usually have a

protein shake a day (breakfast) some form of protein for lunch and

dinner and a small snack twice a day.

I've lost 98 pounds in 17 weeks - 309 down to 211 as of Sunday

evening. I want to lose an additional 71 pounds to reach my goal of

140. (The doctor's goal is 150).

thanks

[Guest guest]

I have been nervous to eat, but if you make healthy meal choices, then you

should be fine.

in Delaware

Lap RNY 3/10/04

261/171/120

[Guest guest]

Joyce,

I'll lay odds it's not your weight. I think it's your lungs and has little to do with fat. You've lost 15 pounds and you're exercising regularly. You are taking care of yourself.

You didn't mention whether you checked your sat...what was it? Do you know? Did you try turning your oxygen up a bit? It's frustrating when you set your self a task and then can't complete it because you can't breathe. All of us have had that experience and understand how you are feeling. It sounds as though you were trying to accomplish too much. Carrying baked goods, an incline and two flights of stairs, it would definitely be way too much for me. As hard as it is to adjust your thinking, you've got to do it. You haven't found your new normal yet. You will. You bumped up against a limitation today. That's likely all it is. You will learn to be more realistic when it comes to this kind of stuff but it takes time.

As to what your friends are saying...are these the same friends who were against you seeking a second opinion at NJH? Please, please, please stop listening to people who don't understand your lung disease.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sat, November 14, 2009 5:29:13 PMSubject: scared

I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I

wasw fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds

[Guest guest]

Hey, I have been there!! I spent 3 years after one pulmo-dude said I had " an

interstitial disease " and left it at that. I wasn't on oxygen, but developed

coping strategies for my perceived shortness of breath. Then I went to NJ in

Denver and learned all kinds of stuff, and got an oximeter as members of this

board have recommended. I have since conpleted pulmonary rehab and have a much

better idea what I can and cannot do. I have also learned the breathing

techniques and coping strategies to best handle " road blocks " . I have a light

weight luggage carrier I keep in my car for transporting anything and everything

on wheels. I have a portable tank with the " demand sensor " delivery system. I

have a handicap parking banner for when I need it. I do not always use it, it

is just nice to have for those times I need it. I don't hesitate to stop and

catch my breath if my sats drop below 88-90. I monitor constantly as I have not

yet learned to distinguish fatigue from low oxygen. Hang in there... you will

get the hang of it. I think it is cool that you are keeping active with your

baked goods for a good cause... And,... I am tipping the scales at 230 (forever

trying to lose weight, but always trying to eat smart and healthy). Remember,

you can be fit and fat. I know skinny-Minnies that are not fit at all. They

also have lousy eating habits. Don't let it scare you... conquer your fears

with knowledge!!

Stefani 61 year old Utahn

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> Joyce,

> I'll lay odds it's not your weight. I think it's your lungs and has little to

do with fat. You've lost 15 pounds and you're exercising regularly. You are

taking care of yourself.

>

> You didn't mention whether you checked your sat...what was it? Do you know? 

Did you try turning your oxygen up a bit?  It's frustrating when you set your

self a task and then can't complete it because you can't breathe. All of us

have had that experience and understand how you are feeling. It sounds as

though you were trying to accomplish too much. Carrying baked goods, an incline

and two flights of stairs, it would definitely be way too much for me. As hard

as it is to adjust your thinking, you've got to do it. You haven't found your

new normal yet. You will. You bumped up against a limitation today. That's

likely all it is. You will learn to be more realistic when it comes to this kind

of stuff but it takes time.

>

> As to what your friends are saying...are these the same friends who were

against you seeking a second opinion at NJH? Please, please, please stop

listening to people who don't understand your lung disease.

>

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Sat, November 14, 2009 5:29:13 PM

> Subject: scared

>

>  

> I went to deliver some baked goods to a bake sale for one of my groups and had

to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs

and couldn't make it up the second flight without assistance. I asked for help

retrieving the other baked goods and was given it. I knew I couldn't do it

again. It scared me. I don't undestand why I couldn't do it. My 02 was on

constant and I still co8uldn't make it. I left feeling scared and frustrated and

embarrassed and blue...I think this illness is going to kill me. On my last

visit to NJH what they didn't rerun was the test where you ride a bike on an

incline...my friend said it is becaus I'm fat and my diaphram can't expand but

that is bull shit. Everyone says it is because I amfat. But I have lost 15

pounds. there were fatter people then me going in and out that place. Every one

blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to

the doctor sooner because I wasw

> fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am

going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds

>

[Guest guest]

Rudy Joyce

first of all -- you did a wonderful thing delivering the baked goods - in Hebrew we would say you did a mitzvah -- a good deed -- be proud of yourself

walking up hill is difficult for me too -- i get SOB

walking up one flight of stairs is a lot

how you made it up 2 flights of stairs is amazing -- even if you were huffing and puffing

my daughter has a 4 story house -- i rest a lot between flights and only go to the 3rd flight sometimes because that is Davin's room (my grandson)

her house is a pain for me

the main floor does not have a powder room, so i have to use the lower level or the third level -- forget the fourth level

I try to avoid steps unless absolutely necessary

the lung disease is a factor in your difficulty going up steps, with or without the weight issues

sometimes riding the bike on an incline is done for diagnostic purposes

they never did it for me, instead, they had me use a treadmill at various speeds and at various inclines, they had me hooked up to a couple of things at the time -- everything was so new back then, i don't remember all of the details

wonderful that you lost 15 pounds

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: scaredTo: Breathe-Support Date: Saturday, November 14, 2009, 5:29 PM

I went to deliver some baked goods to a bake sale for one of my groups and had to park in the lower lot. Had to walk up a 2% incline and 2 flights of stairs and couldn't make it up the second flight without assistance. I asked for help retrieving the other baked goods and was given it. I knew I couldn't do it again. It scared me. I don't undestand why I couldn't do it. My 02 was on constant and I still co8uldn't make it. I left feeling scared and frustrated and embarrassed and blue...I think this illness is going to kill me. On my last visit to NJH what they didn't rerun was the test where you ride a bike on an incline...my friend said it is becaus I'm fat and my diaphram can't expand but that is bull shit. Everyone says it is because I amfat. But I have lost 15 pounds. there were fatter people then me going in and out that place. Every one blames it onmy beign fat. I amso sick of that! That is the reason i didn't go to the doctor sooner because I

wasw fat. Everyone says it is because i am fat. Screw them! Anyway, I think I am going todie ofbeing fat....I think thefat is going tokill me.Joyce rudy AZ birds