Thank you

[Guest guest]

Thank you for bringing a dose of reality to the list. There are risks

with anything we undertake. I've known many RNY patients from another list

who did not fare well after surgery, and many of them still have to diet and

exercise to maintain weight loss and they fight the food demons every day.

We have to base our decision from the opinions of many voices, not just one.

While there are a few patients who have not lost a great deal of weight, I

was warned of that possiblity at my clinic visit (as with all WLS). This

was back in Feb when he told me straight out that he had a patient who's

weight started in the low 200's and she was only able to lose 50#'s

" naturally " .

Surgery is only a tool, not a panacea. We should not be able to eat

anything and everything only in small quantities.....our nutritional needs

will change, as are those of patients who have had RNY. We need to watch

what we eat, and we need to exercise. It's just that many of us before

surgery are so fat that it is hard to get moving without suffering pain and

soreness afterwards. As the weight comes off, exercise should get easier

and give us incentive to move and become stronger.

I'm not saying that those that have not lost alot of weight that it is

totally their fault. Our bodies have tremendous capacities to survive.

Some people if their bodies perceive a " famine " ....eating less calories,

their metabolism will shut down until they are able to survive and perhaps

gain on just a few hundred calories a day. This is particularly true of

someone who's body has been ravaged by dieting through the years. The only

answer to speed up the metabolism is basically, getting the body out there

and forcing the metabolism to burn off calories....which means exercise.

Just for a boost--- it doesn't have to be 3 hours everyday 5 days per week,

perhaps just walking mile or so every day to kickstart things. Many of you

have also said that once you let go of " calorie counting " and just ate a

more healthy diet that you lost much more weight. I've seen many of you

complain about slow weight loss at first, but these people seem to lose more

consistently than others who lose and plateau.

I really do not believe that Dr R has been lying to us as says. Dr R

is one of the most matter-of-fact doctors I have ever met and I work in the

medical field. I don't think he stretches the truth, or bends statistics.

Just like any other WLS, there are going to be people who lose too much

weight and those that do not lose enough. Granted, MGB just like RNY will

probably never take us down to the " bikini weight " we might like, as we

should only expect to lose 66% of our needed weight through surgery, but if

the barbie look is what you are going for, then perhaps the motivation for

having surgery is also wrong. Many of us have serious co-morbidities and

like you said , are plenty thankfull to have those conditions either

lessen or disappear entirely.

If this last outburst makes many who were going to have the surgery have

second thoughts, then maybe it's for the best. The decision should not be

made lightly. If you follow Dr R's instructions to the letter and observe

this list, even if you don't actively post, and stay with the list for a

couple of months before surgery, then by the time you get to the OR, there

should be no surprises. For me, between being on this list, and being an

observer on another RNY group, that clinched it for me, and even having been

here for the past 7 months has not swayed my decision. I believe I've seen

the good, the bad, and the ugly, and I'm going to be going in with my eyes

wide open.

And about saying that we will all die of esophageal cancer in the

future........esophageal cancer occurs after 20 or more years of acid

reflux.....if you have no reflux, you run no greater risk than that of the

general population. And like Dr R says, if patients would only eat a

healthy diet after surgery, then the risk is even lower. You don't just all

of a sudden come down with Esoph. cancer......if we had acid reflux for 20

years, don't you think we would know it? And most patients that I've seen

over the past 7 months have had bile reflux for the first few weeks after

surgery and that's it. Others who have had acid reflux in the past have had

it cured by surgery. So where's the cancer risk?

So everyone, research facts on your own. If you have any questions after

that, then ask Dr R....I'm sure he would much rather that you are satisfied

with the answers than to see you go into surgery unsure if what you are

doing is what you want. He's always stressed education, it's not like he's

pulling the wool over anybody's eyes. Above all, be sure that you are

prepared to face the life changes that will and need to occur after surgery.

And if you have the time to spare, go and sign yourself up to a couple of

other lists where the patients have had other methods of WLS.......I'm sure

your eyes will be opened.

JMHO

fg

>Message: 7

> Date: Sat, 23 Sep 2000 13:55:15 EDT

> From: Boingy300@...

>Subject: My MGB expeirence

>

>I'm 7 months post-op, and I have never seen another MGB er. I met Dr.R only a

>few times and felt he was on the level. I get no secondary gains by defending

>him. I have had a very positive experience s/p MGB. I'm down about 80 lbs.

