Becky

[Guest guest]

Becky,

I understand your concern about flying, and as a parent of an adult

child with CF, I thank you for thinking of others and not wishing to

expose them to B. cepacia.

I also understand why you're so angry. Life really seems to be

frustrating these days and the disappointing news that Make A Wish

won't accomodate your travel request seems like one more straw to add

to the pack.

Below is a link to a page of other organizations that grant children's

wishes. Make A Wish isn't the last hope. My son's CF doctor contacted

The Brass Ring Society in 1992 and they planned an amazing and

memorable event for my son.

The Brass Ring Society didn't give an opportunity to choose his

own " wish " -- but that was only because when 's doctor contacted

the BRS, he told them that he had a special patient who loved

baseball, who idolized (former Mets catcher) , and he

wanted to know if the BRS could arrange something around and

baseball.

The BRS flew us the entire family to Florida during spring training

during the Florida Marlins inaugrual year. had just retired

from baseball and was the Marlin's announcer. got to meet

and the team, and was a batboy for one of their practices.

The BRS provided wonderful hotel accomodations for seven days (the

hotel had a basket of fruit and welcoming note in our room, and we got

free buffet breakfast every morning); the rental car place provided a

brand new mini van to drive for the week, the BRS provided about 10

rolls of film and told us to send the film after the trip so they

could develop it and send us all copies. The BRS also provided tickets

to Disney World, Epcot, and Sea World (the kids liked that best), and

gave us $300 to use for food/souvenirs.

This BRS has even bought winter coats for kids who live in the south,

whose wish it is to go north to see snow for the first time.

My point is, this is an organization that believes in not tooting it's

own horn, they're there for the kids. I'm sure if you explain why you

cannot allow Rebecah to fly, they'll do whatever is within their means

to get you a rental van if that's what your family needs to fulfill

Rebebah's wish.

Remember what the conqueror Hanibal said, " We will find a way, or we

will make our own. "

http://myhealth.memorialmedical.com/library/healthguide/SelfHelp/topic

..asp?hwid=shc99wis

(I noticed that link wrapped to the second line, so be sure to pick up

both lines of the link to open the page).

Kim