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Re: I'm a nervous wreck

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In a message dated 10/1/2003 10:34:15 AM Central Daylight Time, bevd@...

writes:

SHE will do fine. A nurse is there & she has instructions from you I

am sure too. Soooo, sit back & put your feet up & relax. OR get your

shoes & coat on & go out to the mall or someplace you've wanted to go

.....She will have memories that cant be matched.. Letting g her go was

really showing her how much you love her & trust her .. Take care,

prayers are coming too!!

LOVE & BUGS, grandmomBEV

THANKS GRANDMOM BEV I NEED THOSE WORDS OF ADVICE!! ESPECIALLY FROM AN EXPERT

LIKE YOU!!! THANKS AGAIN! DEB A

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SHE will do fine. A nurse is there & she has instructions from you I

am sure too. Soooo, sit back & put your feet up & relax. OR get your

shoes & coat on & go out to the mall or someplace you've wanted to go

.....She will have memories that cant be matched.. Letting g her go was

really showing her how much you love her & trust her .. Take care,

prayers are coming too!!

LOVE & BUGS, grandmomBEV

I'm a nervous wreck

Well, today went off to camp Wapsi with her sixth grade class

for 3

days!! I am a nervous wreck! I know everything will go well I just worry

about

her being out where it is cold. I told her to wear 2 sweat shirts if she

needs to and two pairs of socks. They are also going canoeing and

fishing (OH my

God I hope she don't fall in the water!!!!) She wanted to do this so

bad!! And

she is on collistin, cipro and we are doing the GSH too and she has to

do her

vest. I guess this will be a good test to see how she does without me.

They

will have a nurse there to help her and remind her to do the things she

needs to

do but I am still a nervous wreck about it!!! It's hard to be a parent

let

alone a parent with a child that has CF there is so much to worry about.

I just

wonder how I will handle it when she leave the nest!!!! I just hope I

didn't

forget anything!!! OK OK I FELL BETTER NOW!!! I GOT IT OUT!! SHE WILL BE

FINE!!

I HOPE!!! THANKS FOR LISTENING I KNEW I COULD LET IT ALL OUT HERE!! SHE

NEEDS

THIS BREAK FROM ME LIKE I NEED IT FROM HER!! THANKS AGAIN FOR LISTENING

TO ME

RAMBLE ON AND ON AND ON!! DEB A

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THIS SURE BRINGS BACK MEMORIES. THE FIRST TIME THAT MY STEPHANIE WENT AWAY

TO CAMP WAS WHEN SHE WAS IN 4TH GRADE AND SHE WENT TO THE CF CAMP IN THE

SUMMER FOR A WEEK. I WAS SO WORRIED THE WHOLE TIME. THIS IS WHAT IS SO

FUNNY. I WASN'T WORRIED ABOUT HER TREATMENTS BECAUSE I NEW THAT HER

MEDICATIONS AND HER TREATMENTS WERE SCHEDULED BY THE STAFF AND THAT THERE

WERE NURSES AND DOCTORS AT THE CAMP. THE ONE THING I WAS WORRIED ABOUT THE

MOST WAS WHAT IF SHE WET THE BED!!!! SHE GOT ALONG GREAT AT CAMP AND THAT

WAS THE FIRST TIME SHE GOT TO USE THE THERAPY VEST. SHE DID WET THE BED AND

THEY HANDLED THAT ALSO. THESE ARE DEFINITELY LEARNING EXPERIENCES FOR OUR

CHILDREN AND FOR US. IT IS HARD TO LET GO AND NOT PROTECT.

TINA W., MOTHER OF STEPHANIE ALMOST 17YOA WCF

I'm a nervous wreck

Well, today went off to camp Wapsi with her sixth grade class for 3

days!! I am a nervous wreck! I know everything will go well I just worry

about

her being out where it is cold. I told her to wear 2 sweat shirts if she

needs to and two pairs of socks. They are also going canoeing and fishing

(OH my

God I hope she don't fall in the water!!!!) She wanted to do this so bad!!

And

she is on collistin, cipro and we are doing the GSH too and she has to do

her

vest. I guess this will be a good test to see how she does without me. They

will have a nurse there to help her and remind her to do the things she

needs to

do but I am still a nervous wreck about it!!! It's hard to be a parent let

alone a parent with a child that has CF there is so much to worry about. I

just

wonder how I will handle it when she leave the nest!!!! I just hope I didn't

forget anything!!! OK OK I FELL BETTER NOW!!! I GOT IT OUT!! SHE WILL BE

FINE!!

I HOPE!!! THANKS FOR LISTENING I KNEW I COULD LET IT ALL OUT HERE!! SHE

NEEDS

THIS BREAK FROM ME LIKE I NEED IT FROM HER!! THANKS AGAIN FOR LISTENING TO

ME

RAMBLE ON AND ON AND ON!! DEB A

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Keep busy!! Its the worst feeling - worrying and wondering. Growing up

sucks sometimes.

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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In a message dated 10/1/2003 7:04:29 PM Central Daylight Time,

ROSEMARY3FOR3wCF@... writes:

Keep busy!! Its the worst feeling - worrying and wondering. Growing up

sucks sometimes.

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

OH I KNOW WHAT I'M GOING TO BE LIKE WHEN SHE GRADUATES?? DEB A

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In a message dated 10/1/2003 7:17:54 PM Central Daylight Time,

Najnest@... writes:

Deb I'm giving you a LOT of credit - I'm not sure I would let my son

go if he was on all that because I guarantee he could not be

reponsible. No wonder you are a nercous wreck. Try feeling proud that

she is mature enough to handle this on her own.

jan

I hope so!!!!! Will find out FRIDAY!!! Deb A

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She wanted to do this so bad!! And

> she is on collistin, cipro and we are doing the GSH too and she has

to do her

> vest. I guess this will be a good test to see how she does without

me. They

> will have a nurse there to help her and remind her to do the things

she needs to

> do but I am still a nervous wreck about it!!!

Deb I'm giving you a LOT of credit - I'm not sure I would let my son

go if he was on all that because I guarantee he could not be

reponsible. No wonder you are a nercous wreck. Try feeling proud that

she is mature enough to handle this on her own.

jan

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Hey Deb!

Well was a " little " older (16) but I let her go to Europe for 3 weeks

with her German teacher and class. She had a great time. I got the docs to put

her on Levaquin " just incase " and she didn't do Tobi or pulmozyme (we just

couldn't figure out any easy way to keep it cold for 3 weeks.) We did check

with the doc and he okayed it, so she just did her albuterol/intal and Therapep

(No way I was gonna make her haul the Vest all over Europe). Was I nervous?

YES!!

But she had the time of her life.

Oh and I did let her go to 6th grade science camp and was the same as you except

its not really that cold here plus the cabins were heated, we didn't even have a

Vest yet. and I tried to explain cpt to the " nurse " but I " m not sure if she did

it or not. had a best friend with asthma and arthritis and ADD and the

" nurse " kept trying to give this girl 's enzymes and give ritalin.

Me and the other mom did end up complaining about her, of course the girls knew

better than to take each others meds but still!!!!

ah memories!!

lol and hang in there Deb!

love,

M

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