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my four year old grandaughter was recently diagnosed with cystic

fibrosis.

after she was put on meds; bronchial dialators, breathing treatments,

enzymes... we noticed a remarkable improvement in her digestion of

food and energy level. she grew 3/4 " and gained nearly a pound on the

enzymes.

her behavior has been terrible and her pattern of sleep is out the

window.

any advice is greatly appreciated by anyone who has experienced the

same problem

my thanks

kathy

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Kathy,

Is your granddaughter on Albuterol? It is one of the meds my daughter is on and

I swear that it makes her hyper! Also, all the new things that your

granddaughter is encountering can be scary. This is a big adjustment. Just

handle it as you would have before you all knew that she had CF. Bad behavior

is bad behavior if you have CF or not! Also the sleep issues can throw my

daughter off too!

Mom of five in 13 days with CF

behavior problems

my four year old grandaughter was recently diagnosed with cystic

fibrosis.

after she was put on meds; bronchial dialators, breathing treatments,

enzymes... we noticed a remarkable improvement in her digestion of

food and energy level. she grew 3/4 " and gained nearly a pound on the

enzymes.

her behavior has been terrible and her pattern of sleep is out the

window.

any advice is greatly appreciated by anyone who has experienced the

same problem

my thanks

kathy

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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kathy, is the grandbaby on steroids? my son gets way wired and can bearly

sit still long enought to sleep. albuterol also speeds him up but the effects

of it usually wear off in about 45min.-to an hour.

dani

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Kathy,

I don't know if it's related, but my grand daughter is really full of

energy shortly after taking her ADEK vitamins. We now give them to

her earlier in the day.

Gale

> my four year old grandaughter was recently diagnosed with cystic

> fibrosis.

> after she was put on meds; bronchial dialators, breathing

treatments,

> enzymes... we noticed a remarkable improvement in her digestion of

> food and energy level. she grew 3/4 " and gained nearly a pound on

the

> enzymes.

> her behavior has been terrible and her pattern of sleep is out the

> window.

> any advice is greatly appreciated by anyone who has experienced the

> same problem

> my thanks

> kathy

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Thank you for the reply and yes she is on albuteral. Caitlin is actually my

Grandaughter, my son's daughter. He is handling her bad behavior; it is just so

hard because she is out of control and still needs to be diciplined for it. She

has nights where she sleeps for almost 12 hours straight and those that she is

so wired she only sleeps a couple of hours.

Hopefully she will adjust to all the new meds and learn some coping skills down

the line. Right now, she has difficulty even getting along well with other

children due to her behavior.

Thanks Again,

Kathy

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