Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 In a message dated 9/28/2003 10:41:26 PM Central Daylight Time, baileyk80@... writes: Katy You are going through the regular emotions that I am sure all of us have gone through. At least I know I did. At first all I wanted to do was cry, then I was mad and saying why did this have to happen to our kids, then I started learning more about CF and finding it not that bad as long as we do everything we can to keep them health until they find a cure they will be find. And talking to people like n gives me hope know she has lived a very fulfilled life. She got married had child and retired and is a Grandma. These are all of the things I hope my girls will be able to see. I do know what you mean about your husband because mine went though the same thing. Not only did he have to deal with having two kids with CF he also found out a year later that he had Rheumatoid arthritis. He just went into a little shell. He wouldn't talk, didn't want to do anything and was just a bear to live with. Finally I said listen either you need to talk to you doctor about things and find out what is going on our I am not going to be able to live like this much longer. He finally did and he gave him some antidepressants and I really thing the magnesium that Kim talks about has really helped too!!!! Thank you Kim!!! The best advice I can give you is keep talking to people and do everything you can to help raise money for CF that always makes me feel good because I feel like I am at least doing something to help my kids. And try to talk to you husband because he is going through the same emotions you are just that he is from Mars and you are from Venus LOL!! They just deal with it differently and sometimes need time. It has been about 4 1/2 since we were diagnosed and I think he has finally come around with dealing with it and really has been a GREAT HELP and giving me the time I need for myself too!!! At least this week LOL!!!! So hang in there!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Dear Katy, I know how you feel ......some what...........I am only a grandmom of a lovely gal (19yrs), BUT the love & caring couldn't be more if I had given her birth. We are very close---all our family is -Praise you know who for that.. You are NOT the fault , nor is your husband.You didn't plan your genes... You might (?) be able to trace it back to your ancestors---------------- & really find where it came from . BUT I doubt it, & it wouldn't change a thing......SOooooooooo, Don't waste the time. Our genes are not given us by anyone, or thing ,we can change or challenge. Your a great mommie. Look at that precious wee one & know of all the great care & concern & LOVING CARE you all are providing. My daughter ,Kelley--ERIN'S (gddwcf), doesn't feel the quilt any longer . She does feel so sad that ERIN will have to do all these things to say well. " But " .. a wee word, but, it does appear she can do many things " normally " . she is in her 2nd year of college .-----up in the mountains in NC.....is still running cross country , even in the mountains. & doing very well. She does the pulmozyme & enzymes...We hold her in all our special thoughts & stay up on all the new " stuff " YES >THEY < are all working on THE CURE..... WE MUST ALL SHARE IS LETTING ALL OTHERS KNOW OF THE CF AWARENESS WEEK IN OCTOBER ALL OVER THE USA. GET YOUR CLINIC TO DO POSTERS . MAYBE THE KIDS IN THEIR CLINIC COULD MAKE THEM & SIGN THEM TOO.. Mcs PUTS THEM UP ALSO!! I attend all the conferences & hear allot of the reports as all of you do too. They have sooooo many more working on this . Also the preventive care is REALLY improving . As you read some of the " older' folks who have CF , tell of their earlier treatments, you can really see how much better ---yes, even in 5 years. So sweet gal............Keep your lovely smile on your face & continue to encourage others with your GOOD reports of your wee PIPER!!! we NEED to hear those great posts!! LOVE & HUGS, GRANDMOMBEV frustrated Hi all! I haven't really posted in a while, but I do read all the posts. We are coming up on the one year mark since Piper's diagnosis. So far I think that I have done really well with keeping my emotions in check, but the last couple of weeks I have been really down. I don't know why, Piper is actually doing very well at the moment other than culturing Staph twice since July. Her weight is up and she is on the growth charts for the first time in her short little life. I guess I'm just in a funk. I still go to bed every night so afraid that at any minute she could turn for the worst, I know that it doesn't happen that fast, but I still am just scared to death. I wonder why this has happened to us, why it couldn't be me with CF. I am angry at myself for giving this horrible disease to her, even though we had no idea that we were carriers. My husband doesn't ever talk about her CF and I can't talk to him about how I feel, he thinks that I am just feeling sorry for myself, which I guess in a way I am. I just wish that this was all a bad dream and I will wake up and she will be fine, no CF. We were told when she was diagnosed that they were 5-10 years away from a cure. But since I have been on this list it seems like " they " have been saying this for about 5 years. I'm sorry to go off on my little pity party here, but you guys here are the only ones who understand. Thanks for listening, Katy Mom to Austin 4 no CF & Piper 14 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Katy, You sound just like I did around the first anniversary of 's dx. I think it is not terribly uncommon too feel this way. At the