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My pediatrician thinks that my 17 month old daughter with cf should have the

synagis shot to prevent rsv. Her cf doc says that she doesn't need it and

she didn't have it last year either. Should every young child with cf have

it? Do only some get it because it is expensive and not everyone can afford

it? I am wondering what to do. She has had such bad luck with sinus

infections, many bouts of pneumonia, lots of colds and sleep apnea. She is

always sick and I don't want to take any chances with her getting rsv.

Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years (no CF)

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That is strange. My CF doc AND my pediatrician STRONGLY encouraged

the RSV shot until my son was 2. Especially since you have an older

child and you daughter wcf has had other lung issues. It can't hurt

to give it but it can be pricey if you don't have insurance.

mom to Ashton 2.5 yrs

> My pediatrician thinks that my 17 month old daughter with cf should

have the

> synagis shot to prevent rsv. Her cf doc says that she doesn't need

it and

> she didn't have it last year either. Should every young child with

cf have

> it? Do only some get it because it is expensive and not everyone

can afford

> it? I am wondering what to do. She has had such bad luck with sinus

> infections, many bouts of pneumonia, lots of colds and sleep apnea.

She is

> always sick and I don't want to take any chances with her getting

rsv.

>

> Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

(no CF)

>

> _________________________________________________________________

> Frustrated with dial-up? Get high-speed for as low as $29.95/month

> (depending on the local service providers in your area).

> https://broadband.msn.com

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Hello Holly!!

I think you should go ahead and give it to her. I have never read of

any side effects, although some kids do have certain reactions to

vaccines, but the alternative is worst. I gave a the pneumovax

(sp) shot even though I was told that was not a concern in cf.

Specially, if insurance is paying for it, do it.

Just my personal opinion,

> My pediatrician thinks that my 17 month old daughter with cf should

have the

> synagis shot to prevent rsv. Her cf doc says that she doesn't need

it and

> she didn't have it last year either. Should every young child with

cf have

> it? Do only some get it because it is expensive and not everyone

can afford

> it? I am wondering what to do. She has had such bad luck with sinus

> infections, many bouts of pneumonia, lots of colds and sleep apnea.

She is

> always sick and I don't want to take any chances with her getting

rsv.

>

> Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

(no CF)

>

> _________________________________________________________________

> Frustrated with dial-up? Get high-speed for as low as $29.95/month

> (depending on the local service providers in your area).

> https://broadband.msn.com

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my son had synagis the first 2 winters, he was 6 weeks premature and I think on

top of the flu shot ,it was a good added precaution had barely a cold both

winters. cf dr said he didn't need it and was to old for it last visit he will

be 2.5 next month. but to get flu shot mid oct for sure, so I would go for it if

your insurance will pay for it. ours did thank god it is spendy!

good luck

amy mom to nathan 2.5 with cf

rsv questions

My pediatrician thinks that my 17 month old daughter with cf should have the

synagis shot to prevent rsv. Her cf doc says that she doesn't need it and

she didn't have it last year either. Should every young child with cf have

it? Do only some get it because it is expensive and not everyone can afford

it? I am wondering what to do. She has had such bad luck with sinus

infections, many bouts of pneumonia, lots of colds and sleep apnea. She is

always sick and I don't want to take any chances with her getting rsv.

Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years (no CF)

_________________________________________________________________

Frustrated with dial-up? Get high-speed for as low as $29.95/month

(depending on the local service providers in your area).

https://broadband.msn.com

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Holly,

My daughter, Piper 14 months, was diagnosed in November of last year. As soon

as she was diagnosed she received her first Synagis shot and got them through

April of this year. Her CF doc told us that she should get them again this year

as well as a flu shot. I stay home with Piper, she doesn't go to daycare or a

babysitter, so she isn't around other children, but I still feel that the

Synagis shot is a must, just in case. I would rather bear the expense of the

shot than have her get RSV and end up in the hospital.

I've seen the toll that RSV takes on kids that don't have CF, so I don't want to

find out what it would do to one with CF. I hope that this helps.

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

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Hi Holly,

I'm really surprised your CF doc said she doesn't need it! Ours

strongly encouraged we get them each winter until our daughter is 2. We

did it last year and we are waiting to hear if insurance will pay again

this year. I would definitely go with your pediatrician's

recommendation and get it.

Mom to Ellie 10mo wCF and Jack 3yo noCF

rsv questions

My pediatrician thinks that my 17 month old daughter with cf should have

the

synagis shot to prevent rsv. Her cf doc says that she doesn't need it

and

she didn't have it last year either. Should every young child with cf

have

it? Do only some get it because it is expensive and not everyone can

afford

it? I am wondering what to do. She has had such bad luck with sinus

infections, many bouts of pneumonia, lots of colds and sleep apnea. She

is

always sick and I don't want to take any chances with her getting rsv.

Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years (no

CF)

_________________________________________________________________

Frustrated with dial-up? Get high-speed for as low as $29.95/month

(depending on the local service providers in your area).

https://broadband.msn.com

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Share on other sites

Hi Holly,

Our daughter went through her first winter without synagis too. Her ped

recommended it for the 2nd winter and CF clinic was in agreement. RSV can be

especially dangerous to our little ones and we felt that didn't need to

be admitted for RSV as well.(she had enough going on with CF) It might be worth

it to just get it. Did CF clinic say NOT to do it or just that she didn't HAVE

to have it? The decision is yours but we decided to go on the side of caution.

Good luck!

rsv questions

My pediatrician thinks that my 17 month old daughter with cf should have the

synagis shot to prevent rsv. Her cf doc says that she doesn't need it and

she didn't have it last year either. Should every young child with cf have

it? Do only some get it because it is expensive and not everyone can afford

it? I am wondering what to do. She has had such bad luck with sinus

infections, many bouts of pneumonia, lots of colds and sleep apnea. She is

always sick and I don't want to take any chances with her getting rsv.

Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years (no CF)

_________________________________________________________________

Frustrated with dial-up? Get high-speed for as low as $29.95/month

(depending on the local service providers in your area).

https://broadband.msn.com

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Holly,

I have been in your shoes! Our pediatrician thought Elyse should have the

shot, and our CF doctor said she did not need it. The CF doctor based it on

her overall health. Elyse has not had any serious illnesses, so the doctor

felt it was not necessary. In the end, Elyse did not have the syangis shot.

I think, as a mom, since your daughter has had sinus infections and

pneumonia it may be a good idea to talk to your doctor again. I would ask

why the doctor feels it is not necessary. Good luck!

Colleen

Mom to Elyse, 2 1/2 w/ cf

rsv questions

My pediatrician thinks that my 17 month old daughter with cf should have

the

synagis shot to prevent rsv. Her cf doc says that she doesn't need it and

she didn't have it last year either. Should every young child with cf have

it? Do only some get it because it is expensive and not everyone can

afford

it? I am wondering what to do. She has had such bad luck with sinus

infections, many bouts of pneumonia, lots of colds and sleep apnea. She is

always sick and I don't want to take any chances with her getting rsv.

Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years (no CF)

_________________________________________________________________

Frustrated with dial-up? Get high-speed for as low as $29.95/month

(depending on the local service providers in your area).

https://broadband.msn.com

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Share on other sites

Abby is 22 months and has not been sick. Her CF doctor said that it

was up to her parents. There are seven (I think) pulmonologists at

this CF Care Center and they only recommend the shots to the children

under two. Since Abby is close to two and healthy they didn't think

that it was necessary.

The shot does not prevent you from catching RSV. IT is supposed to

reduce the severity of the RSV if you do get it.

Good luck in your decision. What ever you decide will be right.

Gale

> My pediatrician thinks that my 17 month old daughter with cf should

have the

> synagis shot to prevent rsv. Her cf doc says that she doesn't need

it and

> she didn't have it last year either. Should every young child with

cf have

> it? Do only some get it because it is expensive and not everyone

can afford

> it? I am wondering what to do. She has had such bad luck with sinus

> infections, many bouts of pneumonia, lots of colds and sleep apnea.

She is

> always sick and I don't want to take any chances with her getting

rsv.

>

> Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

(no CF)

>

> _________________________________________________________________

> Frustrated with dial-up? Get high-speed for as low as $29.95/month

> (depending on the local service providers in your area).

> https://broadband.msn.com

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Share on other sites

I guess that I should have also told you that last year, Abby sot the

shots. That year she had been sick.

Your insurance will play a big role in your decission. The shots are

$3,000 each and there are 7 of them (total of $21,000). I am hoping

that this does not effect the CF doctor's recommendation. Abby's

doctor said that he is not sure what he would do about the shots, if

it were his daughter. He left the decission up to her parents.

Gale

> > My pediatrician thinks that my 17 month old daughter with cf

should

> have the

> > synagis shot to prevent rsv. Her cf doc says that she doesn't

need

> it and

> > she didn't have it last year either. Should every young child

with

> cf have

> > it? Do only some get it because it is expensive and not everyone

> can afford

> > it? I am wondering what to do. She has had such bad luck with

sinus

> > infections, many bouts of pneumonia, lots of colds and sleep

apnea.

> She is

> > always sick and I don't want to take any chances with her getting

> rsv.

> >

> > Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

> (no CF)

> >

> > _________________________________________________________________

> > Frustrated with dial-up? Get high-speed for as low as

$29.95/month

> > (depending on the local service providers in your area).

> > https://broadband.msn.com

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I think that you may have that info wrong. The shots are expensive, but the

drug company sends a vial of the Synagis to the docs office for each child that

is getting the shot, that vial lasts through the RSV season. The vial is

anywhere between $2500-$3000.

