Need to contact someone with knowledge of MAS

[Guest guest]

Hi All,

I also belong to a Still's support group and we recently had a new member join

who has a 22 year old neice with Still's disease and is in Swedish Hospital in

Seattle. She is in the ICU on a vent. I know that MAS is not usual but does

occur related to (usually) Juvenile Stills disease and frequently results in PF

if one is lucky enough to survive the acute outbreak.

A) I plan on giving her the information to connect with us on this board.

Does anyone out there know more than I do about MAS? (Bruce maybe?)

C) Is anyone familiar with the Pulmonary capabilities of Swedish Hospital in

Seattle. The family is from Idaho and she was choppered into Seattle.

Thanks for any help and feel free to email me direct.

Tom from PA AOSD 2003, Asthma 2005, NSIP 2008