Re: disability

[Guest guest]

Thanks! I'm trying to get enough info before I take a day off and go

talk to them. I really need to because I also have the 1 ex husband

married for 17 years, and 1 deceased husband married for 10.5 years so I

need to find out what the best " deal " for me is. Thanks again

Dyane Phoenix ipf 02

> >

> > Sorry to hear you have one of those Pulmonolgists with an attitude.

I

> did as well for the last 10 years I lived in Seattle prior to

> retirement. As to filing with Social Security, I had no problems

> getting on disabililty. I had a lung biopsy done at UW Seattle along

> with PFTs etc. in '07 and I went through a 3 day transplant evaluation

> (to include PFTs etc) at UW Madison, Wisconsin in '08. All these

records

> went to Social Security and they determined that sometime between the

> biopsy and transplant evaluation, my stats dropped low enough to

qualify

> me for disability so they started my checks right away. In addition,

> they decided to reimburse me for several of the past months where I

> didn't receive a check. They had some type of formula they used to

> approximate just when it was I likely qualified over the period of 13

> months between my testing. I have heard different stories from

> different folks but for me it was not a pain at all

> > (except for filling out the forms on-line). I'd say go for it - it

is

> well worth it!

> >

> > Mike

> >

>

[Guest guest]

Walt,

Good deal, yeah its so hard sometimes and I really do try to stay

positive but jeez.....one of the few good things I heard about one of

the " health plans " was to end the 2 year wait for medicare for

disabeled. Duh! I would have to use the Az Medicade as Cobra would

cost me $862/mo plus the $4000 deductible. So the government would be

paying one way or another. Thanks for the info.

Dyane phoenix ipf 02

> >

> > Sorry to hear you have one of those Pulmonolgists with an attitude.

I

> did as well for the last 10 years I lived in Seattle prior to

> retirement. As to filing with Social Security, I had no problems

> getting on disabililty. I had a lung biopsy done at UW Seattle along

> with PFTs etc. in '07 and I went through a 3 day transplant evaluation

> (to include PFTs etc) at UW Madison, Wisconsin in '08. All these

records

> went to Social Security and they determined that sometime between the

> biopsy and transplant evaluation, my stats dropped low enough to

qualify

> me for disability so they started my checks right away. In addition,

> they decided to reimburse me for several of the past months where I

> didn't receive a check. They had some type of formula they used to

> approximate just when it was I likely qualified over the period of 13

> months between my testing. I have heard different stories from

> different folks but for me it was not a pain at all

> > (except for filling out the forms on-line). I'd say go for it - it

is

> well worth it!

> >

> > Mike

> >

>

[Guest guest]

I havent seen anything about leaving. , are you okay?

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600Subject: Re: Disability

It probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right. Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:) I have a question, do you automatically get put on Medicare too? Or if you have insurance through your husband can you just stay on that? My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything, you know like Solent Green, remember that movie? lol I shouldn't laugh I guess anything possible? Anyway just wondered if you knew? Hey did I see leave us? Marla

Well, it wouldn't hurt to start the process, as it may take quite awhile. Now my daughter Ginny got approved on the first try, in about 3 months. I was astonished. She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them. Or maybe she just got lucky.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much, I'm still thinking, should I or shouldn't I? Thanks,Marla

Marla, here is one of Connie's posts about disability. I'll be sending some more through today.

As to the bottom question, it is all offices on the initial or recon level. You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same. I do all initial cases now. I don't understand why it is commonly thought that lawyers change our opinion. They do not write up paperwork and send it to us. They may help the client fill out their paperwork, or forward medical records; but that's about it. Occasionally, the client will want us to talk through them, but that doesn't change anything either.

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems. Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me. If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult. If he can get his doctor to write a "Medical Source Statement" regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself "brutally" honestly, it will help When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is. How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does. Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc. Is he exposed to the weather (high heat, cold, etc.), and how does this affect him. Medical records only tell us so much, and function is the key word as far as disability is concerned. If it proceeds, and gets to the court appeal level he needs an atty then. It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble. I have found cases that should have been approved the first time and reopened them back to the first case, it happens. Hope this helps, you can always ask a question, I will do my best to answer it. I just can't work on cases of people I personally know. connie

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think. Thanks, marla

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

[Guest guest]

Marla, at the time, when that movie came out, it scared the bejeebees out of me. Freaked me out. It woulld be nothing nowadays but a real classic, to be sure. hugs Life may not always be the party we hoped for, but while we're here we might as well dance!

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

[Guest guest]

I also got this strange email, telling me to approve two pending post, it was a Dear Moderator letter, and so I went in to do it, and as the letter said, they were pending, so I couldn't, didn't see any posts just said pending, maybe Yahoo's having problems??

Ya I hope you are still " here " ? 

 

I havent seen anything about leaving.  , are you okay?

Ramblin' RoseModerator

 

 

It's not that life is so short-------It's that we wait so long to begin. 

