is update, Asthma and Zithromycin questions and Thank yous

[Guest guest]

Hi,

First I want to thank everyone who sent is cards while she was in the

hospital. She was so excited to get mail on a daily basis. Also to everyone

who answered all my questions about home IV's. I have printed off all the

information and have saved it for later reference. We didn't come home on IV's.

is was in for ten days. The doctors are saying it was more asthmatic than

CF. The question is she came home on Tuesday and still has a bit of cough.

With Asthma does the cough seem to linger and if so how long can it go on for?

is is normally coughfree and having asthma has made things more difficult.

Her doctor started her on pulmicort. We are also starting on Monday Zithromycin

on Mon, Weds, and Fri. What results have you seen if any for your children that

are on it? She will be returning to school on Monday and I would love any info

to help keep her healthy. She washes her hands all of the time and Her teacher

tries to keep her from sitting to close to anyone with a cold but she is in

first grade and all of her little friends love to hug. Also you parents out

there with more than one with CF I admire you tremendously. I have no idea how

you keep it altogether. Thanks in advance for any info you can give me.

Dottie

Mom to is 6 with CF and Asthma, Tyler, , and wo/CF

[Guest guest]

Hi Dottie,

Glad to read is is back home. Since she'll be starting

Zithromycin on a maintenance basis, you'll likely want to start her

on a probiotic too, especially since she just fininshed a round of IV

antibiotics. The probiotic will help maintain the normal flora in her

intestines. This is so important.

Also, know that the Pulmocort and Zithromycin will deplete her of

magnesium, which is likely already depleted due to IV antibiotics. So

if she's not taking a magnesium supplement, now is the time to start.

This is probably the reason you're seeing asthma symptoms (wheezing,

continued coughing) after hospital intervention. I wouldn't be

surprised if her PFT scores were now a bit lower even after

antibiotics instead of higher. People with asthma routinely test

lower in magnesium than people without asthma, but when you correct

magnesium deficiency, then bronchoconstriction resolves.

We use Solgar amino acid chelate (magnesium glycinate) because it has

a higher bioavailability (reaches the cells) than other forms of

magnesium. I'm still waiting to hear when and IF the Florida CF

Pharmacy will be able to carry it. I thought they were going to, then

got a call that they couldn't, then another call saying they're still

looking. In the meantime, here's a link for it at a very good price:

http://www.houseofnutrition.com/m1.html

The tablets are large, and I realize she's just six. But you can cut

the tablets into halves, thirds, or fourths if necessary. I'd give

her at least two each day (in divided doses), three when symptoms are

very high, along with a good quality, complete multivitamin/mineral.

If you're only relying on ADEKs, it's an incomplete vitamin and won't

fulfill the minimum daily requirements of vitamins or minerals.

Also, don't give magnesium or any minerals at the same time as

antibiotics. The two compete for the same receptor site on cells and

minerals usually beat out the antibiotics. Take vitamins/minerals

early in the day, or throughout the day, and give her the Zithromycin

at night. However you choose to do it, be sure you have a 2-hour

window: take magnesium no sooner than 2 hours after last antibiotic.

Best to you,

Kim

--- " Dottie " <jedo@a...> wrote:

> Hi,

> First I want to thank everyone who sent is cards while she was

in the hospital. She was so excited to get mail on a daily basis.

Also to everyone who answered all my questions about home IV's. I

have printed off all the information and have saved it for later

reference. We didn't come home on IV's. is was in for ten

days. The doctors are saying it was more asthmatic than CF. The

question is she came home on Tuesday and still has a bit of cough.

With Asthma does the cough seem to linger and if so how long can it

go on for? is is normally coughfree and having asthma has made

things more difficult. Her doctor started her on pulmicort. We are

also starting on Monday Zithromycin on Mon, Weds, and Fri. What

results have you seen if any for your children that are on it? She

will be returning to school on Monday and I would love any info to

help keep her healthy. She washes her hands all of the time and Her

teacher tries to keep her from sitting to close to anyone with a cold

but she is in first grade and all of her little friends love to hug.

Also you parents out there with more than one with CF I admire you

tremendously. I have no idea how you keep it altogether. Thanks in

advance for any info you can give me.

> Dottie

> Mom to is 6 with CF and Asthma, Tyler, , and wo/CF

>

>

>