re: eval at ny presbyterian

[Guest guest]

Hi everybody,

I started the evaluation process at NY Presbyterian. Because of my records as

well as new symptoms of muscle aches, weakness and swelling, she felt

auto-immune was the underlying culprit for lung disease. So I got my blood test

results last week and I have 3 autoimmune diseases(1 is not enough for me!)

Sjogrens', Lupes and Raynauds. The Raynauds is by far the most painful. I am

even getting numbness in my hands and I have no strength. It is even annoying to

type. I go see a rheumy this Thursday and hopefully meds will help. I registered

with the Sjogren's site and just like this one, it's been very helpful. I also

started pulmonary rehabilitation at Hackensack Univ. Hospital in North Jersey.

It's just 5 miles from my office so it's very convenient. The respiratory techs

are very nice- first session was yesterday and I enjoyed it. The bad part about

the pulm rehab is that I have a co-pay for each visit of $30.00. It's 3 times a

week for 8 weeks. I guess that's why we have home equity loans! If I don't get

done by the end of the year, co-pay will be $40, so I'm VERY motivated.

nne

[Guest guest]

nne

So glad you went to NY Presby. Just one more example of how thorough and

helpful the Centers of Excellence are. The bad news is 3 autoimmune, but

the good news is 3 autoimmune. They often go together but then that

gives a probable underlying cause of the PF and they do have treatments

to help the autoimmune diseases that may slow or even stop the

progression of the PF. The doctors actually hope to find positive tests

for connective tissue diseases so it gives them something definitive to

attack.

Great to hear about the rehab and sorry its so costly.

>

> Hi everybody,

> I started the evaluation process at NY Presbyterian. Because of my

records as well as new symptoms of muscle aches, weakness and swelling,

she felt auto-immune was the underlying culprit for lung disease. So I

got my blood test results last week and I have 3 autoimmune diseases(1

is not enough for me!) Sjogrens', Lupes and Raynauds. The Raynauds is by

far the most painful. I am even getting numbness in my hands and I have

no strength. It is even annoying to type. I go see a rheumy this

Thursday and hopefully meds will help. I registered with the Sjogren's

site and just like this one, it's been very helpful. I also started

pulmonary rehabilitation at Hackensack Univ. Hospital in North Jersey.

It's just 5 miles from my office so it's very convenient. The

respiratory techs are very nice- first session was yesterday and I

enjoyed it. The bad part about the pulm rehab is that I have a co-pay

for each visit of $30.00. It's 3 times a week for 8 weeks. I guess

that's why we have home equity loans! If I don't get done by the end of

the year, co-pay will be $40, so I'm VERY motivated.

> nne

>

[Guest guest]

Peggy

Sure wish I could have been there to see all of you and to spend time in

Chattanooga. I use to cruise the river there on a regular basis and the

aquarium is incredible. Having at least been to a previous gathering I'm

able to appreciated and understand how special this one was to each of

you.

> >

> > Hi everybody,

> > I started the evaluation process at NY Presbyterian. Because of my

> records as well as new symptoms of muscle aches, weakness and

swelling,

> she felt auto-immune was the underlying culprit for lung disease. So I

> got my blood test results last week and I have 3 autoimmune diseases(1

> is not enough for me!) Sjogrens', Lupes and Raynauds. The Raynauds is

by

> far the most painful. I am even getting numbness in my hands and I

have

> no strength. It is even annoying to type. I go see a rheumy this

> Thursday and hopefully meds will help. I registered with the Sjogren's

> site and just like this one, it's been very helpful. I also started

> pulmonary rehabilitation at Hackensack Univ. Hospital in North Jersey.

> It's just 5 miles from my office so it's very convenient. The

> respiratory techs are very nice- first session was yesterday and I

> enjoyed it. The bad part about the pulm rehab is that I have a co-pay

> for each visit of $30.00. It's 3 times a week for 8 weeks. I guess

> that's why we have home equity loans! If I don't get done by the end

of

> the year, co-pay will be $40, so I'm VERY motivated.

> > nne

> >

>