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In a message dated 9/28/2003 10:41:26 PM Central Daylight Time,

baileyk80@... writes:

Katy

You are going through the regular emotions that I am sure all of us have gone

through. At least I know I did. At first all I wanted to do was cry, then I

was mad and saying why did this have to happen to our kids, then I started

learning more about CF and finding it not that bad as long as we do everything

we

can to keep them health until they find a cure they will be find. And talking

to people like n gives me hope know she has lived a very fulfilled life.

She got married had child and retired and is a Grandma. These are all of the

things I hope my girls will be able to see.

I do know what you mean about your husband because mine went though the same

thing. Not only did he have to deal with having two kids with CF he also found

out a year later that he had Rheumatoid arthritis. He just went into a little

shell. He wouldn't talk, didn't want to do anything and was just a bear to

live with. Finally I said listen either you need to talk to you doctor about

things and find out what is going on our I am not going to be able to live like

this much longer. He finally did and he gave him some antidepressants and I

really thing the magnesium that Kim talks about has really helped too!!!! Thank

you Kim!!!

The best advice I can give you is keep talking to people and do everything

you can to help raise money for CF that always makes me feel good because I feel

like I am at least doing something to help my kids. And try to talk to you

husband because he is going through the same emotions you are just that he is

from Mars and you are from Venus LOL!! They just deal with it differently and

sometimes need time. It has been about 4 1/2 since we were diagnosed and I think

he has finally come around with dealing with it and really has been a GREAT

HELP and giving me the time I need for myself too!!! At least this week LOL!!!!

So hang in there!!! Deb A

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Dear Katy,

I know how you feel ......some what...........I am only a grandmom of a

lovely gal (19yrs), BUT the love & caring couldn't be more if I had given

her birth. We are very close---all our family is

-Praise you know who for that..

You are NOT the fault , nor is your husband.You didn't plan your genes...

You might (?) be able to trace it back to your ancestors---------------- &

really find where it came from . BUT I doubt it, & it wouldn't change a

thing......SOooooooooo, Don't waste the time. Our genes are not given us by

anyone, or thing ,we can change or challenge. Your a great mommie. Look at

that precious wee one & know of all the great care & concern & LOVING CARE

you all are providing.

My daughter ,Kelley--ERIN'S (gddwcf), doesn't feel the quilt any longer .

She does feel so sad that ERIN will have to do all these things to say well.

" But " .. a wee word, but, it does appear she can do many things " normally " .

she is in her 2nd year of college .-----up in the mountains in NC.....is

still running cross country , even in the mountains. & doing very well. She

does the pulmozyme & enzymes...We hold her in all our special thoughts &

stay up on all the new " stuff " YES >THEY < are all working on THE CURE.....

WE MUST ALL SHARE IS LETTING ALL OTHERS KNOW OF THE CF AWARENESS WEEK

IN OCTOBER ALL OVER THE USA.

GET YOUR CLINIC TO DO POSTERS . MAYBE THE KIDS IN THEIR CLINIC COULD

MAKE

THEM & SIGN THEM TOO.. Mcs PUTS THEM UP ALSO!!

I attend all the conferences & hear allot of the reports as all of you do

too. They have sooooo many more working on this . Also the preventive care

is REALLY improving . As you read some of the " older' folks who have CF ,

tell of their earlier treatments, you can really see how much better ---yes,

even in 5 years.

So sweet gal............Keep your lovely smile on your face & continue to

encourage others with your GOOD reports of your wee PIPER!!! we NEED to hear

those great posts!!

LOVE & HUGS,

GRANDMOMBEV

frustrated

Hi all! I haven't really posted in a while, but I do read all the posts.

We are coming up on the one year mark since Piper's diagnosis. So far I

think that I have done really well with keeping my emotions in check, but

the last couple of weeks I have been really down. I don't know why, Piper

is actually doing very well at the moment other than culturing Staph twice

since July. Her weight is up and she is on the growth charts for the first

time in her short little life. I guess I'm just in a funk. I still go to

bed every night so afraid that at any minute she could turn for the worst, I

know that it doesn't happen that fast, but I still am just scared to death.

