Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Robin, I think every person in this group would answer yes to your question. I quit my job when this all started because I didn't think it was fair to my employers that I was so unreliable. I think they would have fired me not too long after I quit and the sad part was that it all started a couple of weeks after I started working there..I lasted 3 months and was actually only at work for about one of those months..a few days here a few days there. I do thank my lucky stars that this all happened after I got married and have a husband that didn't want me to work anyway, because had I been living back in my own country and single, I would have had to go bankrupt to survive. I wouldn't have lost my job (in australia, they are more considerate to the human being in most companies)..they would have just hired a temp or advertised my position as a temporary to possible permanent position if I came back or resigned. I hate the fact that this illness does rule my life, not so much now, but how it did before..even to the point where I couldn't think of getting into the car and driving any place in case I had an attack. Couldn't do the grocery shopping, not able to play with my little girl, and the worst part..having her to only be able to visit me for a couple of hours in hospital for 2 months straight and oh how it hurt when she screamed and didn't want to stay with mummy then. Even though for the time being I am pain free, and hope to be for a long long time, I am scared to return to work if I so choose, because I don't want to feel like a burden to them if these attacks happen again. I know I wouldn't get the job if I told them outright about my illnesses, but if I didn't say anything, would feel so guilty about not telling them if something happened. Could the work they give you now be done at home? If it could, you might be able to increase your data entry workload, to help give you some sense of worth in the workforce and not have to deal with an unsympathetic supervisor. Iwould give anything to find work that I could do at home, but I don't know how to go about finding a place that holds legitimate work at home jobs.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Dear Robin, Even though I've been out of the workforce for several years, and now work for myself, I can and do understand what you are feeling. You need right now to be somewhere where you can have a feeling of self-worth, and you just aren't getting it where you are right now. This is just my personal opinion, and you certainly don't have to agree with me, and I won't be offended if you don't. That's just the way I see it. You've proved yourself a dozen times over what your abilities are at your present workplace, but your superior isn't using them. It looks to me like she isn't going to recommend you for any more challenging opportunities, or for any chance of upward movement. Why not go for the other position as a paralegal? Yes, you may have an attack again, but you could just as easily have one where you are. Would it be any different if it where there at the new job, or where you are now? Would there be a loss of benefits or something like that that I'm not aware of? There may be a lot of reasons, pro and con, that I'm not aware of, and please correct me, if so. I just think it's a shame that you should be stuck somewhere where your skills aren't being used to full advantage and at a place that makes you so unhappy and unfulfilled every day. That's such a negative environment for you. I know our CP is very unpredictable and the threat of attacks is constantly hanging over our heads. I'm personally trying really hard not to let that fear stand in the way of my doing things that I really want or need to do. Don't worry, I'm not talking about climbing Mt. Everest!! I told my husband just the other day that I was going to do something I wanted to do, in spite of the fact that he was saying, " but you could have an attack " . If I let that fear stop me every time, I'd end up doing nothing for the rest of my life, and that's not the way I want to live. Others might think I'm foolish, but I'm willing to take the gamble on some things if I think it's going to bring me happiness or fulfillment. So put me in my place if I'm suggesting something that really isn't feasible for you for other reasons, but I personally think you'd be much happier working somewhere else where your professional abilities were acknowledged and utilized. Please understand that I'm trying to be supportive in my comments. We can't live our whole lives always fearful of that next attack, since that is something we really have no control over and we NEVER know when the next one is, or isn't coming. Go for the best that you can get while you can get it! That's my opinion...you can delete it or keep it. With love, hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 THANK YOU everyone for your kind and supportive messages. It was a load off just to write it down, then further to talk with my counselor last night. There is no doubt that I will leave this job, as soon as the right opportunity arrives. The job that I had been offered was a little too much turn and burn, I don't want to jump from the frying pan into the fire, but knowing that all I'm doing is putting in my time until something better comes along takes away all my expectations that things will be different. Fortunately, my husband works very hard and if I had to take a cut in pay that is secondary to being happy. Insurance is always an issue, but I have always been taken care of, and I know He won't let me down now! Thanks again everyone. As stated before, but never enough, this group is so crucial to my emotional and mental well-being. I love you all! Robin R. Sr. Production Planning Specialist * (ext. 102) * (fax) robin.cox@... -------------------------------------------------------- This e-mail and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. If you have received this e-mail in error please notify the system manager: postmaster@... This e-mail and its attachments have been scanned for the presence of computer viruses, however it is always advisable to run a virus check on e-mails and attachments before opening them. -------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I also had to end up going on disability or end up getting fired when I became so unreliable. Accurancy and memory were two very necessary parts of my job and when both started to go, I had to seriously think about going on disabiliy and I just couldn't continue to do a bad job and so I ended up going on disability in Jan 2003. I keep busy at home by going online and also doing cross-stitch and beadwork when I feel the need to do something, which is most days. I wish I could be more help, but feel free to vent anytime you need to. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I am going through the exact same thing you went through in regards to memory and accuracy in a job that requires those, may I ask a personal question and what did you officially go on disability for. My insurance co I think is balking at putting me back on disability for these reasons. I understand if you do not answer-thks Beaumont Courtice, Ontario Canada Re: Re: VENT I also had to end up going on disability or end up getting fired when I became so unreliable. Accurancy and memory were two very necessary parts of my job and when both started to go, I had to seriously think about going on disabiliy and I just couldn't continue to do a bad job and so I ended up going on disability in Jan 2003. I keep busy at home by going online and also doing cross-stitch and beadwork when I feel the need to do something, which is most days. I wish I could be more help, but feel free to vent anytime you need to. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. _____ Quote Link to comment Share on other sites More sharing options...
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