Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Hope you are not sick of this stuff yet. I keep most of the awareness news to the email list I have for the Committee (over 100 members strong now!) but I wanted to give you a quick update. Senate is going to pass the resolution any day now...we hope! I'll send a press release for anyone to use as soon as it is official. I am having 5000 brochures printed, so PLEASE get on the list to get some. They are about the NCFAC. Below is info on receiving them. Also, if you are ordering awareness stuff, please think ahead so I have time to pack and ship. The awareness site could use some traffic on the new message board. We lost the whole old board in a server switch, so PLEASE visit the new one and write! APRIL HARRIS!!! Please be better!!! Professional-looking brochures about the NCFAC are going to be available shortly. You can get up to 50 brochures free* to share as you like (I am asking that you cover postage). PLEASE do not order any unless you are committed to distributing or sharing all that you order! To get brochures, you MUST do this: Send $2.44 for 50 brochures or $1.52 for 25 to: NCFAC 1612 N. Foote Ave. Colorado Springs, CO 80909 Include your name and address and how many brochures you would like. OR: If you prefer, you can send a self-addressed 8.5 x 11 envelope with the necessary postage on it. In order to get these brochures to you in time for awareness week (October 12-18) PLEASE send your order soon. If you need more than 50 brochures, please email me and let me know. This way, I can order more if needed. Here are a few awareness activity ideas. PLEASE SHARE YOURS! Each class in a public school is buying a window cling for their classroom window to show their " awareness " . This is a good way to get started. They are only a dollar! You may find it easy to go with " selling " the ribbons with the silk roses. A group can make these or you can get them from the awareness site (or me). We have had some help making these this year, so we could probably scrape up enough for you. Another idea is the Hershey rose kisses or rather Kiss roses. There are directions on the site under resources, but if you cannot get enough info or you want to see one I'll send one. This might be something the kids can help make and then get donations for. A jump rope event is easy in terms of not alot of equipment, but arranging an event can be a bit overwhelming. A skating rink or bowling alley or other recreational facility may agree to help, donating a % of profits during a day or weekend. Kids activity booklets will be available soon. Again, I am trying to make these free*. Use them to give a little talk about lung health, cf, and general differences in people. Let me know how many you might like. They are good for scout groups, classrooms, etc. (ages 5 - 10) I will also send as any copies of the Mommy's Little Helper book you want. It is aimed at kids whose parent has CF, but it has full color photos and is fairly informative about CF. I designed it, so if course it's lovely. And I have plenty to give away free. I will issue a press release as soon as the resolution passes, and you can send to your local news, tv, etc. It is a good time to write to papers and tv stations now telling them that awareness week is coming and would they do a feature on cf? Or at least would they wear a pin (I can send you a few or you can make them. See web page. Go to MERCHANDISE as if you were ordering - but you don't have to - and see photo under ribbons). Find a spot in a hospital, doctor's office, store, mall, office or place of worship to set up brochures or sell rose ribbons. THANKS FOR READING ALL THIS! Lenora *Regarding the free brochures and materials, we have enough money from sales of merchandise to just about cover the printing of the brochures. If anyone is able to help with these costs, or contribute to the printing of the kids' activity books, donations are always welcome:) -- http://www.lenoradegen.com award winning design at small town prices http://www.cfawareness.org ....in memory...in hope...dispelling the darkness... Learn more about Cystic Fibrosis and the special people who cope with it every day Quote Link to comment Share on other sites More sharing options...
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