I wonder why this has happened to us, why it couldn't be me with CF. I am

angry at myself for giving this horrible disease to her, even though we had

no idea that we were carriers. My husband doesn't ever talk about her CF

and I can't talk to him about how I feel, he thinks that I am just feeling

sorry for myself,

which I guess in a way I am. I just wish that this was all a bad dream and

I will wake up and she will be fine, no CF. We were told when she was

diagnosed that they were 5-10 years away from a cure. But since I have been

on this list it seems like " they " have been saying this for about 5 years.

I'm sorry to go off on my little pity party here, but you guys here are the

only ones who understand.

Thanks for listening,

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

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Katy,

You sound just like I did around the first anniversary of 's dx. I think

it is not terribly uncommon too feel this way. At the time of the first

anniversary of 's diagnosis, we were in the hospital too, so I was way

messed up! I was mad at myself and feeling like a slave to this illness. I

hope you are feeling better soon.

frustrated

Hi all! I haven't really posted in a while, but I do read all the posts. We

are coming up on the one year mark since Piper's diagnosis. So far I think that

I have done really well with keeping my emotions in check, but the last couple

of weeks I have been really down. I don't know why, Piper is actually doing

very well at the moment other than culturing Staph twice since July. Her weight

is up and she is on the growth charts for the first time in her short little

life. I guess I'm just in a funk. I still go to bed every night so afraid that

at any minute she could turn for the worst, I know that it doesn't happen that

fast, but I still am just scared to death. I wonder why this has happened to

us, why it couldn't be me with CF. I am angry at myself for giving this

horrible disease to her, even though we had no idea that we were carriers. My

husband doesn't ever talk about her CF and I can't talk to him about how I feel,

he thinks that I am just feeling sorry for myself,

which I guess in a way I am. I just wish that this was all a bad dream and I

will wake up and she will be fine, no CF. We were told when she was diagnosed

that they were 5-10 years away from a cure. But since I have been on this list

it seems like " they " have been saying this for about 5 years. I'm sorry to go

off on my little pity party here, but you guys here are the only ones who

understand.

Thanks for listening,

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

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Katy,

I know you are going to get plenty of responses to your post and I

wanted to throw my two cents in here also. I know how ou feel! My

daughter was diagnosed almost a year ago also, and I have found

that I struggle on a daily basis. I have visions from the funeral

scene in the movie Steel Magnolias that one day that is going to be

me. All I want is for someone to tell me that she is going to be

fine, that everything is going to be fine. I cannot talk to my

husband either, he prefers not to think or " dwell " about it, and

leaves all of the researching up to me. He depends on me to tell him

what is going on. Lord knows how many times I have had to explain

what pseudomonas is!

So how do I talk myself out of my funk? Because that is basically

what we have to do. I have found that nobody will tell me that she is

going to be alright, so I have to talk myself out of it. I think that

there are no guarantees in life. When my children were born, they did

not come with a certificate saying that " this child is guaranteed to

live to the ripe old age of 102 " . Could you imagine if that were the

case, the number of certificates that would say " this child is

guaranteed to live to the age of 4 " ! Same holds true to me. I am not

guaranteed to live until old age, and since I can now rationalize the

inevitible, I can accept what happens. I am grateful for everyday I

have with my children. One member said in a post a few days ago that

she has learned that it is her daughters disease, not hers. That to

me made perfect sense. Oftentimes we do not give our children enough

credit for being brave. They can handle much more than we give them

credit for, do not think you have to take all of this on by yourself.

I could go on for hours, as this darn disease constantly swirls

around in my brain searching for answers. Sometimes, I have to ignore

it, let things be and not let the thoughts consume me.

I sure hope you can find some piece of mind. Remember, you are not

alone!

e

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Deb,

Thanks, talking to everyone here that has responded to my original post has been

a GREAT help. I think that I would be lost if I hadn't found this group. I

also have met another couple in our town that has a child with CF. We go to

church together and our kids were diagnosed within 6 months of each other. We

talk on a weekly basis and it helps, but it will be better (I think) when my

husband finally comes around. We'll see.

