Re: at a loss

[Guest guest]

Why leave? If you have gotten some good ideas and help...stay....

Janice Rushen

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From: and Matt <lisa_leonard@...>Subject: ( ) At a loss Date: Tuesday, July 8, 2008, 10:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

Yes I agree 100% and that is why I don't think you should leave....even if you just write once in a while for emotional support...we ALL need it. So stay! That is my thought! Just read the notes ...skim them..delete what you don't need....I think it will still help!

Jan

Janice Rushen

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From: and Matt <lisa_leonard@ sbcglobal. net>Subject: ( ) At a loss Date: Tuesday, July 8, 2008, 10:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

>

> I guess I don't�fit in this group now. My sons diagnoses were

changed from AS/bipolar/ADHD to bipolar/ADHD/ODD/moderate receptive

language disorder/severe expressive language disorder.

Unless the evaluator was an ASD specialist (not just someone " with

experience " with ASD), I would not accept this change from just one

person. Especially with the language symptoms and other symptoms you

have noticed.

Ruth

[Guest guest]

Who could I get to evaluate him besides a child psychiatrist? There is only one anywhere near here. He is the one that did this latest evaluation. Unfortunately my sons home based counselor isn't convinced he has AS either but I just can't believe all his difficulties are caused by what his current diagnoses are.

( ) Re: At a loss

>> I guess I don't�fit in this group now. My sons diagnoses werechanged from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptivelanguage disorder/severe expressive language disorder. Unless the evaluator was an ASD specialist (not just someone "withexperience" with ASD), I would not accept this change from just oneperson. Especially with the language symptoms and other symptoms youhave noticed.Ruth

[Guest guest]

Thanks! I think I will stay. I've been thinking over the diagnoses and the problems my son has and I just can not accept that everything he is dealing with is because of those. At home other than the aggression I don't really notice he is different because I am used to him but in public or just around other people the differences are glaringly obvious.

( ) At a loss Date: Tuesday, July 8, 2008, 10:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

You can stick around here if you want. Kind of sounds like you could put the new dx's into "HFA".

RoxannaAutism Happens

( ) At a loss

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

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[Guest guest]

What is the difference between AS and HFA?

( ) At a loss

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM

[Guest guest]

I'm no moderator,,,,but I wouldn't think you should leave. Seems like all the "spectrum" disorders overlap a bit in one way or another.

Do you know what made them change the dx?

Robin

Normal is just a cycle on a washing machine!!

!

From: and Matt <lisa_leonard@...>Subject: ( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

>

> Who could I get to evaluate him besides�a child psychiatrist? There

is only one anywhere near here.

A good choice is a neuropsychologist with a specialty in ASDs. You

can find such specialists at the nearest regional children's hospital

or private specialized clinics. They can help you pinpoint his

executive dysfunction a lot more precisely than a psychiatrist.

If you don't live in a major urban area, you may indeed have to

travel, so you should be prepared for that. It is also hard to match

such specialists up with your insurance, and some don't even take

insurance, and some insurance plans don't cover it anyway. In any

case, you can also expect a long waiting list in many cases. We had

to wait 8 months for our initial diagnostic evaluation, and another

month after that for the neuropsych eval.

If you post your location, someone on the list might be able to help

you locate someone.

Ruth

[Guest guest]

Thanks for the great advice. I live about an hour away from a children's hospital so tomorrow I'm going to give them a call and see about getting things going. Thanks again!

( ) Re: At a loss

>> Who could I get to evaluate him besides�a child psychiatrist? Thereis only one anywhere near here. A good choice is a neuropsychologist with a specialty in ASDs. Youcan find such specialists at the nearest regional children's hospitalor private specialized clinics. They can help you pinpoint hisexecutive dysfunction a lot more precisely than a psychiatrist.If you don't live in a major urban area, you may indeed have totravel, so you should be prepared for that. It is also hard to matchsuch specialists up with your insurance, and some don't even takeinsurance, and some insurance plans don't cover it anyway. In anycase, you can also expect a long waiting list in

many cases. We hadto wait 8 months for our initial diagnostic evaluation, and anothermonth after that for the neuropsych eval. If you post your location, someone on the list might be able to helpyou locate someone.Ruth

[Guest guest]

Thanks! I am going to check at the children's hospital tomorrow. It may be a long wait but it will be worth it.

Re: ( ) At a loss

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ

[Guest guest]

The more I read the more I am convinced the dr is wrong about not having AS. Even if I don't get an agreeing second opinion I am still going with the assumption that he does have it. So much seems to fit.

Re: ( ) At a loss Date: Wednesday, July 9, 2008, 12:15 PM

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ

[Guest guest]

Good for you!!!!

Best wishes and keep posting! and REading!

jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

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From: Bobbie <riveryak2003>Subject: Re: ( ) At a loss Date: Wednesday, July 9, 2008, 12:15 PM

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ Messages in this topic (28) Reply (via web post) | Start a new topic

Messages

[Guest guest]

Good for you!!!!

Best wishes and keep posting! and REading!

jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

From: Bobbie <riveryak2003>Subject: Re: ( ) At a loss Date: Wednesday, July 9, 2008, 12:15 PM

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ

[Guest guest]

Good for you!!!!

