Re: reply to on osteopenia

[Guest guest]

Hi nne,

I know what you mean. Mercedes othopedist at our local children's hospital

didn't see the osteopenia either, even though the skeletal survey radiology

report sited osteopenia.

I say yes. Get another endo.Get another orthopedist, even if you have to go out

of the the area.

Ask your other specialists for help in writing if you need to. At least they

will know there is problem you are concerned about, and it is on record you feel

more needs to be done, and then the ball is in their court.

Our old endo was useless and the second endo at the same hospital is also

useless. I told her about the ostepenia and she did no labs and didn't adjust

the GH for weight , same as the old rotten endo.

Right now I am waiting for the referral to go through for 2 other endos on

California. We live in the middle of California, in Fresno. You will have to bug

your local doctor's office. In fact today I had to drive 20 miles to the

children's outpatient speciality clinic (they see the kids with complex medical

histories)and put the contact info in the secratary's hand, personally. I had

sent a letter in January and nothing had been done, because the secrectary

didn't use the internet and type in the name and institution for the doc like I

had done or pick up the phone and call me. If I hadn't sent a fax of the letter

I wrote in January, and called to see how it was going, I never would have found

out she was sitting on her hands.

I am happy to say that yesterday, the Physician Assisant in the GI clinic wrote

an order for a bone scan for Mercedes. I was sooooooooo happy!

I had written letters to both the ped and the GI doc asking for one months ago,

but neither gave me an order on the last visits. The GI doc at least ordered

some labs to see what might be the problem, and the ped just wanted to repeat

the x-ray after one year.

I went to another instition and the ortho doc said the scans were only compared

the reading to women in their 30's. I did my own research and found it was not

true. (I am going to request another doc from that instution.)

It is tiring to be the only brain in a stew of " educated people " .

I have to become a female bear and a female dog with whip!

If you are as patient I once was, the medical community will drag its feet.

Better eat yor Wheaties.

odmomx4 wrote:

,

You wrote an email on osteopenia. My daughter Mia was diagnosed by

Dr. Harbison (in New York) with severe osteopenia. My endo here in

Tampa is not concerned and didn't follow through at all with it. He

told me he didn't see it on the xray and to come back for her

routine follow up in 6 months. Should I go to another endo or a

ortho doctor? Any advice would help! Thanks!!

nne (Mia's mom)

> Hi Everyone,

>

> I don't post as often as I used to.

>

> I know some famiies have an oestoepenia issue with their kids.

> http://www.childrenshospitalla.org/body.cfm?

id=13 & action=detail & ref=13

>

> I found a bit of info refering to fat in the viseral area. That is

the middle, where the organs sit.

> Our kids have trouble with hypotonia, so our kids have more fat to

muscle ratio for weight.

> Not only that, but kids with GH defiency/usage problems have more

fat in the viseral space due to to lack of GH. (See the guideline

for GH use www.aace.com/clin/guidelines/hgh.pdf#search='growth%

20treament%20growth%20guidelines'

>

>

> If the second link doesn't work, try searching for American

Association of Clinical Endocrinologist Medical Guideline for

Clinical Practice For Growth Hormone Use In Adult And Chidren- 2003.

I beleive the reference to viceral fat is on the first or second

page.

>

>

> mom to Mercedes 6 years old RSS, osetopenia, and more

>

> __________________________________________________

>