Thanks again!!!

Katy

mom to Austin 4 no CF & Piper 14 months w/CF

gdattig5@... wrote:

In a message dated 9/28/2003 10:41:26 PM Central Daylight Time,

baileyk80@... writes:

Katy

You are going through the regular emotions that I am sure all of us have gone

through. At least I know I did. At first all I wanted to do was cry, then I

was mad and saying why did this have to happen to our kids, then I started

learning more about CF and finding it not that bad as long as we do everything

we

can to keep them health until they find a cure they will be find. And talking

to people like n gives me hope know she has lived a very fulfilled life.

She got married had child and retired and is a Grandma. These are all of the

things I hope my girls will be able to see.

I do know what you mean about your husband because mine went though the same

thing. Not only did he have to deal with having two kids with CF he also found

out a year later that he had Rheumatoid arthritis. He just went into a little

shell. He wouldn't talk, didn't want to do anything and was just a bear to

live with. Finally I said listen either you need to talk to you doctor about

things and find out what is going on our I am not going to be able to live like

this much longer. He finally did and he gave him some antidepressants and I

really thing the magnesium that Kim talks about has really helped too!!!! Thank

you Kim!!!

The best advice I can give you is keep talking to people and do everything

you can to help raise money for CF that always makes me feel good because I feel

like I am at least doing something to help my kids. And try to talk to you

husband because he is going through the same emotions you are just that he is

from Mars and you are from Venus LOL!! They just deal with it differently and

sometimes need time. It has been about 4 1/2 since we were diagnosed and I think

he has finally come around with dealing with it and really has been a GREAT

HELP and giving me the time I need for myself too!!! At least this week LOL!!!!

So hang in there!!! Deb A

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GrandmomBev,

You have a wonderful way of telling things how they are. I know that you can

understand what I am going through, your daughter is fortunate to have a mom

like you. My parents aren't quite as understanding neither are my in-laws. All

I really have as an outlet is this group here.

Thanks again!!!

Katy

mom to Austin 4 no CF & Piper 14 months w/CF

bev wrote:

Dear Katy,

I know how you feel ......some what...........I am only a grandmom of a

lovely gal (19yrs), BUT the love & caring couldn't be more if I had given

her birth. We are very close---all our family is

-Praise you know who for that..

You are NOT the fault , nor is your husband.You didn't plan your genes...

You might (?) be able to trace it back to your ancestors---------------- &

really find where it came from . BUT I doubt it, & it wouldn't change a

thing......SOooooooooo, Don't waste the time. Our genes are not given us by

anyone, or thing ,we can change or challenge. Your a great mommie. Look at

that precious wee one & know of all the great care & concern & LOVING CARE

you all are providing.

My daughter ,Kelley--ERIN'S (gddwcf), doesn't feel the quilt any longer .

She does feel so sad that ERIN will have to do all these things to say well.

" But " .. a wee word, but, it does appear she can do many things " normally " .

she is in her 2nd year of college .-----up in the mountains in NC.....is

still running cross country , even in the mountains. & doing very well. She

does the pulmozyme & enzymes...We hold her in all our special thoughts &

stay up on all the new " stuff " YES >THEY < are all working on THE CURE.....

WE MUST ALL SHARE IS LETTING ALL OTHERS KNOW OF THE CF AWARENESS WEEK

IN OCTOBER ALL OVER THE USA.

GET YOUR CLINIC TO DO POSTERS . MAYBE THE KIDS IN THEIR CLINIC COULD

MAKE

THEM & SIGN THEM TOO.. Mcs PUTS THEM UP ALSO!!

I attend all the conferences & hear allot of the reports as all of you do

too. They have sooooo many more working on this . Also the preventive care

is REALLY improving . As you read some of the " older' folks who have CF ,

tell of their earlier treatments, you can really see how much better ---yes,

even in 5 years.

So sweet gal............Keep your lovely smile on your face & continue to

encourage others with your GOOD reports of your wee PIPER!!! we NEED to hear

those great posts!!

