Fw: UPDATE on Jordan

[Guest guest]

Well we got home so late last night that I crashed pretty much upon walking into

the house. I had class all day today and then had to help my mom get her x-rays

and stuff for her Dr's appt tomorrow. Im just walking in from this morning.

ARGH Anyways....

Jordan had another sweat test done yesterday. His results were not as high as

they were on the first test but high enough to have the DR's concerned. It was

a 58 this time around. 60 is + and under 40 is - They did chest x-rays and a

throat culture. They also took some blood to do a DNA test of some kind.

We have to go back in 3 weeks and have another sweat test done as well as stool

testing and some other testing that he didnt get into. They gave Jordan 5

different meds to take. 2 inhalers, a nose spray, zantac, and a latate

medicine. He is also to continue his zyrtex and singular.

The dr's told me that they didnt want to give me a diagnosis just yet but that

they were leaning towards Jordan having CF but possibly only a mild case of it.

This simply means that he will not be sick or have a rough life unless I fail to

keep up the daily medicine and a few other simple daily tasks. They will

probally give Jordan some type of enzymes the next time we go up.

They also said that they want to do a CT on his sinus cavity and possible remove

his adnoids(spelling) in the near future. I am going to try to go to the clinic

myself tomorrow. All this stress is really starting to take it's toll on me.

Im getting really sick and throwing up and my muscles hurt in every place on my

body. I have had a tension headache since Monday afternoon and it will not go

away. Im getting really run down and I can't let that happen because I have to

take care of Jordan.

Thanks for everyone that has done so much for me and Jordan and that could even

include sending us an email. They really keep my spirits up and keep me going.

Thank you all.

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Dear Rhonda,

I am so very sorry you will have a positive Dx for Jordan. We all know that

feeling. I do know that it will be better for you all once your getting into

the routine they are setting up for you all. It will be come very routine

for you But it will always be something a mommy worries over. BUT, you would

be always concerned no matter what it was for your precious wee one. :)

Good mommies are that way .....that's what you are a good mommy.

Now all the doc is doing , saying , etc . sounds like a very kind person &

he isn't keeping his head in the sand & IS checking every way he

can. ---THAT IS SUPER........ So much happens daily in the care , etc. Mush

is being done & you & your family will work thru all this.

Have I sent you any literature-tapes Or maybe the clinic has. I send much to

many & cant remember how got what , soo, let me know :)

Best wishes for all your family from one of your CYBER family ,

LOVE & HUGS,

GrandmoMBEV

Fw: UPDATE on Jordan

Well we got home so late last night that I crashed pretty much upon walking

into the house. I had class all day today and then had to help my mom get

her x-rays and stuff for her Dr's appt tomorrow. Im just walking in from

this morning. ARGH Anyways....

Jordan had another sweat test done yesterday. His results were not as high

as they were on the first test but high enough to have the DR's concerned.

It was a 58 this time around. 60 is + and under 40 is - They did chest

x-rays and a throat culture. They also took some blood to do a DNA test of

some kind.

We have to go back in 3 weeks and have another sweat test done as well as

stool testing and some other testing that he didnt get into. They gave

Jordan 5 different meds to take. 2 inhalers, a nose spray, zantac, and a

latate medicine. He is also to continue his zyrtex and singular.

The dr's told me that they didnt want to give me a diagnosis just yet but

that they were leaning towards Jordan having CF but possibly only a mild

case of it. This simply means that he will not be sick or have a rough life

unless I fail to keep up the daily medicine and a few other simple daily

tasks. They will probally give Jordan some type of enzymes the next time we

go up.

They also said that they want to do a CT on his sinus cavity and possible

remove his adnoids(spelling) in the near future. I am going to try to go to

the clinic myself tomorrow. All this stress is really starting to take it's

toll on me. Im getting really sick and throwing up and my muscles hurt in

every place on my body. I have had a tension headache since Monday

afternoon and it will not go away. Im getting really run down and I can't

let that happen because I have to take care of Jordan.

Thanks for everyone that has done so much for me and Jordan and that could

even include sending us an email. They really keep my spirits up and keep

me going. Thank you all.

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Gal, you have to take care of yourself too. Maybe you should schedule an

appointment with the chiropractor. They always help me when I'm feeling the way

you describe.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

well we have only got insurance for the baby. We dont have any for me and DH.

