Re: Supplements etc; eczema

[Guest guest]

None of us are SCD - yet. I am the closest to it in the family. But

I am preparing & learning to switch everyone in stages.

I use the ProBio Gold without inulin; sorry I wasn't more specific.

I use BarleyMax & did not see it anywhere as legal or illegal. It is

a highly misunderstood supplement, & is completely gluten free. I'm

still not sure if SCD legal, but it's helped me & the kids quite a

bit. However, anything would need to be checked for others usage

which I would assume they would be doing.

BTW, I was not recommending anything except the CLO & the cream,

which I said would have to be checked. So I don't think I've caused

any trouble, if one was reading carefully. I was asked a direct

question as to what I did & what we use that helped my baby's eczema

& I answered truthfully in hopes of helping someone. Perhaps I

should have just answered privately & will do so from now on.

I do think people have the right to informed answers & to search out

the answers & figure out whether it's right for themselves. That's

something we all have to do for our kiddos & ourselves.

Michele

>

> First of all.... I need to remind all of you to please remember to

trim your posts. Sometimes you might reply to a LONG string of other

replies... when you don't need to leave all that hanging on to the

bottom of your message. This really CLOGS up the digest for those

list members that get the list in that form... so PLEASE TRIM!!! (If

you don't know how, just write to me off list... durovchic@... ).

>

> Secondly....Michele, I'm getting a little bit confused here

because you are listing some supps that are illegal on SCD. Are you

giving these to one of your kids that is NOT on SCD?? This can be a

bit confusing for some of the other list members with a list this

big (2500+), so I need to be clear that the following are illegal:

>

> <<ProBio Gold>> (contains inulin)

> <<BarleyMax green supplement>>

>

> If you guys are conversing mainly about eczema, and are referring

to some of your kids who are not on SCD, then please continue the

discussion off list. I know it's a big concern, but it's sort of

drifting off topic. Thanks!

>

> Patti

>

[Guest guest]

Started the fish oil this morning. Will give it a week or two to see if

that alone does it. If not, I'll cut the other stuff.

Meleah

Supplements etc

>> >> >>

>> >> >>

>> >> >> > I've been noticing the illegal & legal supplement list. I

>> > haven't

>> >> >> > gone through everything yet, but I noticed Brainchild is

>> >> > illegal. We

>> >> >> > use the II unflavored minerals & vitamins & have quite a

> bit

>> >> > stored

>> >> >> > right now that was very expensive. Is it that bad to use &

>> > what

>> >> > is

>> >> >> > wrong with it? It will take us a while to finish it & it

> was

>> > so

>> >> > $$ I

>> >> >> > can't just not use it.

>> >> >> >

>> >> >> > I didn't notice the Kirkman's milk thistle on either list,

> is

>> > it

>> >> >> > allowed?

>> >> >> >

>> >> >> > What about Transfer Factor? This has been so beneficial to

>> > all of

>> >> >> > us, especially the baby, that I can't imagine not using it.

>> > The

>> >> > baby

>> >> >> > was getting horribly ill & this improved his health

> markedly.

>> >> >> >

>> >> >> > Also, we use a mint flavored CLO from Green Pastures (there

>> > are

>> >> >> > other flavors). Is this going to be allowed? My autistic

> son

>> > does

>> >> >> > not get it but 3 of us do; it made an incredible healing

>> >> > difference

>> >> >> > in the baby's eczema.

>> >> >> >

>> >> >> > My 2nd son gets Coremega which I noticed is illegal. His

>> > Spectrum

>> >> >> > Complete is illegal too, as is my daughters Kirkman's

>> > chewables.

>> >> >> >

>> >> >> > What EFAs do you all use?

>> >> >> >

>> >> >> > What multi's do you all use? It's been *very* difficult

>> > finding a

>> >> >> > multi for my 2nd & 3rd child (I don't use Brainchild for

> them;

>> >> > too

>> >> >> > $$).

