Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Thanks Rosemary - you hit all the points right on the nose. Especially showing our children strength by carrying on with our days/lives. Good luck, e - we're all rooting for you! On Monday, September 29, 2003, at 10:00 PM, ROSEMARY3FOR3wCF@... wrote: > e - we all feel like you do at times. Its so hard to pick > yourself up > but you will! Sometimes we need to feel awful - if that makes sense. > > Concentrate on the positive - 1. we learned all those stupid > beautitudes are > BS (i.e. we all have our cross to bear, God only gives us what we can > handle, > etc.) 2. at least with a diagnosis your child is getting proper > treatment(s). Our CF Dr. - who retired - said once when we questioned > all the meds - > years ago kids died now they live longer - due to meds! > 3. we are so much smarter than your average bear. > > I know exactly what you mean about your husband. Men want to FIX > things. > They can't fix this so they hide! We need to talk - no one wants to > hear it so > everyone says " don't worry she'll be fine " ...its them who doesn't want > to hear > about our fears of our child dying. I try to only think about the > here and > now. If I go further it freaks me out. > > I want my children to be happy and enjoy life. > > We show them strength by getting up day in and day out and doing all > these > damn treatments. My husband doesn't. I do it with a smile because > they don't > want to do it but I must make them. Its hard being the MEAN one, but > its a > role I am mastering. > > Don't beat yourself up for being down. You're right. I know that > there is > no one to talk to thats why we are all here. Husbands hide, > family/friends > don't really want to hear our concerns about death - they say " THEY > WILL FIND A > CURE " ...there is a sale at..... > > We are here for you--we do understand and respect you for talking > about it. > That is strength - not avoiding it! > > Rosemary in NY with 3 children (13, 10.6 and 6.6) > with CF. I have a dog named TOBI and have > coined the phrase " BREATHE DAMMIT " > > > Quote Link to comment Share on other sites More sharing options...
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