My doctors appt.

[Guest guest]

I have been sitting here all afternoon just wondering why on earth I

ever went down there. He did not tell me a thing. Pretty much just

went over the same scenarios, options. The Whipple, well I dont

want that and we discussed it, but then I asked him about the

changes in the ducts, in 6 months it had spread to the ducts causing

stenosis, dilation and clubbing from the body to the tail. I dont

think a whipple would do much for that.

Taking the panc out here and shhipping it out to cincy for islet

harvesting then sending those cells back here for implation. He

didn't know how an inplantation like that would be physically

performed, so he couldn't answer that. It would also have to be

taken before the Institutional Revue Board before any of this could

even be started. He also said and I quote " do you really want to be

the first person to have it done here " ; he's got a point there.

Well I asked about seeing Dr. Cotton and he said that was a good

idea and he would work on that. If Cotton even looks at my chart

and make a recomendation, I'll be happy. He is one of the worlds

foremost authorities on cp.

Well he finally said that the cincy doc had a block of films and

reports from my most recent hospitalization. Not the prior ercp's

and mrcp's to see how much had changed in less then 6 months or any

of the manometry reports. So I believe he may send him a letter

with that info. We talked about other hospitals that do tp/ict and

he didn't know of any other then cincny and Minnosota but thought

Miami did.

So I guess I'll be looking into other places, if any of ya'll know

where they perform tp/ict please send me a note. He told me not to

loose weight and fussed a bit about my noncompliance with the tube

feedings. I asked him if I could go back to work and he said no.

However, I have another appt with him in 2 weeks. So I did get the

worse news, the one I feared most, nothing....there's nothing.