>> >> >> >

>> >> >> > Also, my daughter is almost impossible to get vits into,

> but

>> > if

>> >> > she

>> >> >> > doesn't get them she is weaker & gets sick easier ( &

> passes it

>> >> >> > along). She does not like nut milks. I just started mixing

> her

>> >> > vits

>> >> >> > in a little bit of natural juice mix & she's drinking it

> right

>> >> > down.

>> >> >> > If I have to stop that I don't know how to get them into

> her.

>> > I

>> >> >> > noticed apple juice is not legal, but some other juices

> are.

>> > It's

>> >> >> > kind of a tropical juice mix by Ceres that I've been using.

>> > Most

>> >> >> > juices have some apple juice in them; it's the last

> ingredient

>> >> > along

>> >> >> > with pear juice in this one. Is this acceptable or not for

> the

>> >> >> > little she gets everyday?

>> >> >> >

>> >> >> > My son drinks almond milk, but unfortunately it's the boxed

>> > kind

>> >> >> > (Pacific). I'm not really sure I'm up to making almond

> milk;

>> > he

>> >> >> > drinks so little too. Sometimes he uses it in cereal.

>> >> >> >

>> >> >> > The baby ( & everyone but me) is getting ProBio Gold. I

> assume

>> > the

>> >> >> > inulin free is okay?

>> >> >> >

>> >> >> > I noticed Sacc B is not okay, & the baby is getting that

> too.

>> > It

>> >> >> > seems to have helped him & I'm concerned he'll have issues

> if

>> > I

>> >> > take

>> >> >> > it away.

>> >> >> >

>> >> >> > Another topic: He's not really eating much yet & is such a

>> >> > sensitive

>> >> >> > allergy kiddo. Has anyone implemented SCD on a baby just

>> > starting

>> >> >> > solids?

>> >> >> >

>> >> >> > Sorry for the multitude of questions; I'm trying not to be

>> >> >> > overwhelming or too overwhelmed! I just want to know what's

>> >> > coming.

>> >> >> > Perhaps I can do this in stages, but as we run out of

> certain

>> >> > vits,

>> >> >> > I can start replacing them if I have good alternatives.

>> >> >> >

>> >> >> > Thanks,

>> >> >> > Michele

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> > For information on the Specific Carbohydrate Diet, please

> read

>> >> > the book

>> >> >> > _Breaking the Vicious Cycle_ by Elaine Gottschall and read

>> > the

>> >> > following

>> >> >> > websites:

>> >> >> > http://www.breakingtheviciouscycle.info

>> >> >> > and

>> >> >> > http://www.pecanbread.com

>> >> >> >

>> >> >> >

[Guest guest]

OK, glad to hear they make an inulin-free version. I was just going by our list

on the website.

The BarleyMax... I'm not saying it's illegal.... I don't have the power to do

that, but...

Here's a comment Elaine made about another product that contains powdered wheat

grass and barley grass juices:

<<* Grasses in this instance are not compliant, because we have no idea how well

they were sprouted or if the seed coating was included in the product. >>

Here's the ingredients in BarleyMax:

<<Ingredients: Powdered juice from young, organically grown barley leaves and

organically grown alfalfa. >>

I'll defer to Mimi... or someone else on that. I think it's probably something

that would have to be an individual choice, but sort of in that " grey area " ...

where we really couldn't recommend it. If it has helped you, I'm glad..... but

once you're actually on SCD, I don't want anything to impede your progress.

<<BTW, I was not recommending anything except the CLO & the cream,

which I said would have to be checked. So I don't think I've caused

any trouble, if one was reading carefully. I was asked a direct

question as to what I did & what we use that helped my baby's eczema

& I answered truthfully in hopes of helping someone. Perhaps I

should have just answered privately & will do so from now on.>>

I don't have a problem with you all conversing about other stuff for your kids

needs... but this list is just so very huge, with a large e-mail volume. The

list is meant for discussion of SCD and not intended as a forum for " all things

related " to autism, food allergies, supplements, etc. I wish it could be that,

but we just can't.