LOVE & HUGS,

GRANDMOMBEV

frustrated

Hi all! I haven't really posted in a while, but I do read all the posts.

We are coming up on the one year mark since Piper's diagnosis. So far I

think that I have done really well with keeping my emotions in check, but

the last couple of weeks I have been really down. I don't know why, Piper

is actually doing very well at the moment other than culturing Staph twice

since July. Her weight is up and she is on the growth charts for the first

time in her short little life. I guess I'm just in a funk. I still go to

bed every night so afraid that at any minute she could turn for the worst, I

know that it doesn't happen that fast, but I still am just scared to death.

I wonder why this has happened to us, why it couldn't be me with CF. I am

angry at myself for giving this horrible disease to her, even though we had

no idea that we were carriers. My husband doesn't ever talk about her CF

and I can't talk to him about how I feel, he thinks that I am just feeling

sorry for myself,

which I guess in a way I am. I just wish that this was all a bad dream and

I will wake up and she will be fine, no CF. We were told when she was

diagnosed that they were 5-10 years away from a cure. But since I have been

on this list it seems like " they " have been saying this for about 5 years.

I'm sorry to go off on my little pity party here, but you guys here are the

only ones who understand.

Thanks for listening,

Katy

Mom to Austin 4 no CF & Piper 14 months w/CF

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Katy,

I'm about a week behind in the posts, but really wanted to reply to

yours anyway. I hope that you are out of your " funk " now. I am a

grandma to a precious little girl with CF. We've known that she has

CF for about 18 months now. There are still nights that I cry after

the lights go out. It's scarey and it's sad. I don't suppose that

we will really be free from the fear until the cure is found. The

good news is, that our children (and grandchildren) are doing pretty

good and they are happy. I find that I get most depressed, when I am

over tired.

Thanking of you,

Gale

I guess I'm just in a funk. I still go to bed every night so afraid

that at any minute she could turn for the worst, I know that it

doesn't happen that fast, but I still am just scared to death>

> Katy

> Mom to Austin 4 no CF & Piper 14 months w/CF

>

>

>

>

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Gale,

You are so right. And I do tend to be a little more irritable and depressed

when I am running on fumes, which has been a lot here lately. But I just wanted

to say thank you, and thank you to everyone else. Ya'll are a special group of

people and I am lucky to have found this gruop.

Take care,

Katy

mom to Austin 4 no CF & Piper 14 (almost 15) months

danieleverettharris wrote:

Katy,

I'm about a week behind in the posts, but really wanted to reply to

yours anyway. I hope that you are out of your " funk " now. I am a

grandma to a precious little girl with CF. We've known that she has

CF for about 18 months now. There are still nights that I cry after

the lights go out. It's scarey and it's sad. I don't suppose that

we will really be free from the fear until the cure is found. The

good news is, that our children (and grandchildren) are doing pretty

good and they are happy. I find that I get most depressed, when I am

over tired.

Thanking of you,

Gale

I guess I'm just in a funk. I still go to bed every night so afraid

that at any minute she could turn for the worst, I know that it

doesn't happen that fast, but I still am just scared to death>

> Katy

> Mom to Austin 4 no CF & Piper 14 months w/CF

>

>

>

>

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  • 3 years later...

,

This is die off. Many people have diharea during die off periods. The stools

form back up because you are feeding the bad bugs in his gut with the little

starches you're giving him here and there. This will never solve the problem if

you keep doing it. You must stick to the correct protocall for implementing SCD

in order to truly heal his gut.

Meleah

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

I do not yet have a yogurt maker, so I wasn't going to start until I have one.

What should I do in the mean time? If I keep feeding him what I have been

feeding him, he will have liquid stools for the next 2 weeks (based on past

experience). If I give him rice waffles in the morning, his diarrhea should stop

(again based on past experience). His best stools have always come from one

starchy meal and 2 non-starchy meals. His best stools are not good enough

obviously or I would not be here.

Can someone offer advice for my situation?

