Resolution S98...

[Guest guest]

....passed unanimously in the Senate last night.

Here is is below. Please pass on to friends, family, etc.

Thanks them and thank your senators in Washington.

Press Release to follow. Please, at the very least, send the release

to your local papers and ask them to consider an article about CF

during this week. At the very least, they should mention the week in

their papers.

Don't send congrats to me. Instead, post a message on the awareness board!

http://www.cfawareness.org

Love,

Lenora

RESOLUTION

Expressing the sense of the Senate that the President should

designate the week of October 12, 2003, through October 18, 2003, as

`National Cystic Fibrosis Awareness Week'.

Whereas cystic fibrosis , characterized by digestive disorders and

chronic lung infections, is a fatal lung disease;

Whereas cystic fibrosis is one of the most common fatal genetic

diseases in the United States and one for which there is no known

cure;

Whereas more than 10,000,000 Americans are unknowing carriers of the

cystic fibrosis gene;

Whereas 1 out of every 3,500 babies born in the United States is born

with cystic fibrosis ;

Whereas approximately 30,000 people in the United States, many of

whom are children, have cystic fibrosis ;

Whereas the average life expectancy of an individual with cystic

fibrosis is 33 years;

Whereas prompt, aggressive treatment of the symptoms of cystic

fibrosis can extend the lives of those who have this disease;

Whereas recent advances in cystic fibrosis research have produced

promising leads in gene, protein, and drug therapies beneficial to

persons afflicted with the disease;

Whereas this innovative research is progressing faster and is being

conducted more aggressively than ever before, due in part to the

establishment of a model clinical trials network by the Cystic

Fibrosis Foundation; and

Whereas education of the public on cystic fibrosis , including the

symptoms of the disease, increases knowledge and understanding of

cystic fibrosis and promotes early diagnoses: Now, therefore, be it

Resolved,

SECTION 1. NATIONAL CYSTIC FIBROSIS AWARENESS.

(a) SENSE OF THE SENATE- It is the sense of the Senate that the

President should designate the week of October 12, 2003, through

October 18, 2003, as `National Cystic Fibrosis Awareness Week'.

( PROCLAMATION- The Senate requests the President to issue a proclamation--

(1) designating the week of October 12, 2003 through October 18,

2003, as `National Cystic Fibrosis Awareness Week'; and

(2) calling on the people of the United States to observe the week

with appropriate ceremonies and activities.

--

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Learn more about Cystic Fibrosis and the special people who cope with

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