Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 This has been an issue for us too.We do know my daughter at 3 was exposed in the hospital by a cancer patient(not even a child but on the kids floor).Rebekah has been on Ibuprofin , and she takesZithromax every other day.She also has used Cipro.When Rebekah was first sick with cepacia she had to be readmitted 5 weeks after she had been in for a tune up(she was turning blue and grey around her mouth when we would lay her back.I am scared by cepacia's growth and ability to change but I have put the fear in it's place by learning as much as possible.Bcepacia is used as a fertilizer on farms it is in the air ,water ,dirt it is everywhere.If you want some items to read let me know and I will send the links to the info I have .My Best to You and Yours.BeckyB.Mama to 8-2w/cf-Nana to 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2003 Report Share Posted October 2, 2003 I have a question about cepacia. My son has just cultured this (twice). I hear about the infection control issues and cross- contamination but we have not been around any other CF people outside of the hospital and he is the 1st in his clinic to culture cepacia. If it isn't cross-contamination how does a person contract cepacia. This has been very sary because we have already began tosee the decline in PFT's and the lack of antibiotic help. We spent 5 weeks on antibiotics with no improvement. Quote Link to comment Share on other sites More sharing options...
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