-

PS -- one more bit of info... My son had a scope done by a doctor who is

sought after by ASD patients as this doctor knows the GI pathology of autism.

The doctor found none of the typical autism pathology. What was found was that

the Pill Cam passed thru his small intestines almost 3X the speed it should have

-- hense his diarrhea was determined to be a motility issue. I know bacteria can

cause hypermotility, but this doctor's suggestion was to slow down his digestion

by adding more fat and and a fiber supplement to each meal. It did help a bit.

---------------------------------

Food fight? Enjoy some healthy debate

in the Yahoo! Answers Food & Drink Q & A.

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How long is too long for diarrhea to be considered die-off? Someone e-mailed me

off-list with info about c.diff bacteria, which I am considering. From the BTVC

info attached I understand the diarrhea won't stop from SCD if this is the case.

If anyone has personal experience battling c. diff (and I also think we may have

b. hominis on board too), don't hesitate to e-mail me off-list.

-

robin wrote:

,

This is die off. Many people have diharea during die off periods. The stools

form back up because you are feeding the bad bugs in his gut with the little

starches you're giving him here and there. This will never solve the problem if

you keep doing it. You must stick to the correct protocall for implementing SCD

in order to truly heal his gut.

Meleah

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

I do not yet have a yogurt maker, so I wasn't going to start until I have one.

What should I do in the mean time? If I keep feeding him what I have been

feeding him, he will have liquid stools for the next 2 weeks (based on past

experience). If I give him rice waffles in the morning, his diarrhea should stop

(again based on past experience). His best stools have always come from one

starchy meal and 2 non-starchy meals. His best stools are not good enough

obviously or I would not be here.

Can someone offer advice for my situation?

-

PS -- one more bit of info... My son had a scope done by a doctor who is sought

after by ASD patients as this doctor knows the GI pathology of autism. The

doctor found none of the typical autism pathology. What was found was that the

Pill Cam passed thru his small intestines almost 3X the speed it should have --

hense his diarrhea was determined to be a motility issue. I know bacteria can

cause hypermotility, but this doctor's suggestion was to slow down his digestion

by adding more fat and and a fiber supplement to each meal. It did help a bit.

---------------------------------

Food fight? Enjoy some healthy debate

in the Yahoo! Answers Food & Drink Q & A.

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From what I understand, the diarrhea would stop when you gave your child rice or

corn because you fed the bad bacteria thus ending die off. I understand, I

change my son's diaper 6 or 7 times a day now, before when we were in the intro

diet it was more and it was much more diarrhea and lose stools. Usually when

someone has diarrhea it means their body is getting rid of things in the system

that are making them sick. It is no different here. Your child's system is

getting rid of bacteria and their bad secretions through diarrhea. When the bad

stuff is gone then more formed stools will begin.

Hinojosa

3yr old boy, ASD, Began SCD Feb 14, 2007

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

I do not yet have a yogurt maker, so I wasn't going to start until I have one.

What should I do in the mean time? If I keep feeding him what I have been

feeding him, he will have liquid stools for the next 2 weeks (based on past

experience). If I give him rice waffles in the morning, his diarrhea should stop

(again based on past experience). His best stools have always come from one

starchy meal and 2 non-starchy meals. His best stools are not good enough

obviously or I would not be here.

Can someone offer advice for my situation?

-

PS -- one more bit of info... My son had a scope done by a doctor who is

sought after by ASD patients as this doctor knows the GI pathology of autism.

The doctor found none of the typical autism pathology. What was found was that

the Pill Cam passed thru his small intestines almost 3X the speed it should have

-- hense his diarrhea was determined to be a motility issue. I know bacteria can

cause hypermotility, but this doctor's suggestion was to slow down his digestion

by adding more fat and and a fiber supplement to each meal. It did help a bit.

---------------------------------

Food fight? Enjoy some healthy debate

in the Yahoo! Answers Food & Drink Q & A.

Link to comment
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I was just wondering what kind of a time frame is common and acceptable. We

previously let him go 7 weeks with diarrhea (caused NOT by SCD, but simply by

withdrawing starches). It all ended with a rice cake, leaving me very confused.

