RE: venting- Sandy

[Guest guest]

Sandy,

You must be so tired doing all that at home. How dare they send the

girls home still unwell. Can you go to a member of parliament for some

help? If it was me I would go back and make them admit them till they

are better. Geez Eilish has spent 23 days in one admission until she got

better. Best of luck to you all.

(Australia)

venting

OK here goes, I have never vented so I hope it's ok with everyone. Both

of

my daughters with CF Kaylee 6 and Kenedy 4 were admitted to the hospital

on the

12th of September well Kenedy had pnemonia and grew pseudomonus, Kaylee

who

has " severe " CF was really crackly and her PFT's were 59 she grew

pseudomonus

and staff. After a week(Sept 19) neither were any better, but they sent

us

home on home meds for another week(one has a port other had a picc line)

I have

done this before but I thought we should stay there because they were

both

still so sick. Well come to find out medicaid only pays one amount no

matter how

many days we are in there and the docs were catching heck because they

needed

the rooms, THEY WERE LOOSING MONEY ON US!!!! I was furious and still

am.

Kenedy now has a sore throat so bad she can't even swallow and Kaylee

ran a

temperature of 103 last night. Of course I guess we could go back,

maybe they

would get paid more since it will be a new admission, but auugh it is so

aggrevaiting. Now one of the people who work close with Kaylee made the

comment

that she is " just holding her own " Hello, what's that suppose to mean?

They

don't tell me much they just like to leave me hanging, and believe me I

DO ask

questions. Well anyway, I feel a litttle better, thanks for listening.

Sandy

Mother of three daughters 4 yo w/CF - Kenedy, 5 yo no CF - and 6

yo

w/CF - Kaylee