Re: Re: eval at ny presbyterian

[Guest guest]

Bruce, We missed you!!!!!!!!!!!!!!!! Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." nne So glad you went to NY Presby. Just one more example of how thorough and helpful the Centers of Excellence are. The bad news is 3 autoimmune, but the good news is 3 autoimmune. They often go together but then that gives a probable underlying cause of the PF and they do have treatments to help the autoimmune diseases that may slow or even stop the progression of the PF. The doctors actually hope to find positive tests for connective tissue diseases so it gives them something definitive to attack. Great to hear about the rehab and sorry its so costly. > > Hi everybody, > I started the evaluation process at NY Presbyterian. Because of my records as well as new symptoms of muscle aches, weakness and swelling, she felt auto-immune was the underlying culprit for lung disease. So I got my blood test results last week and I have 3 autoimmune diseases(1 is not enough for me!) Sjogrens', Lupes and Raynauds. The Raynauds is by far the most painful. I am even getting numbness in my hands and I have no strength. It is even annoying to type. I go see a rheumy this Thursday and hopefully meds will help. I registered with the Sjogren's site and just like this one, it's been very helpful. I also started pulmonary rehabilitation at Hackensack Univ. Hospital in North Jersey. It's just 5 miles from my office so it's very convenient. The respiratory techs are very nice- first session was yesterday and I enjoyed it. The bad part about the pulm rehab is that I have a co-pay for each visit of $30.00. It's 3 times a week for 8 weeks. I guess that's why we have home equity loans! If I don't get done by the end of the year, co-pay will be $40, so I'm VERY motivated. > nne >