Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 e - we all feel like you do at times. Its so hard to pick yourself up but you will! Sometimes we need to feel awful - if that makes sense. Concentrate on the positive - 1. we learned all those stupid beautitudes are BS (i.e. we all have our cross to bear, God only gives us what we can handle, etc.) 2. at least with a diagnosis your child is getting proper treatment(s). Our CF Dr. - who retired - said once when we questioned all the meds - years ago kids died now they live longer - due to meds! 3. we are so much smarter than your average bear. I know exactly what you mean about your husband. Men want to FIX things. They can't fix this so they hide! We need to talk - no one wants to hear it so everyone says " don't worry she'll be fine " ...its them who doesn't want to hear about our fears of our child dying. I try to only think about the here and now. If I go further it freaks me out. I want my children to be happy and enjoy life. We show them strength by getting up day in and day out and doing all these damn treatments. My husband doesn't. I do it with a smile because they don't want to do it but I must make them. Its hard being the MEAN one, but its a role I am mastering. Don't beat yourself up for being down. You're right. I know that there is no one to talk to thats why we are all here. Husbands hide, family/friends don't really want to hear our concerns about death - they say " THEY WILL FIND A CURE " ...there is a sale at..... We are here for you--we do understand and respect you for talking about it. That is strength - not avoiding it! Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
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