>My comorbids of hypertension and sleep apnea are gone. I've had no problem

>with bile reflux,indegestion ,I can even count how many times I've burped

>since Feb. I'm in tune with my body and healthier than I've ever been. I know

>'s had a negative experience. It happens to some. I,however have had a

>positive experience. Good for me. Just thought you should here there's good

>and bad experiences. My friend(450 lb. paramedic) just had a lap RNY.Dropped

>50 lbs. in a month and couldn't even hold down water. He had severe scarring

>at the base of his esophagus from YEARS of GERD, not to mention his " stoma "

>almost totally closed off. He had to be scoped and dilated to 10mm,and will

>go back in a month for a dilitation to 15mm. He's weak,and very unhealthy

>looking right now,and yes I'm worried about him. Every procedure has it's

>risks! Previous Bilroth2's were preformed on the ill patients-s/p

>trauma,severe ulcer disease(malnourished states),and gastric cancer patients.

>This procedure is performed on the 'potentially' ill...the morbidly obese.

>I recently transported a triathelete who was dying from esophageal

>cancer....does this mean I should stop exercising?

>Please care enough about your bodies to do your OWN research! Don't rely on

>people who have other agendas to dictate what you think and feel.

>Good luck to those trying to get the facts....THEY AREN'T ALL LOCATED IN 1

>SPOT!

> Osler

>

[Guest guest]

In a message dated 9/24/2000 5:48:25 AM Eastern Daylight Time,

croby@... writes:

<< And if you have the time to spare, go and sign yourself up to a couple of

other lists where the patients have had other methods of WLS.......I'm sure

your eyes will be opened.

JMHO

fg >>

Wonderful post fg!!!!!!!!!!!!!!!!!!

Cathy Morrow in Lenoir, NC

BMI 42

A journey of a thousand miles begins with a single step

[Guest guest]

Here! Here! Well said!

Las Vegas, NV

preop

selfpay

290

fnnygrl wrote:

> Thank you for bringing a dose of reality to the list. There are risks

> with anything we undertake. I've known many RNY patients from another list

> who did not fare well after surgery, and many of them still have to diet and

> exercise to maintain weight loss and they fight the food demons every day.

> We have to base our decision from the opinions of many voices, not just one.

> While there are a few patients who have not lost a great deal of weight, I

> was warned of that possiblity at my clinic visit (as with all WLS). This

> was back in Feb when he told me straight out that he had a patient who's

> weight started in the low 200's and she was only able to lose 50#'s

> " naturally " .

>

> Surgery is only a tool, not a panacea. We should not be able to eat

> anything and everything only in small quantities.....our nutritional needs

> will change, as are those of patients who have had RNY. We need to watch

> what we eat, and we need to exercise. It's just that many of us before

> surgery are so fat that it is hard to get moving without suffering pain and

> soreness afterwards. As the weight comes off, exercise should get easier

> and give us incentive to move and become stronger.

>

> I'm not saying that those that have not lost alot of weight that it is

> totally their fault. Our bodies have tremendous capacities to survive.

> Some people if their bodies perceive a " famine " ....eating less calories,

> their metabolism will shut down until they are able to survive and perhaps

> gain on just a few hundred calories a day. This is particularly true of

> someone who's body has been ravaged by dieting through the years. The only

> answer to speed up the metabolism is basically, getting the body out there

> and forcing the metabolism to burn off calories....which means exercise.

> Just for a boost--- it doesn't have to be 3 hours everyday 5 days per week,

> perhaps just walking mile or so every day to kickstart things. Many of you

> have also said that once you let go of " calorie counting " and just ate a

> more healthy diet that you lost much more weight. I've seen many of you

> complain about slow weight loss at first, but these people seem to lose more

> consistently than others who lose and plateau.

>

> I really do not believe that Dr R has been lying to us as says. Dr R

> is one of the most matter-of-fact doctors I have ever met and I work in the

> medical field. I don't think he stretches the truth, or bends statistics.

> Just like any other WLS, there are going to be people who lose too much

> weight and those that do not lose enough. Granted, MGB just like RNY will

> probably never take us down to the " bikini weight " we might like, as we

> should only expect to lose 66% of our needed weight through surgery, but if

> the barbie look is what you are going for, then perhaps the motivation for

> having surgery is also wrong. Many of us have serious co-morbidities and

> like you said , are plenty thankfull to have those conditions either

> lessen or disappear entirely.

