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Hi everyone,

Could any of you tell me if your kids ever get the " common cold " ????

started with a cough about 3 weeks ago, he started on Cipro and ended

after 14 days on Tuesday. On Wednesday we started Zithromax again, he is on

this 3 times a week as a preventative. Wednesday night while he was sleeping he

started with a wet cough again. I called the CF center Thursday morning,

finally got ahold of the fellow Thursday evening. He said that we were going to

start Augmentin, Cipro is a good drug but maybe it missed something. (Oh yeah,

and the treatments have been increased for the duration, the vest twice a day

and manual cpt when he is in school. Luckily his nurse is wonderful.) If

the cough isnt better by Saturday then call and bring him in to be seen.

Well the cough is worse, so I call the fellow on call this morning, tell him

everything that he has been through the past month, he says ok bring him in,

he calls the ER and tells them to expect him. After reiterating everything

again, I am told that he has a common cold, bring him home and continue the

Augmentin, it could be viral so the antibiotics wont help. So being a mom I ask

" if its viral and the antibiotics wont help then why would I keep giving him the

antibiotics " , know what I was told, " it may be bacterial so keep giving

them " , I told her that made no sense at all, then the resident asked if I wanted

to talk to the attending again. I told her I wanted to talk to somebody that

knew what the hell they were talking about, but I was sure there wasnt anyone

around who fulfilled that requirement. I asked her if she realized that he had

cystic fibrosis, and that he doesnt get a common cold. I was told, " I

sympathize with you, and I am sure you are frustrated " yeah that made

better.

I told her that this happens every year at this time and he ends up in the

hospital. And here we are, at home again.

So my question is this, have any of your kids just had a " common cold " , am I

just overreacting, or should I assume that I know what I am talking about and

believe that they are just people who should find a new profession?????

Thanks for listening,

, mommy of 4, 4 wcf

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Yes, Savannah does get the common cold. What is so frustrating is that after the

10 day wait she now has a bacterial infection as well. Our Dr. will wait 10 days

before running any test to make sure it's not viral. At this time in her care we

don't do any preventive antibiotics because he would like to see if Savannah

immune system will kick in. I know it's very frustrating. I'll keep you in our

prayers.

Mom to 2 w/o CF and Savannah w/CF

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Hi ,

My twins have gotten common colds, and they actually

tend to do better with them than I do. They're usually

gone in about 3 days. That said, however, I NEVER

take colds for granted, since they can end up as

pneumonia, or lead to dehydration, so easily in our

kids.

Whenever Mick or Alli get any cold symptoms,

I march them over to their pediatrician for a throat

culture to make sure they aren't growing anything

bacterial. They get their ears checked, a sputum

sample, and are usually sent off with some antibiotic

like cipro or augmentin, just in case, and then

if they do grow out something, like pseudomonas,

they get the appropriate antibiotic at that time.

Otherwise, if it's viral, we give them plenty of

extra fluids, plenty of rest, treat symptoms with

children's tylenol and motrin, and wait it out.

Don't accept a shrug and a guess that it's viral.

Make sure they do either a throat culture, or if

your cf center does them, a blood test, for bacterial

infections. Some places even do broncoscopies, but

I'm not sure when they consider that procedure

appropriate.

What you can do now is give tons of extra fluids

anyway. You'd be surprised at how often dehydration

can creep up on your cf child and knock them out with

severe symptoms like fevers and listlessness, when

they only started out with a " common cold " .

Good luck to you and I hope is feeling better

soon.

C

Mommy to Mick and Alli, 3.5 yo twins wcf

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,

a my 10 year old with cf, does get the common cold, but her

doctor will put her on Cipro or Augmentin, before it goes the

bacterial way. Because is viral it takes her longer to get better,

meaning the virus has to run its course. I would like to point out

that Zithromax is not being given to act as an antibiotic but rather

as an anti-inflamatory agent.

Another thing that I would like to tell you is that I hate ER's, even

before a was diagnosed the only times that I took one of my kids

to the ER, was when Venanzio my 7 year old no cf, fell and hurt his

head, another time he hurt his leg and yet another time he busted his

chin. My theory is that not only I have to see a resident doctor but

it is a place that is full of sick kids therefore I will most likely

be exposing my kid to other ills. I feel like ER's are no place for

kids with cf.

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> Hi everyone,

>

> Could any of you tell me if your kids ever get the " common cold " ????

> started with a cough about 3 weeks ago, he started on Cipro

and ended

> after 14 days on Tuesday. On Wednesday we started Zithromax again,

he is on

> this 3 times a week as a preventative. Wednesday night while he

was sleeping he

> started with a wet cough again. I called the CF center Thursday

morning,

> finally got ahold of the fellow Thursday evening. He said that we

were going to

> start Augmentin, Cipro is a good drug but maybe it missed

something. (Oh yeah,

> and the treatments have been increased for the duration, the vest

twice a day

> and manual cpt when he is in school. Luckily his nurse is

wonderful.) If

> the cough isnt better by Saturday then call and bring him in to be

seen.