I need to get something done though because I am about to die. EVERY part of my

body is hurting really badly. I am getting major headaches and throwing up as

well. I know that it is all just from the stress of Jordan, my mom, my grandma,

and college along with all the every day things. I am so sick though. I was

going to go to an outreach clinic here in town but they told me that they

charged 85.00 + any meds they give you. I dont have that much ;( So i will

just have to deal with this. Anyone have any cheap stress relievers?

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Bev,

You did send me some information on CF but I havent had the chance to open it up

yet. I have been so busy with taking my mom back and forth to the dr's as well

as going to college. I have a test almost everyday next week *sighs* I am

having a really hard time concentrating on things right now so I am hoping I do

well on the tests.

Thank you for all your support. It is a bit overwhelming with all the meds that

jordan is now taking. It's going to take a bit to get used to it for him and

me. thanks to all of you that are there to help us get through this. I couldnt

do it without you all.

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Dear Rhonda,

Please know we are always here. You try anytime you can to rest. I know that

sounds like the IMPOSSIBLE DREAM.......But , if you fall

down..........you'll be out of it whether you like it or not,-----So Please

take care of you too. I hold you & all your projects, including " living' in

my special thoughts

LOVE & HUGS, grandmoMBEV

Message-----

From: Rhonda

Sent: Saturday, September 27, 2003 5:42 PM

To: cfparents

Subject: Re: Fw: UPDATE on Jordan

Bev,

You did send me some information on CF but I havent had the chance to open

it up yet. I have been so busy with taking my mom back and forth to the

dr's as well as going to college. I have a test almost everyday next week

*sighs* I am having a really hard time concentrating on things right now so

I am hoping I do well on the tests.

Thank you for all your support. It is a bit overwhelming with all the meds

that jordan is now taking. It's going to take a bit to get used to it for

him and me. thanks to all of you that are there to help us get through

this. I couldnt do it without you all.

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Rhonda,

Have you tried Axtra Strength Excederin? It works really well.

Gale

> well we have only got insurance for the baby. We dont have any for

me and DH. I need to get something done though because I am about to

die. EVERY part of my body is hurting really badly. I am getting

major headaches and throwing up as well. I know that it is all just

from the stress of Jordan, my mom, my grandma, and college along with

all the every day things. I am so sick though. I was going to go to

an outreach clinic here in town but they told me that they charged

85.00 + any meds they give you. I dont have that much ;( So i will

just have to deal with this. Anyone have any cheap stress relievers?

> Rhonda

> Check out my new online business!! They are AWESOME!

> ***Photo Magnets*** http://www.heavenstreasurechest.com

>

>

>

[Guest guest]

Ok guys, please don't laugh at me...my stress reliever/stomach soother is so

dumb. I don't know why it works. I do know it isn't just me as it has worked

for my kids and several friends I was brave enough to share it with.

Get a jar of mentholatum...open it...inhale the vapors until you don't feel sick

anymore...

I use it for sick or nervous stomach. I can't take tums/peptobismal or anything

like that as I seem to be allergic to them and throw up anyway.

If you are throwing up a lot you could be having headaches from dehydration.

Drink gatoraid or eat pedialyte popscicles and keep smelling the menthalatum to

hold it all down.....

Ok, now you can all laugh.

Dawn mom of 4, 7 and under, the youngest wcf

[Guest guest]

I don't find that funny at all Thanks for the tip. Ill sure try anything

once or twice maybe. I have felt bad all weekend and slept most of it.

Tomorrow starts another long hard week. *sighs* got school all day tomorrow and

a test.. test on wednesday and test on thursday. Jordan is not doing well with

his eating and im starting to get really worried. He ALWAYS ate so well and now

nothing! I want to just crawl into a hole and hide!

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

RHONDA,

I am so sorry your having such a rough time right now. Just think what

the end of this week will be like. TEST WILL BE OVER .......then you'll

have a wee bit of time before the next ones. Soooooooo,, Jordan will begin

doing his thing. Kids do go thru this " eating bug " stuff. That is what we

called it . only wanted rice......YUCK. (alone that is) So, we just kept

on her . It wasn't until she was about 11. I asked her one morning at

breakfast ........ don't you ever want any boobs, ?? She said really

disgusted .OH, GRANDMOM!!! " . All laughed & then she did too them , & said

she would eat some cereal. Her sisters and a few cousins were there too .We

were there visiting (N.C) & I always was the one up with the kids early &

doing breakfast with them...ERIN is a class clown, so she ate it up & let

all know eat spoon full . She loves to be the center of attention (still

does at 19+ ):) hehe.. She never has forgotten that . asked me for

's Secret stuff last year -----said Grandmom, The cereal worked & I

need some new bras:):)Soooooo, the point of my story ,

is :----THIS TOO, WILL PASS. your doing great & have heard from some super

ideas.