>

> If this last outburst makes many who were going to have the surgery have

> second thoughts, then maybe it's for the best. The decision should not be

> made lightly. If you follow Dr R's instructions to the letter and observe

> this list, even if you don't actively post, and stay with the list for a

> couple of months before surgery, then by the time you get to the OR, there

> should be no surprises. For me, between being on this list, and being an

> observer on another RNY group, that clinched it for me, and even having been

> here for the past 7 months has not swayed my decision. I believe I've seen

> the good, the bad, and the ugly, and I'm going to be going in with my eyes

> wide open.

>

> And about saying that we will all die of esophageal cancer in the

> future........esophageal cancer occurs after 20 or more years of acid

> reflux.....if you have no reflux, you run no greater risk than that of the

> general population. And like Dr R says, if patients would only eat a

> healthy diet after surgery, then the risk is even lower. You don't just all

> of a sudden come down with Esoph. cancer......if we had acid reflux for 20

> years, don't you think we would know it? And most patients that I've seen

> over the past 7 months have had bile reflux for the first few weeks after

> surgery and that's it. Others who have had acid reflux in the past have had

> it cured by surgery. So where's the cancer risk?

>

> So everyone, research facts on your own. If you have any questions after

> that, then ask Dr R....I'm sure he would much rather that you are satisfied

> with the answers than to see you go into surgery unsure if what you are

> doing is what you want. He's always stressed education, it's not like he's

> pulling the wool over anybody's eyes. Above all, be sure that you are

> prepared to face the life changes that will and need to occur after surgery.

>

> And if you have the time to spare, go and sign yourself up to a couple of

> other lists where the patients have had other methods of WLS.......I'm sure

> your eyes will be opened.

>

> JMHO

>

> fg

>

> >Message: 7

> > Date: Sat, 23 Sep 2000 13:55:15 EDT

> > From: Boingy300@...

> >Subject: My MGB expeirence

> >

> >I'm 7 months post-op, and I have never seen another MGB er. I met Dr.R only a

> >few times and felt he was on the level. I get no secondary gains by defending

> >him. I have had a very positive experience s/p MGB. I'm down about 80 lbs.

> >My comorbids of hypertension and sleep apnea are gone. I've had no problem

> >with bile reflux,indegestion ,I can even count how many times I've burped

> >since Feb. I'm in tune with my body and healthier than I've ever been. I know

> >'s had a negative experience. It happens to some. I,however have had a

> >positive experience. Good for me. Just thought you should here there's good

> >and bad experiences. My friend(450 lb. paramedic) just had a lap RNY.Dropped

> >50 lbs. in a month and couldn't even hold down water. He had severe scarring

> >at the base of his esophagus from YEARS of GERD, not to mention his " stoma "

> >almost totally closed off. He had to be scoped and dilated to 10mm,and will

> >go back in a month for a dilitation to 15mm. He's weak,and very unhealthy

> >looking right now,and yes I'm worried about him. Every procedure has it's

> >risks! Previous Bilroth2's were preformed on the ill patients-s/p

> >trauma,severe ulcer disease(malnourished states),and gastric cancer patients.

> >This procedure is performed on the 'potentially' ill...the morbidly obese.

> >I recently transported a triathelete who was dying from esophageal

> >cancer....does this mean I should stop exercising?

> >Please care enough about your bodies to do your OWN research! Don't rely on

> >people who have other agendas to dictate what you think and feel.

> >Good luck to those trying to get the facts....THEY AREN'T ALL LOCATED IN 1

> >SPOT!

> > Osler

> >

>

>

[Guest guest]

Candy,

I see Dr. Ann Brown at Duke - she is a specialist in reproductive

endocrinology (sp). It'll be a little bit of a drive for you but

give

it a shot. Also, my PCP has just transferred to Duke. Her name is

Vernice Royal. She has been thrilled with my success and has since

recommended patients to Doc R.

-Ginny I.

> I just wanted to take a minute to say thanks for all the replies I

> got

> from my last post " Today Was A Really Bad Day "

>

> You brought me incouragement when I was weak.

>

>

> So now if anyone knows any doctors who will approve me for this

> surgery or any specialist concerning PCOS in North Carolina please

> let

> me know.......I live in ville which is close to High Point,

> Greensboro or Winston Salem.

>

> Thanks again this site is such imspiration to me.