> Well the cough is worse, so I call the fellow on call this morning,

tell him

> everything that he has been through the past month, he says ok

bring him in,

> he calls the ER and tells them to expect him. After reiterating

everything

> again, I am told that he has a common cold, bring him home and

continue the

> Augmentin, it could be viral so the antibiotics wont help. So

being a mom I ask

> " if its viral and the antibiotics wont help then why would I keep

giving him the

> antibiotics " , know what I was told, " it may be bacterial so keep

giving

> them " , I told her that made no sense at all, then the resident

asked if I wanted

> to talk to the attending again. I told her I wanted to talk to

somebody that

> knew what the hell they were talking about, but I was sure there

wasnt anyone

> around who fulfilled that requirement. I asked her if she realized

that he had

> cystic fibrosis, and that he doesnt get a common cold. I was

told, " I

> sympathize with you, and I am sure you are frustrated " yeah that

made better.

> I told her that this happens every year at this time and he ends

up in the

> hospital. And here we are, at home again.

>

> So my question is this, have any of your kids just had a " common

cold " , am I

> just overreacting, or should I assume that I know what I am talking

about and

> believe that they are just people who should find a new

profession?????

>

> Thanks for listening,

> , mommy of 4, 4 wcf

>

>

>

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In a message dated 10/6/2003 12:07:41 AM Central Daylight Time,

jacesjoggers@... writes:

When you child gets a cold with a cough you should ask for a throat culture.

They will test to see if there is pseudomonas or any other bacteria that is CF

related. Then they will treat what is necessary. Yes, kids with CF get common

colds. But if there is a bacteria on the throat culture it is CF related.

Hope this helps Deb A

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I really wish they would do some preventive measures .He doesn't think that

CF is going to go away too.......immune defiencey is part of it. Bless your

heart.. I will hold you & your family, especially dear Savannah , in my

" special " thoughts

Love & hugs,

GrandmomBEv

Re: 's " common cold "

Yes, Savannah does get the common cold. What is so frustrating is that after

the 10 day wait she now has a bacterial infection as well. Our Dr. will wait

10 days before running any test to make sure it's not viral. At this time in

her care we don't do any preventive antibiotics because he would like to see

if Savannah immune system will kick in. I know it's very frustrating. I'll

keep you in our prayers.

Mom to 2 w/o CF and Savannah w/CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Hi ,

The only time has ever gotten a " common cold " she has ended up in the

hospital. A certain pulmonary fellow (who is now rather good with kids and

parents) told me in a rather condescending tone that " well, CF kids get colds

just like everyone else " I called 's CF doc the next day because I knew

this was getting to be more than just a cold. follow your instincts.

Mom of who will be 5 on Friday

's " common cold "

Hi everyone,

Could any of you tell me if your kids ever get the " common cold " ????

started with a cough about 3 weeks ago, he started on Cipro and ended

after 14 days on Tuesday. On Wednesday we started Zithromax again, he is on

this 3 times a week as a preventative. Wednesday night while he was sleeping

he

started with a wet cough again. I called the CF center Thursday morning,

finally got ahold of the fellow Thursday evening. He said that we were going

to

start Augmentin, Cipro is a good drug but maybe it missed something. (Oh yeah,

and the treatments have been increased for the duration, the vest twice a day

and manual cpt when he is in school. Luckily his nurse is wonderful.) If

the cough isnt better by Saturday then call and bring him in to be seen.

Well the cough is worse, so I call the fellow on call this morning, tell him

everything that he has been through the past month, he says ok bring him in,

he calls the ER and tells them to expect him. After reiterating everything

again, I am told that he has a common cold, bring him home and continue the

Augmentin, it could be viral so the antibiotics wont help. So being a mom I

ask

" if its viral and the antibiotics wont help then why would I keep giving him

the

antibiotics " , know what I was told, " it may be bacterial so keep giving

them " , I told her that made no sense at all, then the resident asked if I

wanted

to talk to the attending again. I told her I wanted to talk to somebody that

knew what the hell they were talking about, but I was sure there wasnt anyone

around who fulfilled that requirement. I asked her if she realized that he

had

cystic fibrosis, and that he doesnt get a common cold. I was told, " I

sympathize with you, and I am sure you are frustrated " yeah that made

better.

I told her that this happens every year at this time and he ends up in the

hospital. And here we are, at home again.

So my question is this, have any of your kids just had a " common cold " , am I

just overreacting, or should I assume that I know what I am talking about and

believe that they are just people who should find a new profession?????

