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Re: Digest Number 2831

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  • 6 months later...
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Sonja,

I feel the same as you as my life is now so limited.

Can't drive anymore (family won't let me!!), friends

leave me off of their invite lists as I am so

unpredictable: I never know if I can make it to any

event or " appointment " until it is time to go there.

So, I understand about getting tickets in advance of

an event. Will I be well that time or not? I am also

so ill with pain and other effects from my CP that I

spend veery little time out of bed or going anywhere.

I can't get too many people to visit me at MY home as

they are either " tooo busy " or just tired of seeing me

as I deteriorate over time. My 10th anniversary of the

beginning a 9-month, almost fatal, stay in the

hospital for severe acute pancreatitis, a Whipple, and

then having PC after surgery. I know your frustration

and sense of paralysis. I get out of the funk every

now and then, but it is hard to escape when one's

whole life is dictated not by one's own desires and

dreams but by a damned illness. So, I empathize with

you and your frustration.

Take care of yourself and keep doing as best as you

can.

Anyse

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