(attributed to Wooden, among others)  

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: Disability

It probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right.  Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:)  

I have a question, do you automatically get put on Medicare too?  Or if you have insurance through your husband can you just stay on that?  My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they

will say I'm too old to be treated for anything,  you know like Solent Green,  remember that movie? lol I shouldn't laugh I guess anything possible?  Anyway just wondered if you knew?  Hey did I see leave us?   

Marla

 

Well, it wouldn't hurt to start the process, as it may take quite awhile.  Now my daughter Ginny got approved on the first try, in about 3 months.  I was astonished.  She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them.  Or maybe she just got lucky.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today. 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600

Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600

Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

[Guest guest]

I wonder do we get to pick, or do we just randomly get whatever? 

 

Recycling is good!

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 16:45:28 -0600

Subject: Re: Disability

Hey Rose, Thanks for the info, I really appreciate it, I bet you saw that movie and don't remember, at a certain age like 70 it was mandatory that you show up to basically die, they recycle you, and people line up daily to be fed, that's the jest of it! 

God forbid we ever get to that.  Thanks, again, Marla

 

I don't think I saw that movie.  You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory.  Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money.  I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: DisabilityIt probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right.  Well that's where everyone gets this idea I must

feel as good as I look, they just don't know it took some major plaster work:)   I have a question, do you automatically get put on Medicare too?  Or if you have insurance through your husband can you just stay on that?  My husbands worried that

I will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything,  you know like Solent Green,  remember that movie? lol I shouldn't laugh I guess anything possible? 

Anyway just wondered if you knew?  Hey did I see leave us?    Marla

 

Well, it wouldn't hurt to start the process, as it may take quite awhile.  Now my daughter Ginny got approved on the first try, in about 3 months.  I was astonished.  She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them.  Or maybe she just got lucky.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today. 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600

Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600

Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

[Guest guest]

Connie, Thank you, I am saving all these emails, and will be talking to my docs soon. Boy the memory issue is big for me,  the other day I took my night pills in the am, and I take something that helps my restless legs, and makes me sleepy, well, I didn't realize I did that, even though they are clearly marked, and told my Mom, WOW I'm really tired today, took two naps, lol

then couldn't stay asleep that night, so sleepy again the next day, it took a couple days to just recover from that:) Thank you for all your advice, you don't know how much I appreciate this. God Bless,

Marla

 

I'm sorry I forgot something (does that sound familiar)   The mental challeges we face, put all of them down; if you have short term memory problems, long term memory problems, trouble remembering to take your medicine, concentration problems, trouble finding words, trouble understanding or following directions sometimes, etc.

To: neurosarcoidosis

Sent: Thu, August 26, 2010 9:26:08 PMSubject: RE: Disability 

Ooooo, I wonder if I've already gotten recyclables?!?

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

It's not that life is so short-------It's that we wait so long to begin. 

(attributed to Wooden, among others) 

 

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 16:50:59 -0600

Subject: Re: DisabilityI wonder do we get to pick, or do we just randomly get whatever? 

 

Recycling is good!

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...

Date: Thu, 26 Aug 2010 16:45:28 -0600

Subject: Re: DisabilityHey Rose, Thanks for the info, I really appreciate it, I bet you saw that movie and don't remember, at a certain age like 70 it was mandatory that you show up to basically die, they recycle you,

and people line up daily to be fed, that's the jest of it!  God forbid we ever get to that.  Thanks, again, Marla

 

I don't think I saw that movie.  You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory.  Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money.  I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...

Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: DisabilityIt probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right.  Well that's where everyone gets this idea I must

feel as good as I look, they just don't know it took some major plaster work:)   I have a question, do you automatically get put on Medicare too?  Or if you have insurance through your husband can you just stay on that?  My husbands worried that

I will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything,  you know like Solent Green,  remember that movie? lol I shouldn't laugh I guess anything possible? 

Anyway just wondered if you knew?  Hey did I see leave us?    Marla

 

Well, it wouldn't hurt to start the process, as it may take quite awhile.  Now my daughter Ginny got approved on the first try, in about 3 months.  I was astonished.  She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them.  Or maybe she just got lucky.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...

Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today. 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick

up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this

helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...

Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...

Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

[Guest guest]

I went on disability when I was 35. I was devastated, but I only got back to work one day after my symptoms hit me like a ton of bricks. I, too, was denied the first time, but I got a lawyer and she helped me win the second time around. You have to pay them something like 25% of the previously owed disability, but it was worth it.To:

Neurosarcoidosis Sent: Wed, December 1, 2010 12:23:29 PMSubject: Disability

Is anyone on disability or applied for disability? I have applied but of course was denied. In the process of appealing the decision. Should I keep trying or just try and go back to work. I fear going back to work because of the fatigue and the eye sight problems. I am torn as to what to do because I am only 36. I know none of you can make that decision for me. But I was curious how everyone else is dealing with sarc and working. I do not want to seem like I am using this as an excuse and not wanting to work but I have not gotten a handle on the disease yet and am still in the trial and error stage. I also fear if I go back to work and have to keep taking off for doctors appts and the remicade infusion drips that the my employer will not be as understanding and fire me. Then I will

right back where I started. I just dont know what to do and where to go from here.