Sorry, Michele... I really was trying to be gentle about it. (I hate being

moderator..... but need to fill in for Sheila until she returns.) We just truly

have to stick to the topic. Putting all kinds of smiley faces on my " moderator

comments " doesn't always help.... I'm tryin' tho. We're all friends here.

We do have to be very careful about products we type into list e-mails...

because it goes out to soooo many people. You'd be surprised at how some list

members can mis-read and/or misunderstand. We'll get messages back weeks later

regarding some illegal product, saying " But I read it on Pecanbread... so I

thought it was okay " . It's so hard to make sure we're being clear.

Anyway.... I didn't mean to beat you up.

Patti

Re: Supplements etc; eczema

None of us are SCD - yet. I am the closest to it in the family. But

I am preparing & learning to switch everyone in stages.

I use the ProBio Gold without inulin; sorry I wasn't more specific.

I use BarleyMax & did not see it anywhere as legal or illegal. It is

a highly misunderstood supplement, & is completely gluten free. I'm

still not sure if SCD legal, but it's helped me & the kids quite a

bit. However, anything would need to be checked for others usage

which I would assume they would be doing.

I do think people have the right to informed answers & to search out

the answers & figure out whether it's right for themselves. That's

something we all have to do for our kiddos & ourselves.

Michele

>

> First of all.... I need to remind all of you to please remember to

trim your posts. Sometimes you might reply to a LONG string of other

replies... when you don't need to leave all that hanging on to the

bottom of your message. This really CLOGS up the digest for those

list members that get the list in that form... so PLEASE TRIM!!! (If

you don't know how, just write to me off list... durovchic@... ).

>

> Secondly....Michele, I'm getting a little bit confused here

because you are listing some supps that are illegal on SCD. Are you

giving these to one of your kids that is NOT on SCD?? This can be a

bit confusing for some of the other list members with a list this

big (2500+), so I need to be clear that the following are illegal:

>

> <<ProBio Gold>> (contains inulin)

> <<BarleyMax green supplement>>

>

> If you guys are conversing mainly about eczema, and are referring

to some of your kids who are not on SCD, then please continue the

discussion off list. I know it's a big concern, but it's sort of

drifting off topic. Thanks!

>

> Patti

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

,

Even the immulin free is illegal, but use up what you have(obviously) if you

can't return it.

Meleah

Re: Supplements etc; eczema

> None of us are SCD - yet. I am the closest to it in the family. But

> I am preparing & learning to switch everyone in stages.

>

> I use the ProBio Gold without inulin; sorry I wasn't more specific.

>

> I use BarleyMax & did not see it anywhere as legal or illegal. It is

> a highly misunderstood supplement, & is completely gluten free. I'm

> still not sure if SCD legal, but it's helped me & the kids quite a

> bit. However, anything would need to be checked for others usage

> which I would assume they would be doing.

>

> BTW, I was not recommending anything except the CLO & the cream,

> which I said would have to be checked. So I don't think I've caused

> any trouble, if one was reading carefully. I was asked a direct

> question as to what I did & what we use that helped my baby's eczema

> & I answered truthfully in hopes of helping someone. Perhaps I

> should have just answered privately & will do so from now on.

>

> I do think people have the right to informed answers & to search out

> the answers & figure out whether it's right for themselves. That's

> something we all have to do for our kiddos & ourselves.

>

> Michele

>

>

>>

>> First of all.... I need to remind all of you to please remember to

> trim your posts. Sometimes you might reply to a LONG string of other

> replies... when you don't need to leave all that hanging on to the

> bottom of your message. This really CLOGS up the digest for those

> list members that get the list in that form... so PLEASE TRIM!!! (If

> you don't know how, just write to me off list... durovchic@... ).

>>

>> Secondly....Michele, I'm getting a little bit confused here

> because you are listing some supps that are illegal on SCD. Are you

> giving these to one of your kids that is NOT on SCD?? This can be a

> bit confusing for some of the other list members with a list this

> big (2500+), so I need to be clear that the following are illegal:

>>

>> <<ProBio Gold>> (contains inulin)

>> <<BarleyMax green supplement>>

>>

>> If you guys are conversing mainly about eczema, and are referring

> to some of your kids who are not on SCD, then please continue the

> discussion off list. I know it's a big concern, but it's sort of

> drifting off topic. Thanks!