time of the first anniversary of 's diagnosis, we were in the hospital too, so I was way messed up! I was mad at myself and feeling like a slave to this illness. I hope you are feeling better soon. frustrated Hi all! I haven't really posted in a while, but I do read all the posts. We are coming up on the one year mark since Piper's diagnosis. So far I think that I have done really well with keeping my emotions in check, but the last couple of weeks I have been really down. I don't know why, Piper is actually doing very well at the moment other than culturing Staph twice since July. Her weight is up and she is on the growth charts for the first time in her short little life. I guess I'm just in a funk. I still go to bed every night so afraid that at any minute she could turn for the worst, I know that it doesn't happen that fast, but I still am just scared to death. I wonder why this has happened to us, why it couldn't be me with CF. I am angry at myself for giving this horrible disease to her, even though we had no idea that we were carriers. My husband doesn't ever talk about her CF and I can't talk to him about how I feel, he thinks that I am just feeling sorry for myself, which I guess in a way I am. I just wish that this was all a bad dream and I will wake up and she will be fine, no CF. We were told when she was diagnosed that they were 5-10 years away from a cure. But since I have been on this list it seems like " they " have been saying this for about 5 years. I'm sorry to go off on my little pity party here, but you guys here are the only ones who understand. Thanks for listening, Katy Mom to Austin 4 no CF & Piper 14 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Katy, I know you are going to get plenty of responses to your post and I wanted to throw my two cents in here also. I know how ou feel! My daughter was diagnosed almost a year ago also, and I have found that I struggle on a daily basis. I have visions from the funeral scene in the movie Steel Magnolias that one day that is going to be me. All I want is for someone to tell me that she is going to be fine, that everything is going to be fine. I cannot talk to my husband either, he prefers not to think or " dwell " about it, and leaves all of the researching up to me. He depends on me to tell him what is going on. Lord knows how many times I have had to explain what pseudomonas is! So how do I talk myself out of my funk? Because that is basically what we have to do. I have found that nobody will tell me that she is going to be alright, so I have to talk myself out of it. I think that there are no guarantees in life. When my children were born, they did not come with a certificate saying that " this child is guaranteed to live to the ripe old age of 102 " . Could you imagine if that were the case, the number of certificates that would say " this child is guaranteed to live to the age of 4 " ! Same holds true to me. I am not guaranteed to live until old age, and since I can now rationalize the inevitible, I can accept what happens. I am grateful for everyday I have with my children. One member said in a post a few days ago that she has learned that it is her daughters disease, not hers. That to me made perfect sense. Oftentimes we do not give our children enough credit for being brave. They can handle much more than we give them credit for, do not think you have to take all of this on by yourself. I could go on for hours, as this darn disease constantly swirls around in my brain searching for answers. Sometimes, I have to ignore it, let things be and not let the thoughts consume me. I sure hope you can find some piece of mind. Remember, you are not alone! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 Deb, Thanks, talking to everyone here that has responded to my original post has been a GREAT help. I think that I would be lost if I hadn't found this group. I also have met another couple in our town that has a child with CF. We go to church together and our kids were diagnosed within 6 months of each other. We talk on a weekly basis and it helps, but it will be better (I think) when my husband finally comes around. We'll see. Thanks again!!! Katy mom to Austin 4 no CF & Piper 14 months w/CF gdattig5@... wrote: In a message dated 9/28/2003 10:41:26 PM Central Daylight Time, baileyk80@... writes: Katy You are going through the regular emotions that I am sure all of us have gone through. At least I know I did. At first all I wanted to do was cry, then I was mad and saying why did this have to happen to our kids, then I started learning more about CF and finding it not that bad as long as we do everything we can to keep them health until they find a cure they will be find. And talking to people like n gives me hope know she has lived a very fulfilled life. She got married had child and retired and is a Grandma. These are all of the things I hope my girls will be able to see. I do know what you mean about your husband because mine went though the same thing. Not only did he have to deal with having two kids with CF he also found out a year later that he had Rheumatoid arthritis. He just went into a little shell. He wouldn't talk, didn't want to do anything and was just a bear to live with. Finally I said listen either you need to talk to you doctor about things and find out what is going on our I am not going to be able to live like this much longer. He finally did and he gave him some antidepressants and I really thing the magnesium that Kim talks about has really helped too!!!! Thank you Kim!!! The best advice I can give you is keep talking to people and do everything you can to help raise money for CF that always makes me feel good because I feel like I am at least doing something to help my kids. And try to talk to you husband because he is going through the same emotions you are just that he is from Mars and you are from Venus LOL!! They just deal with it differently and sometimes need time. It has been about 4 1/2 since we were diagnosed and I think he has finally come around with dealing with it and really has been a GREAT HELP and giving me the time I need for myself too!!! At least this week LOL!!!! So hang in there!