Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Hi everyone, Shaelin went to see his pulmonologist yesterday and she wants to hosptilatlize him for 10-12 days of IV antibiotics. I begged her to let me do at least some of that at home and she said she would see how he did the first week and " consider it " if he was doing well. How do those of you with toddlers " contain " them while hospitalized? Last year was hell as he is very friendly and wanted to hug everyone, get into their beds, play with their toys, etc. I initially kept him out of the playroom, but once he knew it was there, it was impossible. I felt like a lunatic by the end as in addition to everything medically he had to put up with, I felt like all I did was yell at him - " don't to in there " , " don't touch that " , " no running " , 'no jumping off the beds " , etc. Couple that sleep deprivation for both of us with having roommates who stay up late and/or need nighttime bloodwork and cry, and it was not a happy sight. I do agree that he needs a " tune-up " but I am very concerned as to how to keep him " safe " while in there. Any suggestions would be welcome. Jeanne (foster Mom to Shaelin, 2 1/2 wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 FIRST off he shouldn't be in a room with ANYONE else (but you) try to get that thru the docs head!!! Many hospitals have that as a policy . Tell them you will sue them if he gets another " staff " infection while there from being put in with another who is already sick...............It might also help the doc send you home to do , so they wont have problems later with you .......It is easier for you in the long run.EVEN if you have home health come to help you daytime.It sure cant hurt to try. Bless you & I hope he is much better soon LOVE & HUGS, grandmomBEV Update on Shaelin Hi everyone, Shaelin went to see his pulmonologist yesterday and she wants to hosptilatlize him for 10-12 days of IV antibiotics. I begged her to let me do at least some of that at home and she said she would see how he did the first week and " consider it " if he was doing well. How do those of you with toddlers " contain " them while hospitalized? Last year was hell as he is very friendly and wanted to hug everyone, get into their beds, play with their toys, etc. I initially kept him out of the playroom, but once he knew it was there, it was impossible. I felt like a lunatic by the end as in addition to everything medically he had to put up with, I felt like all I did was yell at him - " don't to in there " , " don't touch that " , " no running " , 'no jumping off the beds " , etc. Couple that sleep deprivation for both of us with having roommates who stay up late and/or need nighttime bloodwork and cry, and it was not a happy sight. I do agree that he needs a " tune-up " but I am very concerned as to how to keep him " safe " while in there. Any suggestions would be welcome. Jeanne (foster Mom to Shaelin, 2 1/2 wcf) ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 HI Jeanne, I hope Shaelin is feeling better soon. When was a toddler and in the hospital there was a strict rule about NOT going into other people's rooms. This was a major help in keeping out of places that I didn't want her to go. Just tell him " we are no allowed in there " or " Doctors and Nurses Only " I used to tell that we would get into " trouble " if we went into the other kids rooms. We did have room mates for at least a part of every stay except one. The first time in they were so crowded that the playroom was our room for a while! Our room mates were always kids who were not sick with a bacteria or viral type of thing it was almost always kids with sickle cell anemia. The one time we had a little boy as a room mate who was sweet as pie but his dad was up all night with the TV really loud, watching basket ball or child-UNfriendly shows. Plus, he would curse at the TV. That was a nightmare but I did get them to move us out of that room into a private one more quickly because the nurses could see what a jerk he was. It is never fun to be in the hospital. I hope they let you do home IV's. If not I hope they let you and Shaelin out soon! Mom of , 5 in 2 weeks with CF Update on Shaelin Hi everyone, Shaelin went to see his pulmonologist yesterday and she wants to hosptilatlize him for 10-12 days of IV antibiotics. I begged her to let me do at least some of that at home and she said she would see how he did the first week and " consider it " if he was doing well. How do those of you with toddlers " contain " them while hospitalized? Last year was hell as he is very friendly and wanted to hug everyone, get into their beds, play with their toys, etc. I initially kept him out of the playroom, but once he knew it was there, it was impossible. I felt like a lunatic by the end as in addition to everything medically he had to put up with, I felt like all I did was yell at him - " don't to in there " , " don't touch that " , " no running " , 'no jumping off the beds " , etc. Couple that sleep deprivation for both of us with having roommates who stay up late and/or need nighttime bloodwork and cry, and it was not a happy sight. I do agree that he needs a " tune-up " but I am very concerned as to how to keep him " safe " while in there. Any suggestions would be welcome. Jeanne (foster Mom to Shaelin, 2 1/2 wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 I haven't been posting lately due to computer problems. When Savannah is in the hospital she never has a room mate. We have a Rubbermaid storage box w/ toys and activities that she normally doesn't get to play with. Also see if you are allowed to bring toys out of the play room to your room. Clean them before you let Shaelin play w/ them though. Also talk to the child life specialist. Due to Savannah having MRSA we are kept to the room most of the time. I always insisted that all lab draws and IV sticks and any invasive things done in the treatment room. This way Savannah felt safe in the room. As for sleep always remember you can post a note on the door requesting not to be disturbed unless it is absolutely necessary. Since I'm able to take Savannah's meds w/ me, I can give her what she needs before nap or when she wakes up. I know the RT's may not be available when it's nap time so I let them know what the game plan is. The best of luck at keeping Shaelin occupied. Take Care- Mom to 2 w/o CF and Savannah w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Request a private room, make EVERYONE wash hands and not touch BED RAILS!!!!!! Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 Jeanne, Wish I could say it's not bad but it is. Eilish has had a lot of admission over the years for 14 + days. The worst bit is them being isolated and not being able to play. We can take her out of the hsp. in between treatment and take her into the city and to feed the ducks. We have a toy lady on each ward who will bring them in games etc. but the attention span is short. If Shaelin likes TV then your laughing, Eilish only watched Rug Rats. We used to take in alot of play dough, colouring stuff. But it is hard to keep them occupied. Very best of luck. (Australia) Update on Shaelin Hi everyone, Shaelin went to see his pulmonologist yesterday and she wants to hosptilatlize him for 10-12 days of IV antibiotics. I begged her to let me do at least some of that at home and she said she would see how he did the first week and " consider it " if he was doing well. How do those of you with toddlers " contain " them while hospitalized? Last year was hell as he is very friendly and wanted to hug everyone, get into their beds, play with their toys, etc. I initially kept him out of the playroom, but once he knew it was there, it was impossible. I felt like a lunatic by the end as in addition to everything medically he had to put up with, I felt like all I did was yell at him - " don't to in there " , " don't touch that " , " no running " , 'no jumping off the beds " , etc. Couple that sleep deprivation for both of us with having roommates who stay up late and/or need nighttime bloodwork and cry, and it was not a happy sight. I do agree that he needs a " tune-up " but I am very concerned as to how to keep him " safe " while in there. Any suggestions would be welcome. Jeanne (foster Mom to Shaelin, 2 1/2 wcf) Quote Link to comment Share on other sites More sharing options...
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