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- I just counted and has flown on about 15 separate

flights in the last year alone. Not ONCE have we ever been asked

for the actual prescription. One time they said the label on

the " box " is fine. I still carry the prescription with me, though.

We have found the easiest thing to do is to pack meds/GH/syringes

in an insulated thermos bag, we tape a big label on it that

says " MEDICATION/SYRINGES - Must be refrigerated " and then it is not

like we are hiding anything. You shouldn't have any trouble.

Jenn

> >

> > ,

> >

> > Whenever we travel with Max's gh and syringes, I carry a letter

> from

> > Dr. H. or Max's pediatrician stating what they are and why we

need

> > them. For all the planes we have been on, only one time have we

> > ever been questioned. You should not have a problem with the

> pump,

> > either, but you may want a letter from the doctor just in case.

> >

> > As for the formula that you will have to take, I would recommend

> > doing what we used to do: send it ahead of you. We used to

take

> it

> > to the post office, pack it up and mail it to arrive on the day

we

> > were supposed to arrive at our destination. It sure beats

> carrying

> > all those heavy cans.

> >

> > You are going to have a GREAT time at the convention. It may be

> > your first time, but after a few hours, you will feel as if you

> are

> > with family. I call it a yearly family reunion. The atmosphere

> is

> > so uplifting and positive and just wonderful.

> >

> > Jodi Z

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  • 7 months later...

Hi ,

Dayna Carney, Alyssa's mom, handled the scholarship fund last year. I'm not

sure if she's doing that again this year or not, but her email address is

daycarney@...

You might want to try contacting her, and seeing if she can advise you.

Hope this helps!

Pat (g-ma to , RSS, 4 yrs old, G-Tube, GHT)

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