Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 OK here goes, I have never vented so I hope it's ok with everyone. Both of my daughters with CF Kaylee 6 and Kenedy 4 were admitted to the hospital on the 12th of September well Kenedy had pnemonia and grew pseudomonus, Kaylee who has " severe " CF was really crackly and her PFT's were 59 she grew pseudomonus and staff. After a week(Sept 19) neither were any better, but they sent us home on home meds for another week(one has a port other had a picc line) I have done this before but I thought we should stay there because they were both still so sick. Well come to find out medicaid only pays one amount no matter how many days we are in there and the docs were catching heck because they needed the rooms, THEY WERE LOOSING MONEY ON US!!!! I was furious and still am. Kenedy now has a sore throat so bad she can't even swallow and Kaylee ran a temperature of 103 last night. Of course I guess we could go back, maybe they would get paid more since it will be a new admission, but auugh it is so aggrevaiting. Now one of the people who work close with Kaylee made the comment that she is " just holding her own " Hello, what's that suppose to mean? They don't tell me much they just like to leave me hanging, and believe me I DO ask questions. Well anyway, I feel a litttle better, thanks for listening. Sandy Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6 yo w/CF - Kaylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Sandy, Oh, please, vent all you want, you have to. It is hard enough to deal with cf, but to also deal with all this freaking, messed up system, it is totally unacceptable!! I will keep you in my very special thoughts, mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > OK here goes, I have never vented so I hope it's ok with everyone. Both of > my daughters with CF Kaylee 6 and Kenedy 4 were admitted to the hospital on the > 12th of September well Kenedy had pnemonia and grew pseudomonus, Kaylee who > has " severe " CF was really crackly and her PFT's were 59 she grew pseudomonus > and staff. After a week(Sept 19) neither were any better, but they sent us > home on home meds for another week(one has a port other had a picc line) I have > done this before but I thought we should stay there because they were both > still so sick. Well come to find out medicaid only pays one amount no matter how > many days we are in there and the docs were catching heck because they needed > the rooms, THEY WERE LOOSING MONEY ON US!!!! I was furious and still am. > Kenedy now has a sore throat so bad she can't even swallow and Kaylee ran a > temperature of 103 last night. Of course I guess we could go back, maybe they > would get paid more since it will be a new admission, but auugh it is so > aggrevaiting. Now one of the people who work close with Kaylee made the comment > that she is " just holding her own " Hello, what's that suppose to mean? They > don't tell me much they just like to leave me hanging, and believe me I DO ask > questions. Well anyway, I feel a litttle better, thanks for listening. > Sandy > Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6 yo > w/CF - Kaylee > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Bless your heart. I am so very sorry they are not anymore informed at the Medicaid office . that is purely STUPID. penny wise & pound foolish too. Maybe someone should in service the Medicaid honchos at the capitol so they can really save themselves money by doing it right the first time so they (patients) aren't back in as often. Gosh..................That is just so scary . I do send all my special wishes over you all . I know your going thru such turmoil worrying about your wee ones. I hope they are doing somewhat better now. WRITE HERE ANYTIME> THIS IS A SUPPORT GROUP FOR EACH OTHER. We all understand...... & care LOVE & HUGS< grandmomBEV venting OK here goes, I have never vented so I hope it's ok with everyone. Both of my daughters with CF Kaylee 6 and Kenedy 4 were admitted to the hospital on the 12th of September well Kenedy had pnemonia and grew pseudomonus, Kaylee who has " severe " CF was really crackly and her PFT's were 59 she grew pseudomonus and staff. After a week(Sept 19) neither were any better, but they sent us home on home meds for another week(one has a port other had a picc line) I have done this before but I thought we should stay there because they were both still so sick. Well come to find out medicaid only pays one amount no matter how many days we are in there and the docs were catching heck because they needed the rooms, THEY WERE LOOSING MONEY ON US!!!! I was furious and still am. Kenedy now has a sore throat so bad she can't even swallow and Kaylee ran a temperature of 103 last night. Of course I guess we could go back, maybe they would get paid more since it will be a new admission, but auugh it is so aggrevaiting. Now one of the people who work close with Kaylee made the comment that she is " just holding her own " Hello, what's that suppose to mean? They don't tell me much they just like to leave me hanging, and believe me I DO ask questions. Well anyway, I feel a litttle better, thanks for listening. Sandy Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6 yo w/CF - Kaylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Ummmmmm...I'd be HOT!!! I wouldn't let them ship me home if my kids were still feeling really terrible whether they were losing money or not. Personally, I think I'd give some hospital person a piece of my mind.... Dawn mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Dear Kaylee, I am so sorry you have to go through this. I wish those people who wont pay could be in our shoes for just one 24 hour period of taking care of our sick children, not to mention 2 little ones. My heart is sad for you and I just want to kick our health people for not understanding. judy mom to 20 in 17 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 sorry Sandy, I read the bottom part wrong. I feel for your children also. judy ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 I couldn't even reply to your message at first. It is so awful that our system did this to you and to your children. It's too awful to imagine. I am really sorry for the uneccessary added stress that you have been put under. Do you go to a Children's Hospital? We were told that the Children's Hospital here in Columbus will not treat any patient differently (insurance or no insurance). I wonder if it's really true. I wish you and your girls well and hope that you get some help. It would be nice if the home nurse could stay in your house day and night. Gale > > OK here goes, I have never vented so I hope it's ok with everyone. Both of > my daughters with CF Kaylee 6 and Kenedy 4 were admitted to the hospital on the > 12th of September well Kenedy had pnemonia and grew pseudomonus, Kaylee who > has " severe " CF was really crackly and her PFT's were 59 she grew pseudomonus > and staff. After a week(Sept 19) neither were any better, but they sent us > home on home meds for another week(one has a port other had a picc line) I have > done this before but I thought we should stay there because they were both > still so sick. Well come to find out medicaid only pays one amount no matter how > many days we are in there and the docs were catching heck because they needed > the rooms, THEY WERE LOOSING MONEY ON US!!!! I was furious and still am. > Kenedy now has a sore throat so bad she can't even swallow and Kaylee ran a > temperature of 103 last night. Of course I guess we could go back, maybe they > would get paid more since it will be a new admission, but auugh it is so > aggrevaiting. Now one of the people who work close with Kaylee made the comment > that she is " just holding her own " Hello, what's that suppose to mean? They > don't tell me much they just like to leave me hanging, and believe me I DO ask > questions. Well anyway, I feel a litttle better, thanks for listening. > Sandy > Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6 yo > w/CF - Kaylee > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 In a message dated 9/25/2003 9:57:13 AM Central Daylight Time, blueyejud@... writes: Dear Kaylee, I am so sorry you have to go through this. I wish those people who wont pay could be in our shoes for just one 24 hour period of taking care of our sick children, not to mention 2 little ones. My heart is sad for you and I just want to kick our health people for not understanding. judy mom to 20 in 17 days Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 It is so true that those who do not stand in the shoes of the handicapped or chronicly ill, nor in those of their parents. have no idea of the financial burden born by so many for so many. I do wish I were younger and could do more about this; I just send letters to my sentators and congre ssmanm, who by now must wonder just how many groups I do represent! Actually it is only cf! Thanks to those who do take action, such as Lenora Degan on behalf of CF Awareness Week in the usa! Love to all at cf parents--venting also! n Rojas Quote Link to comment Share on other sites More sharing options...
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