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Update on Shaelin

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Hi everyone,

Shaelin went to see his pulmonologist yesterday and she wants to

hosptilatlize him for 10-12 days of IV antibiotics. I begged her to

let me do at least some of that at home and she said she would see

how he did the first week and " consider it " if he was doing well.

How do those of you with toddlers " contain " them while hospitalized?

Last year was hell as he is very friendly and wanted to hug everyone,

get into their beds, play with their toys, etc. I initially kept him

out of the playroom, but once he knew it was there, it was

impossible. I felt like a lunatic by the end as in addition to

everything medically he had to put up with, I felt like all I did was

yell at him - " don't to in there " , " don't touch that " , " no

running " , 'no jumping off the beds " , etc. Couple that sleep

deprivation for both of us with having roommates who stay up late

and/or need nighttime bloodwork and cry, and it was not a happy

sight.

I do agree that he needs a " tune-up " but I am very concerned as to

how to keep him " safe " while in there. Any suggestions would be

welcome.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

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FIRST off he shouldn't be in a room with ANYONE else (but you) try to get

that thru the docs head!!! Many hospitals have that as a policy . Tell them

you will sue them if he gets another " staff " infection while there from

being put in with another who is already sick...............It might also

help the doc send you home to do , so they wont have problems later with you

.......It is easier for you in the long run.EVEN if you have home health come

to help you daytime.It sure cant hurt to try.

Bless you & I hope he is much better soon

LOVE & HUGS, grandmomBEV

Update on Shaelin

Hi everyone,

Shaelin went to see his pulmonologist yesterday and she wants to

hosptilatlize him for 10-12 days of IV antibiotics. I begged her to

let me do at least some of that at home and she said she would see

how he did the first week and " consider it " if he was doing well.

How do those of you with toddlers " contain " them while hospitalized?

Last year was hell as he is very friendly and wanted to hug everyone,

get into their beds, play with their toys, etc. I initially kept him

out of the playroom, but once he knew it was there, it was

impossible. I felt like a lunatic by the end as in addition to

everything medically he had to put up with, I felt like all I did was

yell at him - " don't to in there " , " don't touch that " , " no

running " , 'no jumping off the beds " , etc. Couple that sleep

deprivation for both of us with having roommates who stay up late

and/or need nighttime bloodwork and cry, and it was not a happy

sight.

I do agree that he needs a " tune-up " but I am very concerned as to

how to keep him " safe " while in there. Any suggestions would be

welcome.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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HI Jeanne,

I hope Shaelin is feeling better soon. When was a toddler and in the

hospital there was a strict rule about NOT going into other people's rooms.

This was a major help in keeping out of places that I didn't want her to

go. Just tell him " we are no allowed in there " or " Doctors and Nurses Only "

I used to tell that we would get into " trouble " if we went into the other

kids rooms.

We did have room mates for at least a part of every stay except one. The first

time in they were so crowded that the playroom was our room for a while! Our

room mates were always kids who were not sick with a bacteria or viral type of

thing it was almost always kids with sickle cell anemia. The one time we had a

little boy as a room mate who was sweet as pie but his dad was up all night with

the TV really loud, watching basket ball or child-UNfriendly shows. Plus, he

would curse at the TV. That was a nightmare but I did get them to move us out

of that room into a private one more quickly because the nurses could see what a

jerk he was.

It is never fun to be in the hospital. I hope they let you do home IV's. If

not I hope they let you and Shaelin out soon!

Mom of , 5 in 2 weeks with CF

Update on Shaelin

Hi everyone,

Shaelin went to see his pulmonologist yesterday and she wants to

hosptilatlize him for 10-12 days of IV antibiotics. I begged her to

let me do at least some of that at home and she said she would see

how he did the first week and " consider it " if he was doing well.

How do those of you with toddlers " contain " them while hospitalized?

Last year was hell as he is very friendly and wanted to hug everyone,

get into their beds, play with their toys, etc. I initially kept him

out of the playroom, but once he knew it was there, it was

impossible. I felt like a lunatic by the end as in addition to

everything medically he had to put up with, I felt like all I did was

yell at him - " don't to in there " , " don't touch that " , " no

running " , 'no jumping off the beds " , etc. Couple that sleep

deprivation for both of us with having roommates who stay up late

and/or need nighttime bloodwork and cry, and it was not a happy

sight.

I do agree that he needs a " tune-up " but I am very concerned as to

how to keep him " safe " while in there. Any suggestions would be

welcome.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

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I haven't been posting lately due to computer problems.

When Savannah is in the hospital she never has a room mate. We have a

Rubbermaid storage box w/ toys and activities that she normally doesn't get to

play

with. Also see if you are allowed to bring toys out of the play room to your

room. Clean them before you let Shaelin play w/ them though. Also talk to the

child life specialist. Due to Savannah having MRSA we are kept to the room most

of the time.

I always insisted that all lab draws and IV sticks and any invasive things

done in the treatment room. This way Savannah felt safe in the room. As for

sleep always remember you can post a note on the door requesting not to be

disturbed unless it is absolutely necessary. Since I'm able to take Savannah's

meds

w/ me, I can give her what she needs before nap or when she wakes up. I know

the RT's may not be available when it's nap time so I let them know what the

game plan is.

The best of luck at keeping Shaelin occupied.

Take Care-

Mom to 2 w/o CF and Savannah w/CF

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Request a private room, make EVERYONE wash hands and not touch BED

RAILS!!!!!!

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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Jeanne,

Wish I could say it's not bad but it is. Eilish has had a lot of

admission over the years for 14 + days. The worst bit is them being

isolated and not being able to play. We can take her out of the hsp. in

between treatment and take her into the city and to feed the ducks. We

have a toy lady on each ward who will bring them in games etc. but the

attention span is short. If Shaelin likes TV then your laughing, Eilish

only watched Rug Rats. We used to take in alot of play dough, colouring

stuff. But it is hard to keep them occupied. Very best of luck.

(Australia)

Update on Shaelin

Hi everyone,

Shaelin went to see his pulmonologist yesterday and she wants to

hosptilatlize him for 10-12 days of IV antibiotics. I begged her to

let me do at least some of that at home and she said she would see

how he did the first week and " consider it " if he was doing well.

How do those of you with toddlers " contain " them while hospitalized?

Last year was hell as he is very friendly and wanted to hug everyone,

get into their beds, play with their toys, etc. I initially kept him

out of the playroom, but once he knew it was there, it was

impossible. I felt like a lunatic by the end as in addition to

everything medically he had to put up with, I felt like all I did was

yell at him - " don't to in there " , " don't touch that " , " no

running " , 'no jumping off the beds " , etc. Couple that sleep

deprivation for both of us with having roommates who stay up late

and/or need nighttime bloodwork and cry, and it was not a happy

sight.

I do agree that he needs a " tune-up " but I am very concerned as to

how to keep him " safe " while in there. Any suggestions would be

welcome.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

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