>>

>> Patti

>>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

>

> OK, glad to hear they make an inulin-free version. I was just

going by our list on the website.

>

Yes; I thought that one was okay from the website. It will take me a

while to get this all straight & I'm sure quite a while to get

*everything* here legal.

> The BarleyMax... I'm not saying it's illegal.... I don't have the

power to do that, but...

>

> Here's a comment Elaine made about another product that contains

powdered wheat grass and barley grass juices:

>

> <<* Grasses in this instance are not compliant, because we have no

idea how well they were sprouted or if the seed coating was included

in the product. >>

>

> Here's the ingredients in BarleyMax:

>

> <<Ingredients: Powdered juice from young, organically grown

barley leaves and organically grown alfalfa. >>

>

> I'll defer to Mimi... or someone else on that. I think it's

probably something that would have to be an individual choice, but

sort of in that " grey area " ... where we really couldn't recommend

it. If it has helped you, I'm glad..... but once you're actually on

SCD, I don't want anything to impede your progress.

>

I believe the juicing helped me moreso, but I have been reading

about that here too so that might have to be done cautiously at

first from what it sounds like. I also have to eliminate the apple &

pear I had been mixing in since those are not legal.

Are apples & pears legal if they are cooked?

> <<BTW, I was not recommending anything except the CLO & the cream,

> which I said would have to be checked. So I don't think I've

caused

> any trouble, if one was reading carefully. I was asked a direct

> question as to what I did & what we use that helped my baby's

eczema

> & I answered truthfully in hopes of helping someone. Perhaps I

> should have just answered privately & will do so from now on.>>

>

> I don't have a problem with you all conversing about other stuff

for your kids needs... but this list is just so very huge, with a

large e-mail volume. The list is meant for discussion of SCD and not

intended as a forum for " all things related " to autism, food

allergies, supplements, etc. I wish it could be that, but we just

can't.

>

> Sorry, Michele... I really was trying to be gentle about it. (I

hate being moderator..... but need to fill in for Sheila until she

returns.) We just truly have to stick to the topic. Putting all

kinds of smiley faces on my " moderator comments " doesn't always

help.... I'm tryin' tho. We're all friends here.

No problem; I just know how horrible eczema is & was trying to help.

I'm not recommending anyone do anything that isn't SCD legal at all.

EFAs & CLOs are legal, it's just which ones...

>

> We do have to be very careful about products we type into list e-

mails... because it goes out to soooo many people. You'd be

surprised at how some list members can mis-read and/or

misunderstand. We'll get messages back weeks later regarding some

illegal product, saying " But I read it on Pecanbread... so I thought

it was okay " . It's so hard to make sure we're being clear.

Yep; there's always lots of confusion on lists such as these. The

GFCF lists are like that as well since I've been on them for years

so I can appreciate trying to keep things clear. That's helpful for

all. Sorry if I caused any confusion!

>

> Anyway.... I didn't mean to beat you up.

> Patti

Not black & blue at all! Just learning :-).

Best,

Michele

[Guest guest]

OK... just read Meleah's post.... and then went to Kirkman's website.

Our supplement list *should* say that even the inulin-free version of Pro-Bio

Gold is illegal... because it has bifidus in it. Sorry about that.... and thank

you, Meleah.

<<I also have to eliminate the apple &

pear I had been mixing in since those are not legal.>>

Not sure where you got that idea??

<<Are apples & pears legal if they are cooked?>>

Yes, apples and pears are legal. They just need to be peeled and cooked in the

beginning.

If you're juicing, it's okay to use them raw.... but juicing should be done very

cautiously in the beginning, and ALWAYS dilute!

The problem with apples and pears is the cooking down and concentrating that

happens when apple juice and pear juice are commercially made.

Patti