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Hi,

even the longest and most beautiful summer finally comes to an end and now I

have time for an update.

Fiona entered first grade two weeks ago and LOVES it. To my big surprise she

has become quite independent and mature within a couple of weeks.

A month ago we had our clinic appointment. Since we take part in a study

about staph aureus they took a nose swab in addition to the normal throat

swab. Turned out that Fiona had no staph in her throat but that it hides in

her nose. The throat swab only contained h. flu this time.

The most positive thing however is, that Fiona has no pseudomonas antibodies

in her blood. The clinic offered to do this test for the first time.

Although Fiona has never cultured positive for pseudomonas there was always

the fear that it hides somewhere in her airways. Now we can be sure that she

is pseudomonas free (yeah!).

Her elevated liver enzymes have gone back to normal without medication. The

only small setback of the whole appointment was, that Fiona was quite

surprised that the CF doc showed no medical interest for Sebastian and that

we didn't make an appointment for her brother at all. She couldn't

understand how we were so sure that everything is okay with her brother and

well, I didn't find a good explanation.

Peace

Torsten, dad of Fiona 6wcf and Sebastian 4 months wocf

e-mail: torstenkrafft@...

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Wonderful e-mail!!! Glad to hear the good news!!!!!!!!!!!!!

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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Torsten,

What a good report! It certainly makes you feel at ease to know that

there is no PA's around.

Love to you and your dear family.

> Hi,

>

> even the longest and most beautiful summer finally comes to an end

and now I

> have time for an update.

>

> Fiona entered first grade two weeks ago and LOVES it. To my big

surprise she

> has become quite independent and mature within a couple of weeks.

>

> A month ago we had our clinic appointment. Since we take part in a

study

> about staph aureus they took a nose swab in addition to the normal

throat

> swab. Turned out that Fiona had no staph in her throat but that it

hides in

> her nose. The throat swab only contained h. flu this time.

>

> The most positive thing however is, that Fiona has no pseudomonas

antibodies

> in her blood. The clinic offered to do this test for the first time.

> Although Fiona has never cultured positive for pseudomonas there

was always

> the fear that it hides somewhere in her airways. Now we can be sure

that she

> is pseudomonas free (yeah!).

>

> Her elevated liver enzymes have gone back to normal without

medication. The

> only small setback of the whole appointment was, that Fiona was

quite

> surprised that the CF doc showed no medical interest for Sebastian

and that

> we didn't make an appointment for her brother at all. She couldn't

> understand how we were so sure that everything is okay with her

brother and

> well, I didn't find a good explanation.

>

> Peace

> Torsten, dad of Fiona 6wcf and Sebastian 4 months wocf

> e-mail: torstenkrafft@w...

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Wonderful to hear all of the good news. I hold you all in my special

thoughts & good wishes.

It is wonderful to hear of Fiona's happy school days too

Take care as always. & love to you & your family.

LOVE & HUGS<

GrandmomBEV

Re: Update on us

Torsten,

What a good report! It certainly makes you feel at ease to know that

there is no PA's around.

Love to you and your dear family.

> Hi,

>

> even the longest and most beautiful summer finally comes to an end

and now I

> have time for an update.

>

> Fiona entered first grade two weeks ago and LOVES it. To my big

surprise she

> has become quite independent and mature within a couple of weeks.

>

> A month ago we had our clinic appointment. Since we take part in a

study

> about staph aureus they took a nose swab in addition to the normal

throat

> swab. Turned out that Fiona had no staph in her throat but that it

hides in

> her nose. The throat swab only contained h. flu this time.

>

> The most positive thing however is, that Fiona has no pseudomonas

antibodies

> in her blood. The clinic offered to do this test for the first time.

> Although Fiona has never cultured positive for pseudomonas there

was always

> the fear that it hides somewhere in her airways. Now we can be sure

that she

> is pseudomonas free (yeah!).

>

> Her elevated liver enzymes have gone back to normal without

medication. The

> only small setback of the whole appointment was, that Fiona was

quite

> surprised that the CF doc showed no medical interest for Sebastian

and that

> we didn't make an appointment for her brother at all. She couldn't

> understand how we were so sure that everything is okay with her

brother and

> well, I didn't find a good explanation.

>

> Peace

> Torsten, dad of Fiona 6wcf and Sebastian 4 months wocf

> e-mail: torstenkrafft@w...

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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