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Thanks Rosemary - you hit all the points right on the nose. Especially

showing our children strength by carrying on with our days/lives.

Good luck, e - we're all rooting for you!

On Monday, September 29, 2003, at 10:00 PM, ROSEMARY3FOR3wCF@...

wrote:

> e - we all feel like you do at times.  Its so hard to pick

> yourself up

> but you will!  Sometimes we need to feel awful - if that makes sense.

>

> Concentrate on the positive - 1.  we learned all those stupid

> beautitudes are

> BS (i.e. we all have our cross to bear, God only gives us what we can

> handle,

> etc.) 2.  at least with a diagnosis your child is getting proper

> treatment(s).  Our CF Dr. - who retired - said once when we questioned

> all the meds -

> years ago kids died now they live longer - due to meds!

> 3.  we are so much smarter than your average bear.

>

> I know exactly what you mean about your husband.  Men want to FIX

> things. 

> They can't fix this so they hide!  We need to talk - no one wants to

> hear it so

> everyone says " don't worry she'll be fine " ...its them who doesn't want

> to hear

> about our fears of our child dying.  I try to only think about the

> here and

> now.  If I go further it freaks me out.

>

> I want my children to be happy and enjoy life.

>

> We show them strength by getting up day in and day out and doing all

> these

> damn treatments.  My husband doesn't.  I do it with a smile because

> they don't

> want to do it but I must make them.  Its hard being the MEAN one, but

> its a

> role I am mastering.

>

> Don't beat yourself up for being down.  You're right.  I know that

> there is

> no one to talk to thats why we are all here.  Husbands hide,

> family/friends

> don't really want to hear our concerns about death - they say " THEY

> WILL FIND A

> CURE " ...there is a sale at.....

>

> We are here for you--we do understand and respect you for talking

> about it.  

> That is strength - not avoiding it!

>

> Rosemary in NY with 3 children (13, 10.6 and 6.6)

> with CF.  I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

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