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 GrandmomBev, You have a wonderful way of telling things how they are. I know that you can understand what I am going through, your daughter is fortunate to have a mom like you. My parents aren't quite as understanding neither are my in-laws. All I really have as an outlet is this group here. Thanks again!!! Katy mom to Austin 4 no CF & Piper 14 months w/CF bev wrote: Dear Katy, I know how you feel ......some what...........I am only a grandmom of a lovely gal (19yrs), BUT the love & caring couldn't be more if I had given her birth. We are very close---all our family is -Praise you know who for that.. You are NOT the fault , nor is your husband.You didn't plan your genes... You might (?) be able to trace it back to your ancestors---------------- & really find where it came from . BUT I doubt it, & it wouldn't change a thing......SOooooooooo, Don't waste the time. Our genes are not given us by anyone, or thing ,we can change or challenge. Your a great mommie. Look at that precious wee one & know of all the great care & concern & LOVING CARE you all are providing. My daughter ,Kelley--ERIN'S (gddwcf), doesn't feel the quilt any longer . She does feel so sad that ERIN will have to do all these things to say well. " But " .. a wee word, but, it does appear she can do many things " normally " . she is in her 2nd year of college .-----up in the mountains in NC.....is still running cross country , even in the mountains. & doing very well. She does the pulmozyme & enzymes...We hold her in all our special thoughts & stay up on all the new " stuff " YES >THEY < are all working on THE CURE..... WE MUST ALL SHARE IS LETTING ALL OTHERS KNOW OF THE CF AWARENESS WEEK IN OCTOBER ALL OVER THE USA. GET YOUR CLINIC TO DO POSTERS . MAYBE THE KIDS IN THEIR CLINIC COULD MAKE THEM & SIGN THEM TOO.. Mcs PUTS THEM UP ALSO!! I attend all the conferences & hear allot of the reports as all of you do too. They have sooooo many more working on this . Also the preventive care is REALLY improving . As you read some of the " older' folks who have CF , tell of their earlier treatments, you can really see how much better ---yes, even in 5 years. So sweet gal............Keep your lovely smile on your face & continue to encourage others with your GOOD reports of your wee PIPER!!! we NEED to hear those great posts!! LOVE & HUGS, GRANDMOMBEV frustrated Hi all! I haven't really posted in a while, but I do read all the posts. We are coming up on the one year mark since Piper's diagnosis. So far I think that I have done really well with keeping my emotions in check, but the last couple of weeks I have been really down. I don't know why, Piper is actually doing very well at the moment other than culturing Staph twice since July. Her weight is up and she is on the growth charts for the first time in her short little life. I guess I'm just in a funk. I still go to bed every night so afraid that at any minute she could turn for the worst, I know that it doesn't happen that fast, but I still am just scared to death. I wonder why this has happened to us, why it couldn't be me with CF. I am angry at myself for giving this horrible disease to her, even though we had no idea that we were carriers. My husband doesn't ever talk about her CF and I can't talk to him about how I feel, he thinks that I am just feeling sorry for myself, which I guess in a way I am. I just wish that this was all a bad dream and I will wake up and she will be fine, no CF. We were told when she was diagnosed that they were 5-10 years away from a cure. But since I have been on this list it seems like " they " have been saying this for about 5 years. I'm sorry to go off on my little pity party here, but you guys here are the only ones who understand. Thanks for listening, Katy Mom to Austin 4 no CF & Piper 14 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 Katy, I'm about a week behind in the posts, but really wanted to reply to yours anyway. I hope that you are out of your " funk " now. I am a grandma to a precious little girl with CF. We've known that she has CF for about 18 months now. There are still nights that I cry after the lights go out. It's scarey and it's sad. I don't suppose that we will really be free from the fear until the cure is found. The good news is, that our children (and grandchildren) are doing pretty good and they are happy. I find that I get most depressed, when I am over tired. Thanking of you, Gale I guess I'm just in a funk. I still go to bed every night so afraid that at any minute she could turn for the worst, I know that it doesn't happen that fast, but I still am just scared to death> > Katy > Mom to Austin 4 no CF & Piper 14 months w/CF > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 Gale, You are so right. And I do tend to be a little more irritable and depressed when I am running on fumes, which has been a lot here lately. But I just wanted to say thank you, and thank you to everyone else. Ya'll are a special group of people and I am lucky to have found this gruop. Take care, Katy mom to Austin 4 no CF & Piper 14 (almost 