Re: HELP! re Megace/Other appetite remedies

[Guest guest]

In a message dated 9/21/2003 9:41:34 AM Eastern Daylight Time,

jeninca1010@... writes:

I know this sounds absolutely

crazy, but if you can get some medical marijuana, that may help. It

can be cooked in food and have the same effect as inhaling

Remember, Bill Clinton didn't inhale....lol I had to say it!!!!!!!

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Wow. My heart goes out to you. I can't imagine a 17 yr old at 106

lbs. My 2.5 yr old son was put on megace and periactin to try to get

him to eat by mouth. He is orally aversive to food and refuses to

eat by mouth. He is exclusively g-tube fed. The medications didn't

work for us--he just is NEVER hungry. BUT, we did not have ANY side

effects on Megace and he was just a little more sleepy with the

periactin. If a 25 lbs 2 yr old can take it, I would think that a 17

yr old could. Are you in the states? I know this sounds absolutely

crazy, but if you can get some medical marijuana, that may help. It

can be cooked in food and have the same effect as inhaling. Another

nutty option to explore...

mom to Ashton 2.5 yrs wcf

> At CF clinic today, the doctors recommended that my son, 17 with

CF, ADD and

> failure to thrive (5'ft 8 in, 106 pounds, after trying all the

usual remedies

> including Scandishakes, nutritionists, ensure, incentives etc etc

etc) start

> on Megace twice daily to stimulate his appetite. He has no

pancreatic

> involvement from CF but they are going to put feeding tube in place

if he can't get

> weight on. Difficulty keeping weight on /gaining weight has been a

life long

> problem, not related to CF. I would very much appreciate any

ideas/ opinions

> re using megace (megestrol, which is a synthetic progesterone). I

know he

> needs to gain weight and the situation requires creative remedies,

but I am

> concerned about the side effects from megace including possible

adrenal

> suppression, depression, diabetes, etc.. Has anyone used Megace

for weight issues with

> CF? What do people think about the benefits vs risks of using it?

Any and all

> suggestions re megace and/or alternatives would be appreciated as

soon as

> possible!!

>

> Thanks in advance!

>

> Marcia s, mom to , 17 w/cf and , 14 w/o cf

>

>

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