>

> Candy

[Guest guest]

This is so beautiful. Enjoy it and pass it on to those who have touched your life. Love, Judy Thank you Rootbeer and TwinkiesTo miss heaven is to miss it all !A little boy wanted to meet God. He knew it was a long trip to where Godlived, so he packed his suitcase with Twinkies and a six-pack of root beerand he started his journey.When he had gone about three blocks, he met an old man. He was sitting inthe park just staring at some pigeons. The boy sat down next to him andopened his suitcase. He was about to take a drink from his root beer whenhe noticed that the old man looked hungry, so he offered him a Twinkie.He gratefully accepted it and smiled at him. His smile was so pleasantthat the boy wanted to see it again, so he offered him a root beer. Again,he smiled at him. The boy was delighted! They sat there all afternooneating and smiling, but they never said a word.As it grew dark, the boy realized how tired he was and he got up to leave,but before he had gone more than a few steps, he turned around, ran backto the old man, and gave him a hug. He gave him his biggest smile ever.When the boy opened the door to his own house a short time later, hismother was surprised by the look of joy on his face. She asked him, "Whatdid you do today that made you so happy? "He replied, "I had lunch withGod." But before his mother could respond, he added, "You know what? He'sgot the most beautiful smile I've ever seen!"Meanwhile, the old man, also radiant with joy, returned to his home. Hisson was stunned by the look of peace on his face and he asked, "Dad, whatdid you do today that made you so happy?" He replied, "I ate Twinkies inthe park with God." However, before his son responded, he added, "Youknow, he's much younger than I expected."Too often we underestimate the power of a touch, a smile, a kind word, alistening ear, an honest compliment, or the smallest act of caring, all ofwhich have the potential to turn a life around. People come into our livesfor a reason, a season, or a lifetime. Embrace all equally!Send this to people who have touched your life in a special way.Let them know how important they are.Have lunch with God!And .......Thanks for touching my life.

[Guest guest]

Sharon, Happy Birthday! How nice of your daughter

and granddaughter to send you the balloon bouquet.

Please let us know what your rheumy has to say at your

visit today.

Love squeek

--- Lee27a@... wrote:

> Wow, thank you for sharing about grief. You guys

> have been so helpful and I

> can see that a lot of you are having a hard time

> too. It's just strange, one

> year my Mom wasn't here for my birthday and today my

> dad isn't. As you

> wonderful people said, it takes time and I guess I

> have been in denial with

> both of my parents since they passed away so close

> together. Thanks again.

> You guys are the greatest.

> Guess what. This morning I get a phone call from my

> daughter and

> granddaughter and they tell me to look outside the

> front door. I did and

> there was a big bouquet of balloons for me. So,

> that was really a nice

> birthday surprise.

> I will see my Rheumy today at 1:45--yuck!

> Love you Guys and Thank You so much for sharing and

> your comforting words.

>

> Your Friend,

> Sharon

>

=====

__________________________________________________

[Guest guest]

I am so glad she was pleased. Bless each of you all . Have a super

weekend

LOVE & HUGS, grandmomBEV

thank you

Thank you to everyone one who sent Eilish cards and little things etc.

She has loved them. I cannot mention everyone as she got a package of

all the cards she had forwarded to her from the hsp. And she has taken

them to school for show and tell.

But Thank you all anyway.

(Australia)

<http://hotbar.com/scripts/utils/content.asp?requestor=ec1>

_____

<http://promos.hotbar.com/promos/promodll.dll?RunPromo & El=ec%3bhotbar%5f

element%3b & SG=sg325 & RAND=97095> Upgrade Your Email - Click here!

[Guest guest]

Celeste,

Glad you made it through the weekend. Good luck this week, keep your chin up

and spirits high. Think of all the positives and milestones you will be

achieving in the near future. Take care and God Bless!!!

Laurette

4/23/04 open rny

309/290/254/150

St. Charity

Cleveland, Ohio

[Guest guest]

,

I am sorry you had to leave your job too. I had to leave mine too,

though mine had to be a permanent leave because I wasn't capable of

working anywhere. Hopefully all you need is some more time off to fully

recooperate and I really hope that is the case. Defintely go back on the

antioxidants if they were helping you with your energy levels. Sometimes

that can make the difference.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Thank you to everyone who has answered my questions and given me so much

support. We just taking one day at a time.

, Jonah's mom

[Guest guest]

I just wanted to say thank you to all that reply on this blog.

I was going to Disney and I got tips from all of you out there.

Rach has had bad gas in the past and once again, I got advice.

Now she has dizziness. - I can always count on hearing from someone.

It just helps to know other people out there have dealt with the same stuff.

I just wanted to say thanks.

Marla P.

