Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 You are so brave today. Hugs and blessings to you and both. S, Lubbock, TX NSIP w/PF 12/2006 et al > > Hi Group, Well I just made " THE " call. is gone to the store so I > called hospice. someone will be out around 1 or 2 pm tomorrow. > We'll see what they have to say.. can I tell you all I HATE THIS > DISEASE. I just feel like this will be such a help for . > I talked to my PA yesterday and she said it would be a good idea what > they offer and just feel them out. > > The craziest thing is like I am doing this for someone else. I feel > detached from the person who can't go out the front door > much less care for herself any longer.. This is a really rough part > group, hang on tight. When I get back into bed from the bathroom I > just have NO air.. even on 12 L sooo thats the way it is.. I don't > know if anyone else has experienced NO AIR but it is painful in your > chest. > I feel like I need " DRUGS " lol yes a little help will be a good thing. > We will see how their plan works then decide. > > Anyhow please keep us in your prayers. > > > > Love & Prayers, Peggy > Florida, IPF/UIP 2004 > > " I believe that friends are quiet angels who lift us to our feet, > when our wings have trouble remembering how to fly. " > > >  > Quote Link to comment Share on other sites More sharing options...
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