Chrissy

[Guest guest]

Hey there,

I'm sorry about the disappointment from the doc. I know what you're

feeling. I went through the same song & dance about what was causing

my cp, & I think being nurses, it makes it harder to accept a no

answer answer. I am concerned about you not being able to work,

since nursing is something that is so important to you. Do you think

maybe you could find something in the nursing field that wouldn't be

so physically hard on you body? If nursing meant to me what is does

to you, I would've looked into other possibilities, but I was so

burned out in just 2 years that I found no joy in the nursing

profession at all. I don't know if this helps, especially as

quickly as things deteriorated for you, but I'm am somewhat relieved

that the docs aren't frantic to do something. I know the limbo of

not knowing is bad enough, but if there's a bright side, maybe it's

that you're not so sick that you're in the ICU. I can't even imagine

what tube feedings are like, & it seem so unfair since eating food is

one of the pleasures we enjoy in life. I want to tell you to be

totally compliant with the feedings, but that's the nurse in me

talking. I don't know if I could even be as gracious as you are if I

had a tube.

You know how much I care about you, Chrissy, so you e-mail me if you

want to vent or anything. You're in my prayers, as always.

Love you BIG!

Deanna Tubb

New Mexico PAI Rep