Re: :Responding to your letter.

September 22, 2001

I am just curious. I feel that immunizations are responsible and I think it

is diet related too. At least that is my understanding of the material out

there. Is there a reason you think that those are seperate conclusions?

-Phyllis

:Responding to your letter.

>

> Listed above are the groups to which we belong. We are the adoptive

parents of two children, Joetta, age 9 whose 'normal' and who was born

with his insides out, put back in and work okay although he has only a small

intestine. We knew of this condition prior to his birth. What we did not

'bargain for' if you'll pardon the expression is his autism and Hypotonia

with which we've been dealing since he was finally diagnosed properly around

3 years of age. He is on GF diet, not CF as yet and takes risperadol,

paxil, prevacid and a vitamin cocktail in case his problem is

mitrochondrial.

>

> Honestly, there are those who feel the immunizations are responsible,

those who think it's diet related and those who think it's genetic. We have

no idea which is the case and are willing to go to any extent to help

fulfill his life appropriately and dread the day when it will be necessary

for him to go to residential care. We are not young parents and have grown

children as well.

>

> Sometimes, it's slightly more than a hassle--other times it's heavenly

that he doesn't speak in view o his sister's mean, rotten nasty vocabulary

especially in connection with him and her lack of acceptance. Suffice it to

say, as we've said before, when it's good, it's great and when it's bad,

it's horrid.

> Shirley Semesky

> Mom to , 8

> PDD/Autism/Hypotonia

> and Joetta, 9 --going on 21

> ***

> *.*(\ (_) /)*.*

> .*.(_/ || \_).*.

> *..*/____\*..*

> May your guardian angel watch over you faithfully.

>

September 22, 2001