15) months danieleverettharris wrote: Katy, I'm about a week behind in the posts, but really wanted to reply to yours anyway. I hope that you are out of your " funk " now. I am a grandma to a precious little girl with CF. We've known that she has CF for about 18 months now. There are still nights that I cry after the lights go out. It's scarey and it's sad. I don't suppose that we will really be free from the fear until the cure is found. The good news is, that our children (and grandchildren) are doing pretty good and they are happy. I find that I get most depressed, when I am over tired. Thanking of you, Gale I guess I'm just in a funk. I still go to bed every night so afraid that at any minute she could turn for the worst, I know that it doesn't happen that fast, but I still am just scared to death> > Katy > Mom to Austin 4 no CF & Piper 14 months w/CF > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 , This is die off. Many people have diharea during die off periods. The stools form back up because you are feeding the bad bugs in his gut with the little starches you're giving him here and there. This will never solve the problem if you keep doing it. You must stick to the correct protocall for implementing SCD in order to truly heal his gut. Meleah frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). I do not yet have a yogurt maker, so I wasn't going to start until I have one. What should I do in the mean time? If I keep feeding him what I have been feeding him, he will have liquid stools for the next 2 weeks (based on past experience). If I give him rice waffles in the morning, his diarrhea should stop (again based on past experience). His best stools have always come from one starchy meal and 2 non-starchy meals. His best stools are not good enough obviously or I would not be here. Can someone offer advice for my situation? - PS -- one more bit of info... My son had a scope done by a doctor who is sought after by ASD patients as this doctor knows the GI pathology of autism. The doctor found none of the typical autism pathology. What was found was that the Pill Cam passed thru his small intestines almost 3X the speed it should have -- hense his diarrhea was determined to be a motility issue. I know bacteria can cause hypermotility, but this doctor's suggestion was to slow down his digestion by adding more fat and and a fiber supplement to each meal. It did help a bit. --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 How long is too long for diarrhea to be considered die-off? Someone e-mailed me off-list with info about c.diff bacteria, which I am considering. From the BTVC info attached I understand the diarrhea won't stop from SCD if this is the case. If anyone has personal experience battling c. diff (and I also think we may have b. hominis on board too), don't hesitate to e-mail me off-list. - robin wrote: , This is die off. Many people have diharea during die off periods. The stools form back up because you are feeding the bad bugs in his gut with the little starches you're giving him here and there. This will never solve the problem if you keep doing it. You must stick to the correct protocall for implementing SCD in order to truly heal his gut. Meleah frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). I do not yet have a yogurt maker, so I wasn't going to start until I have one. What should I do in the mean time? If I keep feeding him what I have been feeding him, he will have liquid stools for the next 2 weeks (based on past experience). If I give him rice waffles in the morning, his diarrhea should stop (again based on past experience). His best stools have always come from one starchy meal and 2 non-starchy meals. His best stools are not good enough obviously or I would not be here. Can someone offer advice for my situation? - PS -- one more bit of info... My son had a scope done by a doctor who is sought after by ASD patients as this doctor knows the GI pathology of autism. The doctor found none of the typical autism pathology. What was found was that the Pill Cam passed thru his small intestines almost 3X the speed it should have -- hense his diarrhea was determined to be a motility issue. I know bacteria can cause hypermotility, but this doctor's suggestion was to slow down his digestion by adding more fat and and a fiber supplement to each meal. It did help a bit. --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 From what I understand, the diarrhea would stop when you gave your child rice or corn because you fed the bad bacteria thus ending die off. I understand, I change my son's diaper 6 or 7 times a day now, before when we were in the intro diet it was more and it was much more diarrhea and lose stools. Usually when someone has diarrhea it means their body is getting rid of things in the system that are making them sick. It is no different here. Your child's system is getting rid of bacteria and their bad secretions through diarrhea. When the bad stuff is gone then more formed stools will begin. Hinojosa 3yr old boy, ASD, Began SCD Feb 14, 2007 frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). I do not yet have a yogurt maker, so I wasn't going to start until I have one. What should I do in the mean time? If I keep feeding him what I have been feeding him, he will have liquid stools for the next 2 weeks (based on past experience). If I give him rice waffles in the morning, his diarrhea should stop (again based on past experience). His best stools have always come from one starchy meal and 2 non-starchy meals. His best stools are not good enough obviously or I would not be here. Can someone offer advice for