Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Dearest Princess, As we've talked about before. Let them come out and tell you what they can offer you and your family. You are doing the right thing and doing it the right way. Gather information so that you can make your decision. I love you and will be with you every step of the way. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thu, November 5, 2009 10:24:15 AMSubject: Hi Group, Well I just made "THE" call. is gone to the store so I called hospice. someone will be out around 1 or 2 pm tomorrow. We'll see what they have to say.. can I tell you all I HATE THIS DISEASE. I just feel like this will be such a help for . I talked to my PA yesterday and she said it would be a good idea what they offer and just feel them out. The craziest thing is like I am doing this for someone else. I feel detached from the person who can't go out the front door much less care for herself any longer.. This is a really rough part group, hang on tight. When I get back into bed from the bathroom I just have NO air.. even on 12 L sooo thats the way it is.. I don't know if anyone else has experienced NO AIR but it is painful in your chest. I feel like I need "DRUGS" lol yes a little help will be a good thing. We will see how their plan works then decide. Anyhow please keep us in your prayers. Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
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