I guess I am wondering if what I am doing prior to officially starting SCD is

good for him or not (meat and cooked non-starch veggies and fruit without the

benefit of goat yogurt etc.).

-

Hinojosa wrote:

From what I understand, the diarrhea would stop when you gave your

child rice or corn because you fed the bad bacteria thus ending die off. I

understand, I change my son's diaper 6 or 7 times a day now, before when we were

in the intro diet it was more and it was much more diarrhea and lose stools.

Usually when someone has diarrhea it means their body is getting rid of things

in the system that are making them sick. It is no different here. Your child's

system is getting rid of bacteria and their bad secretions through diarrhea.

When the bad stuff is gone then more formed stools will begin.

Hinojosa

3yr old boy, ASD, Began SCD Feb 14, 2007

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

I do not yet have a yogurt maker, so I wasn't going to start until I have one.

What should I do in the mean time? If I keep feeding him what I have been

feeding him, he will have liquid stools for the next 2 weeks (based on past

experience). If I give him rice waffles in the morning, his diarrhea should stop

(again based on past experience). His best stools have always come from one

starchy meal and 2 non-starchy meals. His best stools are not good enough

obviously or I would not be here.

Can someone offer advice for my situation?

-

PS -- one more bit of info... My son had a scope done by a doctor who is sought

after by ASD patients as this doctor knows the GI pathology of autism. The

doctor found none of the typical autism pathology. What was found was that the

Pill Cam passed thru his small intestines almost 3X the speed it should have --

hense his diarrhea was determined to be a motility issue. I know bacteria can

cause hypermotility, but this doctor's suggestion was to slow down his digestion

by adding more fat and and a fiber supplement to each meal. It did help a bit.

---------------------------------

Food fight? Enjoy some healthy debate

in the Yahoo! Answers Food & Drink Q & A.

Link to comment
Share on other sites

,

Did you get the book and officially start Intro? How long has this diarrhea

been going on? I'm sorry... I'm confused because I thought you hadn't read the

book yet, as of just a couple fo days ago.

Clostridia difficile can be one cause of diarrhea and yes, SCD does not get rid

of it. Taking supplemental s.boularddi could be helpful, if you knew this

bacteria was the cause of the diarrhea..... s.boularddi is a friendly yeast

that is legal, and *can* be helpful.

Patti

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

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No, the book is supposed to arrive March 3rd and my library doesn't have a copy.

We are in a difficult situation in that my son has CVID (an inherited immune

deficiency) and the IVIG is creating a huge yeast problem for him, so we are at

our wits end trying to help him control the yeast. He has never eaten more than

1 starch/day and all I did was eliminate it and make sure that all of his fruit

was cooked (veggies always have been). I did that less than a week ago and the

diarhhea immediately got out of control. Previously I have had the same

experience and the diarrhea never ended until I gave him the one stach again.

His GI specialist has agreed to see him this Friday, so I will get her

direction as well.

-

Patti wrote:

,

Did you get the book and officially start Intro? How long has this diarrhea been

going on? I'm sorry... I'm confused because I thought you hadn't read the book

yet, as of just a couple fo days ago.

Clostridia difficile can be one cause of diarrhea and yes, SCD does not get rid

of it. Taking supplemental s.boularddi could be helpful, if you knew this

bacteria was the cause of the diarrhea..... s.boularddi is a friendly yeast that

is legal, and *can* be helpful.

Patti

frustrated

I have been following the advice on the pecanbread site that suggests reducing

starches prior to begining the diet. Although we have never done SCD before, we

have many times reduced or eliminated starches. I call it his " stew diet " which

means I give him simple stews made with meat and non-starch veggies throughout

the day. I have been doing that since this weekend and we now have the same

results we always get -- non-stop diarrhea (as opposed to mushy stools

alternating with formed or somewhat formed stools). In the past I have always

been suprised that I can get a formed stool if I end the stew diet and give him

either corn chips or a rice cake (please someone explain that to me!).

<<clipped for length by moderator>>

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