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question on cepacia

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This has been an issue for us too.We do know my daughter at 3 was exposed in

the hospital by a cancer patient(not even a child but on the kids

floor).Rebekah has been on Ibuprofin , and she takesZithromax every other

day.She also has

used Cipro.When Rebekah was first sick with cepacia she had to be readmitted

5 weeks after she had been in for a tune up(she was turning blue and grey

around her mouth when we would lay her back.I am scared by cepacia's growth and

ability to change but I have put the fear in it's place by learning as much as

possible.Bcepacia is used as a fertilizer on farms it is in the air ,water

,dirt it is everywhere.If you want some items to read let me know and I will

send

the links to the info I have .My Best to You and Yours.BeckyB.Mama to

8-2w/cf-Nana to 2

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I have a question about cepacia. My son has just cultured this

(twice). I hear about the infection control issues and cross-

contamination but we have not been around any other CF people

outside of the hospital and he is the 1st in his clinic to culture

cepacia. If it isn't cross-contamination how does a person contract

cepacia. This has been very sary because we have already began

tosee the decline in PFT's and the lack of antibiotic help. We

spent 5 weeks on antibiotics with no improvement.

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