Go Girl ! ! ! Jordan will be great

LOVE & HUGS,

grandmoMBEV

Re: Fw: UPDATE on Jordan

I don't find that funny at all Thanks for the tip. Ill sure try

anything once or twice maybe. I have felt bad all weekend and slept most

of it. Tomorrow starts another long hard week. *sighs* got school all day

tomorrow and a test.. test on wednesday and test on thursday. Jordan is not

doing well with his eating and im starting to get really worried. He ALWAYS

ate so well and now nothing! I want to just crawl into a hole and hide!

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

I swear by pepermint tea and ginger capsules. or ginger ale and pepermint

capsules! Both ginger and pepermint are natural stomach soothers.

Re: Fw: UPDATE on Jordan

I don't find that funny at all Thanks for the tip. Ill sure try anything

once or twice maybe. I have felt bad all weekend and slept most of it.

Tomorrow starts another long hard week. *sighs* got school all day tomorrow and

a test.. test on wednesday and test on thursday. Jordan is not doing well with

his eating and im starting to get really worried. He ALWAYS ate so well and now

nothing! I want to just crawl into a hole and hide!

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

Well we are home. We went to Columbus yesterday and it is really wearing us all

out.

His sweat test came back at 57 this time. Still really high. His thoart

culture came back + for Staph but they said that it could have been cause by

other things. The blood work they did they check for 80 strands of CF but it

all came back -. They took more blood to do the 500 strand testing for CF.

They still would not give me a yes he has CF or no he doesnt have CF. They said

they could not do that until he had 2 scores of below 40(-) or 2 scores above

60(+) I am confused as to what the DR said. He said that with age Jordan's

test results could go up or they could go down. anyone??

We have to go back again on Nov 4 again for another sweat test and to find out

the results of his stool sample.

They told us to not give him the pedisure because it was causing the

dirrehea(like Meliss said) and that he didnt' need it right now. They told me

to just get a chewable vitamin and give it to him.

Well anyways that is all of it up to this point. I think. I am so brain dead

right now it's not funny. *sighs* I need some SLEEP!

Rhonda

Check out my new online business!! They are AWESOME!

***Photo Magnets*** http://www.heavenstreasurechest.com

[Guest guest]

I am so sorry that you have to go through all of this unknown stuff. I hope

that soon you'll have someone who will be able to get you answers.

Did your husband get home? If not I hope he gets home soon.

You and your family are in my prayers.

judy (mom to who is 20 now)

[Guest guest]

Rhonda,

I really think that you are going to a great cf center. I know that

the trip is a long one, but I am glad that you are coming to

Columbus. I was out of town last week, but I think that I will be in

town on Nov. 4th. Please let me know how I can help.

Gale

> Well we are home. We went to Columbus yesterday and it is really

wearing us all out.

>

> His sweat test came back at 57 this time. Still really high. His

thoart culture came back + for Staph but they said that it could have

been cause by other things. The blood work they did they check for

80 strands of CF but it all came back -. They took more blood to do

the 500 strand testing for CF. They still would not give me a yes he

has CF or no he doesnt have CF. They said they could not do that

until he had 2 scores of below 40(-) or 2 scores above 60(+) I am

confused as to what the DR said. He said that with age Jordan's test

results could go up or they could go down. anyone??

>

> We have to go back again on Nov 4 again for another sweat test and

to find out the results of his stool sample.

>

> They told us to not give him the pedisure because it was causing

the dirrehea(like Meliss said) and that he didnt' need it right now.

They told me to just get a chewable vitamin and give it to him.

>

> Well anyways that is all of it up to this point. I think. I am so

brain dead right now it's not funny. *sighs* I need some SLEEP!

> Rhonda

> Check out my new online business!! They are AWESOME!

> ***Photo Magnets*** http://www.heavenstreasurechest.com

>

>

>