Re: Feeling terrible! (Answers & thanks from Jen)

March 26, 2004

Thank you so much to everyone who responded. Your suggestions are

great. I've been limiting almost all solid food and I got my

husband to go and buy me a bunch of popsicles and low fat frozen

yogurt. I really appreciate having people who know what i'm going

through.

To answer some of the questions i've had 2 ct scans (it showed

nothing), an MRCP (which showed pancreas was fine but that i had

divisum), an ERCP to attempt stenting (that failed so they are

sending me to a surgeon in Toronto), colonoscopy (thought it might

be chrohns but was just bad IBS), small bowel series (again testing

for chrohns). I get my blood tested every 2 weeks and all levels are

normal but my lipase. It's always elevated. It was 860 yesterday.

I've also been on enzymes (creon 20) but they didn't help at all.

My current surgeon isn't even saying what they are gonna try if the

stenting fails. I'm scared that if the stenting fails than that is

it. My GP is a great doctor who listens to me, but doesn't know

much about the pancreas. I honestly think that they'll just leave

it cause my pancreas isn't showing damage. My doctor had told me

they wouldn't do surgery unless the pancreas showed damage and if I

had it longer. I only started having problems in Aug of last year.

I just want to be told that they can fix this and that I don't have

to wait 3 years before they fix it. I'm only 26. Thanks for

listening and responding. Jen

Recommended Posts