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

danieleverettharris wrote:

I guess that I should have also told you that last year, Abby sot the

shots. That year she had been sick.

Your insurance will play a big role in your decission. The shots are

$3,000 each and there are 7 of them (total of $21,000). I am hoping

that this does not effect the CF doctor's recommendation. Abby's

doctor said that he is not sure what he would do about the shots, if

it were his daughter. He left the decission up to her parents.

Gale

> > My pediatrician thinks that my 17 month old daughter with cf

should

> have the

> > synagis shot to prevent rsv. Her cf doc says that she doesn't

need

> it and

> > she didn't have it last year either. Should every young child

with

> cf have

> > it? Do only some get it because it is expensive and not everyone

> can afford

> > it? I am wondering what to do. She has had such bad luck with

sinus

> > infections, many bouts of pneumonia, lots of colds and sleep

apnea.

> She is

> > always sick and I don't want to take any chances with her getting

> rsv.

> >

> > Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

> (no CF)

> >

> > _________________________________________________________________

> > Frustrated with dial-up? Get high-speed for as low as

$29.95/month

> > (depending on the local service providers in your area).

> > https://broadband.msn.com

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Really? It was the infusion department that told us this price. When

they told us that it was $21,000 for the 7 shots, Toni literally got

sick. The infusion clinic called Toni's insurance company for her

prior to giving Abby the first shot to see if they would cover it.

I'll ask Toni what the hospital actually charged.

Gale

> > > My pediatrician thinks that my 17 month old daughter with cf

> should

> > have the

> > > synagis shot to prevent rsv. Her cf doc says that she doesn't

> need

> > it and

> > > she didn't have it last year either. Should every young child

> with

> > cf have

> > > it? Do only some get it because it is expensive and not

everyone

> > can afford

> > > it? I am wondering what to do. She has had such bad luck with

> sinus

> > > infections, many bouts of pneumonia, lots of colds and sleep

> apnea.

> > She is

> > > always sick and I don't want to take any chances with her

getting

> > rsv.

> > >

> > > Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5

years

> > (no CF)

> > >

> > >

_________________________________________________________________

> > > Frustrated with dial-up? Get high-speed for as low as

> $29.95/month

> > > (depending on the local service providers in your area).

> > > https://broadband.msn.com

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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We got a letter from our insurance company shortly after her first shot, that

explained the cost, how it was administered, etc... Basically making sure that

we understood that it came in a vial and that the cost of the vial was like

$2500.00 and that they would only cover one vial a year. One vial is supposed

to last through the RSV season which is October through April (I think). Of

course they may do things differently where you live.

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

danieleverettharris wrote:

Really? It was the infusion department that told us this price. When

they told us that it was $21,000 for the 7 shots, Toni literally got

sick. The infusion clinic called Toni's insurance company for her

prior to giving Abby the first shot to see if they would cover it.

I'll ask Toni what the hospital actually charged.

Gale

> > > My pediatrician thinks that my 17 month old daughter with cf

> should

> > have the

> > > synagis shot to prevent rsv. Her cf doc says that she doesn't

> need

> > it and

> > > she didn't have it last year either. Should every young child

> with

> > cf have

> > > it? Do only some get it because it is expensive and not

everyone

> > can afford

> > > it? I am wondering what to do. She has had such bad luck with

> sinus

> > > infections, many bouts of pneumonia, lots of colds and sleep

> apnea.

> > She is

> > > always sick and I don't want to take any chances with her

getting

> > rsv.

> > >

> > > Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5

years

> > (no CF)

> > >

> > >

_________________________________________________________________

> > > Frustrated with dial-up? Get high-speed for as low as

> $29.95/month

> > > (depending on the local service providers in your area).

> > > https://broadband.msn.com

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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JC got the shots his first two winters even though he had not been

sick. It was actually our health insurance company (an HMO) that

recommended and provided the shots. I think they figured that was

cheap if it prevented a hospitalization. By the way, I think the

shots are closer the $1000. each, at least that's what we were told

last time he had them.

Our CF doctors were kind of suprised the HMO recommended them, since

JC was not sick, but they were all for him getting them.

Angie (mom to JC, 3 yo stringbean)

> My pediatrician thinks that my 17 month old daughter with cf should

have the

> synagis shot to prevent rsv. Her cf doc says that she doesn't need

it and

> she didn't have it last year either. Should every young child with

cf have

> it? Do only some get it because it is expensive and not everyone

can afford

> it? I am wondering what to do. She has had such bad luck with sinus

> infections, many bouts of pneumonia, lots of colds and sleep apnea.

She is

> always sick and I don't want to take any chances with her getting

rsv.

>

> Thanks, Holly mom to Kennedy 17 months w/ cf and Cheyenne 5 years

(no CF)

>

> _________________________________________________________________

> Frustrated with dial-up? Get high-speed for as low as $29.95/month

> (depending on the local service providers in your area).

> https://broadband.msn.com

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