Subject: FYI: study re: bilberry extract and colitisTo: "BTVC-SCD " <BTVC-SCD >Date: Monday, June 7, 2010, 2:38 PM

Bilberry extract shows colitis benefits: Animal studyBy ls, 02-Jun-2010Related topics: Research, Antioxidants, carotenoids, Phytochemicals, plant extracts, Gut health Anthocyanin-rich extracts from bilberry (Vaccinium myrtillus) may reduce inflammation in colitis patients and offer a natural alternative to steroids, suggests new research. A study with lab animals found that an extract from bilberry was associated with reductions in the secretion of inflammatory markers in the colon, with the extract outperforming pure bilberries, according to findings by the Universities of Wurzburg, Regensburg and Zurich. Colitis is inflammation of the colon. According to the UK’s National Health Service (NHS), ulcerative colitis is a relatively uncommon condition, affecting about 100,000 people in England. Women are 30 per cent more likely to develop the condition than their male

counterparts. Other inflammatory conditions of the colon include Crohn’s disease. Symptoms of such conditions include abdominal pain, weight loss, diarrhoea, and vomiting. Lead researcher of the study, Professor Gerhard Rogler from the Department of Internal Medicine at the University Hospital of Zurich told NutraIngredients that, while there are a number of guidelines for the treatment of ulcerative colitis, some patients with mild to moderate colitis do not respond sufficiently to treatments like 5-aminosalicyclic acid or steroids. “Bilberries could be an additional nutritional approach for mild to moderate colitis that helps to avoid immunosuppression with the respective side effects, such as infections, in those patients,†he said.Using bilberry extracts from Kaden Biochemicals, a member of the Symrise group of companies, the researchers tested the effects on animal models of acute and chronic colitis.

___________

Another study showed bilberry extract to also have anti-diabetes properties.

n

_________________

-

Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: pagtek@...Date: Wed, 15 Sep 2010 05:13:41 -0700Subject: Thank you

Hi all,

My name is Pam. I was diagnosed in 1989 and have been mudling along. I just signed up last week and Thank you. I have been thinking everything happening was in my mind.

My PCP just lets me talk and nothing is done. I am getting the message I need a new dr. My sarcoid specialist retired - though wasn't seeing me but once every year or two. My rhumetologist doesn't really know sarcoidosis I am finding out and only sees me every 6 -12 months.

Well, I have been having severe headaches and migraines, my eye dr is phenomenal and stays on top of my retina inflammations, but the burning in my right leg is driving me crazy - I had no idea what it was. Now I hear many talking about it. I am not going crazy yeehaw! I also have the numbness and I have raised painful lumps on my fingers ( is that arthritis or sarcoid?) I also have tremendous chest pressure and pain - I used to go to the ER, but my heart is fine. Is this sarcoid or they also say I have fibromyalgia, but I wonder if the pain is sarcoid.

I had never heard of NS until I read this site. Thank you

Well, God bless all of you and thank you for opening my eyes.

[Guest guest]

Hi Pam, Welcome,  I have the raised lumps and bumps too, back of my hands, really swell and turn red and burn with sun exposure, but have bumps all over my body, even on my face, I use more cover up, good thing I sell  it and can get it at cost.  Anyway, I get the burning all over too, I have more problems with my left side, burning headaches, etc..

I have found Lyerica helpful for the burning, and I'm on Remicade, Methotrexate, and Plaquanil, or there any others?  you would think that would stop the progression but not yet.  Oh well , like I say, One day at a time.  I hope you can find a doctor that will listen.  My doctor learned about Sarcoidosis along with me, actually I think I educated him, he'll agree.  Don't be afraid to stand up, and don't let any doctor say it's not Sarcoid, or all in your head. Lets us know if you have questions.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

Hi all,

My name is Pam.  I was diagnosed in 1989 and have been mudling along.  I just signed up last week and Thank you.  I have been thinking everything happening was in my mind. 

My PCP just lets me talk and nothing is done.  I am getting the message I need a new dr.  My sarcoid specialist retired - though wasn't seeing me but once every year or two.  My rhumetologist doesn't really know sarcoidosis I am finding out and only sees me every 6 -12 months.

Well, I have been having severe headaches and migraines,  my eye dr is phenomenal and stays on top of my retina inflammations, but the burning in my right leg is driving me crazy - I had no idea what it was.  Now I hear many talking about it.  I am not going crazy  yeehaw!  I also have the numbness and I have raised painful lumps on my fingers ( is that arthritis or sarcoid?)  I also have tremendous chest pressure and pain - I used to go to the ER, but my heart is fine.  Is this sarcoid or they also say I have fibromyalgia, but I wonder if the pain is sarcoid.

I had never heard of NS until I read this site.  Thank you

Well, God bless all of you and thank you for opening my eyes.