Thanks for listening,

, mommy of 4, 4 wcf

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,

Our son is almost 4 years old and I, too, struggle during the fall and spring

with the " cold " issue. Our son has seasonal allergies and I really struggle

with is it a cold or just allergies. Have they ruled out seasonal allergies for

your son? My son's allergies don't always respond well to allergy meds and he

always has a nasty sounding cough. Our CF Clinic is recommends with a cold that

we increase clapping and breathing treatments to 3 times a day vs twice a day

and that we treat the cold symptoms. Since antibiotics won't cure a cold they

don't prescribe antibiotics until we see worsening signs such as running a fever

for several days, lack of appetite, being crabby or significant inability to

sleep. As frustrating as it is, it I have to admit that if we see these signs

of getting worse and then start the antibiotics we usually start seeing

immediate signs of improvement. The clinic's thoughts are a virus needs to run

its course, but if a bacterial infection is starting then we want to start

treating it as soon as possible. We have made the decision that this winter

when we start cold season we will discuss using pulmozyme. The Clinic's

thoughts are that with a cold we may need to be more aggressive on getting the

mucus thinned out and moved out, making the environment for a bacterial

infection less inviting.

That all said, last spring was the worst one we've had. We went from a cold in

mid-February on to ear infections, croup, ear infections, roto virus and then

allergy season. It seemed like he had something, back to back, from

mid-February until May. I was incredibly frustrated (and tired) and he was

getting so run down I could tell he felt pretty miserable. Fortunately, I'm

able to stay home with him, so I kept him home a lot during the end of April

through May so that he could get plenty of rest and get his system built back up

before being exposed again. He started to lose weight the beginning of May and

I know if we hadn't been able to turn that around quickly, we would have been

hospitalized. I scared of the coming cold/flu season and already frustrated

because his allergies are so bad - if you get any wonderful pieces of advice,

please pass them on. Some days I wonder how we'll ever get him through school.

Good luck,

's " common cold "

Hi everyone,

Could any of you tell me if your kids ever get the " common cold " ????

started with a cough about 3 weeks ago, he started on Cipro and ended

after 14 days on Tuesday. On Wednesday we started Zithromax again, he is on

this 3 times a week as a preventative. Wednesday night while he was sleeping

he

started with a wet cough again. I called the CF center Thursday morning,

finally got ahold of the fellow Thursday evening. He said that we were going

to

start Augmentin, Cipro is a good drug but maybe it missed something. (Oh yeah,

and the treatments have been increased for the duration, the vest twice a day

and manual cpt when he is in school. Luckily his nurse is wonderful.) If

the cough isnt better by Saturday then call and bring him in to be seen.

Well the cough is worse, so I call the fellow on call this morning, tell him

everything that he has been through the past month, he says ok bring him in,

he calls the ER and tells them to expect him. After reiterating everything

again, I am told that he has a common cold, bring him home and continue the

Augmentin, it could be viral so the antibiotics wont help. So being a mom I

ask

" if its viral and the antibiotics wont help then why would I keep giving him

the

antibiotics " , know what I was told, " it may be bacterial so keep giving

them " , I told her that made no sense at all, then the resident asked if I

wanted

to talk to the attending again. I told her I wanted to talk to somebody that

knew what the hell they were talking about, but I was sure there wasnt anyone

around who fulfilled that requirement. I asked her if she realized that he

had

cystic fibrosis, and that he doesnt get a common cold. I was told, " I

sympathize with you, and I am sure you are frustrated " yeah that made

better.

I told her that this happens every year at this time and he ends up in the

hospital. And here we are, at home again.

So my question is this, have any of your kids just had a " common cold " , am I

just overreacting, or should I assume that I know what I am talking about and

believe that they are just people who should find a new profession?????

Thanks for listening,

, mommy of 4, 4 wcf

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In a message dated 10/6/2003 7:18:29 PM Central Daylight Time,

kevinrsot@... writes:

When my girls start getting a cold I use the cold ezzz drops they have zinc

in them. They help to shorten a common cold. I just had a cold and it was gone

in 3 days. There is two other girls at my shop that got colds over the weekend

too and they couldn't figure out how mind went away so fast and they were

still fighting theirs the next week. I take the drops as soon as I feel like a

cold coming on and I take extra vitamin C. It helps me. Deb A

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That is very smart It is much easier to rid something when you start earlier

& your recipe

is such a good one. thanks for sharing .maybe the others need to try .

Have a super week

LOVE & HUGS, GrandmomBEV

Re: 's " common cold "

In a message dated 10/6/2003 7:18:29 PM Central Daylight Time,

kevinrsot@... writes:

When my girls start getting a cold I use the cold ezzz drops they have zinc

in them. They help to shorten a common cold. I just had a cold and it was

gone

in 3 days. There is two other girls at my shop that got colds over the

weekend

too and they couldn't figure out how mind went away so fast and they were

still fighting theirs the next week. I take the drops as soon as I feel like

a

cold coming on and I take extra vitamin C. It helps me. Deb A

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