my situation? - PS -- one more bit of info... My son had a scope done by a doctor who is sought after by ASD patients as this doctor knows the GI pathology of autism. The doctor found none of the typical autism pathology. What was found was that the Pill Cam passed thru his small intestines almost 3X the speed it should have -- hense his diarrhea was determined to be a motility issue. I know bacteria can cause hypermotility, but this doctor's suggestion was to slow down his digestion by adding more fat and and a fiber supplement to each meal. It did help a bit. --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 I was just wondering what kind of a time frame is common and acceptable. We previously let him go 7 weeks with diarrhea (caused NOT by SCD, but simply by withdrawing starches). It all ended with a rice cake, leaving me very confused. I guess I am wondering if what I am doing prior to officially starting SCD is good for him or not (meat and cooked non-starch veggies and fruit without the benefit of goat yogurt etc.). - Hinojosa wrote: From what I understand, the diarrhea would stop when you gave your child rice or corn because you fed the bad bacteria thus ending die off. I understand, I change my son's diaper 6 or 7 times a day now, before when we were in the intro diet it was more and it was much more diarrhea and lose stools. Usually when someone has diarrhea it means their body is getting rid of things in the system that are making them sick. It is no different here. Your child's system is getting rid of bacteria and their bad secretions through diarrhea. When the bad stuff is gone then more formed stools will begin. Hinojosa 3yr old boy, ASD, Began SCD Feb 14, 2007 frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). I do not yet have a yogurt maker, so I wasn't going to start until I have one. What should I do in the mean time? If I keep feeding him what I have been feeding him, he will have liquid stools for the next 2 weeks (based on past experience). If I give him rice waffles in the morning, his diarrhea should stop (again based on past experience). His best stools have always come from one starchy meal and 2 non-starchy meals. His best stools are not good enough obviously or I would not be here. Can someone offer advice for my situation? - PS -- one more bit of info... My son had a scope done by a doctor who is sought after by ASD patients as this doctor knows the GI pathology of autism. The doctor found none of the typical autism pathology. What was found was that the Pill Cam passed thru his small intestines almost 3X the speed it should have -- hense his diarrhea was determined to be a motility issue. I know bacteria can cause hypermotility, but this doctor's suggestion was to slow down his digestion by adding more fat and and a fiber supplement to each meal. It did help a bit. --------------------------------- Food fight? Enjoy some healthy debate in the Yahoo! Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 , Did you get the book and officially start Intro? How long has this diarrhea been going on? I'm sorry... I'm confused because I thought you hadn't read the book yet, as of just a couple fo days ago. Clostridia difficile can be one cause of diarrhea and yes, SCD does not get rid of it. Taking supplemental s.boularddi could be helpful, if you knew this bacteria was the cause of the diarrhea..... s.boularddi is a friendly yeast that is legal, and *can* be helpful. Patti frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). <<clipped for length by moderator>> Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 No, the book is supposed to arrive March 3rd and my library doesn't have a copy. We are in a difficult situation in that my son has CVID (an inherited immune deficiency) and the IVIG is creating a huge yeast problem for him, so we are at our wits end trying to help him control the yeast. He has never eaten more than 1 starch/day and all I did was eliminate it and make sure that all of his fruit was cooked (veggies always have been). I did that less than a week ago and the diarhhea immediately got out of control. Previously I have had the same experience and the diarrhea never ended until I gave him the one stach again. His GI specialist has agreed to see him this Friday, so I will get her direction as well. - Patti wrote: , Did you get the book and officially start Intro? How long has this diarrhea been going on? I'm sorry... I'm confused because I thought you hadn't read the book yet, as of just a couple fo days ago. Clostridia difficile can be one cause of diarrhea and yes, SCD does not get rid of it. Taking supplemental s.boularddi could be helpful, if you knew this bacteria was the cause of the diarrhea..... s.boularddi is a friendly yeast that is legal, and *can* be helpful. Patti frustrated I have been following the advice on the pecanbread site that suggests reducing starches prior to begining the diet. Although we have never done SCD before, we have many times reduced or eliminated starches. I call it his " stew diet " which means I give him simple stews made with meat and non-starch veggies throughout the day. I have been doing that since this weekend and we now have the same results we always get -- non-stop diarrhea (as opposed to mushy stools alternating with formed or somewhat formed stools). In the past I have always been suprised that I can get a formed stool if I end the stew diet and give him either corn chips or a rice cake (please someone explain that to me!). <<clipped for length by moderator>> Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
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