Best wishes and keep posting! and REading!

jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

From: Bobbie <riveryak2003>Subject: Re: ( ) At a loss Date: Wednesday, July 9, 2008, 12:15 PM

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ

[Guest guest]

I definitely will get a second opinion. I'm glad you suggested not mentioning what the other one said. I guess that would affect his opinion and I want a fresh one. Thanks!

( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

Thanks and I will!!!

Re: ( ) At a loss Date: Wednesday, July 9, 2008, 12:15 PM

They do overlap. My son thinks he has heaps of friends...not really...but he tries to be social and involved. He does not flap, intellectually he is extremely gifted. He will tell you more then you need to know (or mare than he really knows) about numerous things. None that anyone cares about, except him. His intelligence is way beyond his years, his social skills are way behind.I had a neuropsych tell me," of course is is AS, why would anyone question it? My son was on meds ofr ADHD for almost two years, he has been off since May and emotionally much more stable. I still read the ADHD boards for insight and ideas. bobbie in NJ

[Guest guest]

As far as I knew ...Nothing....really both are the same...maybe some people use HFA (high function autism) as their child's IQ might be higher but according to one of the books I have ...AS and HFA are the same in one. But .....I will admit ...I am not an expert in the field...just learned from what I have read!

Jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

From: and Matt <lisa_leonard@...>Subject: Re: ( ) At a loss Date: Wednesday, July 9, 2008, 9:37 AM

What is the difference between AS and HFA?

( ) At a loss

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

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[Guest guest]

My son who definitely has Aspergers has

never done any hand flapping. And, “flicking his ears a lot” could

be a stimming behavior. My son can show affection when he chooses to, has

a great imagination that used to primarily involve his obsessions, and interacts

with others (years ago most of his interactions were not appropriate but this

has improved to being mostly appropriate). I did have a psychologist tell

me one time that my son wasn’t Aspergers because he had a sense of humor!

Of course, in this guy’s defense this happened years ago before even

professionals knew much about the disorder. And, to be honest, I am not

sure a psychiatrist is the best person to do the initial diagnosing on

this. Aspergers should not be diagnosed in one encounter and requires an

in-depth evaluation including a questionnaire for the parents and teachers to

complete. I don’t remember if you said all these things were done

or not.

From: [mailto: ] On Behalf Of and Matt

Sent: Wednesday, July 09, 2008

9:22 AM

Subject: Re: ( ) At

a loss

The psychiatrist said that since my son doesn't do any hand flapping

(flicking his ears a lot doesn't count), shows affection easily, has a good

imagination, and interacts with others he just doesn't fit the diagnosis. My

son does interact with others but not well, he paces most of the

day,he constantly repeats lines from movies and makes sounds his

home based counselor says are vocal tics but the psychiatrist says are due to

his extreme adhd, he has been fasinated with maps for 2 years now although he

isn't any more knowledgeable than an average 6 year old, he rewinds movies to

the same parts over and over, he's a wanderer, can't bathe without supervision,

do buttons, snaps, or laces, he has a meltdown in public places even quiet ones

like the library, and the list goes on. If he doesn't have a spectrum disorder

then I don't know what else could be going on. His psychiatrist is convinced he

isn't on the spectrum though.

( ) At a loss

Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons

diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate

receptive language disorder/severe expressive language disorder. Now I am

totally lost on what support group I should be on. This has been a very

good group to belong to, very encouraging and willing to listen to the good

and not so good. Thanks and take care!

[Guest guest]

You are right...my son has a sense of humor...sometimes I think...maybe he should be a comedian!!!

I know we at home did the tests as well as his teachers...it does give a good insight...

My son did the hand flapping...that started when he was 4....he used to do it when he was excited...no one ever said anything to me about it...I use to point it out to everyone...I thought it was GREAT...Cute! It showed his EXCITEMENT about something...it showed his ENTHUSIASM!!!! He doesn't do it so much anymore but he does "wring his hands" when he is excited or he'll kinds flap his fingers.....I LOVE IT!!!!! It just shows how excited he can get!!!!

Does your child or did your child have trouble eating soft foods...or white foods as a baby? My son's TSS said that was a sign too! I never knew it...my son would NEVER eat mashed potatoes (most babies love them), white pudding, youghrt, vanilla pudding, cottage cheese...it has something to do with the texture. Now at 11 years old ..he finally tried mashed potatoes and loves them ...but won't eat the other stuff.

Interesting stuff, eh?

Jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

From: and Matt <lisa_leonard@ sbcglobal. net>Subject: ( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

I agree with the others...definitely stay! My son (5) doesn't even

have a DX yet---still waiting for that appointment..But i have

gotten so much support from everyone that I would stay even if he

ends up with something else...it is such a tricky DX anyway to

understand in my opinion.

in NY

>

> I guess I don't fit in this group now. My sons diagnoses were

changed from AS/bipolar/ADHD to bipolar/ADHD/ODD/moderate receptive

language disorder/severe expressive language disorder. Now I am

totally lost on what support group I should be on. This has been a

very good group to belong to, very encouraging and willing to listen

to the good and not so good. Thanks and take care!

>                                                     

>

[Guest guest]

A lot of forma had been filled out and he read through reports etc that had been done where we used to live. Those reports said AS but this dr disagrees with that. Your son sounds a lot like mine.

( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

My son has never met a food he didn't like. When he was a baby he went through physical therapy due to being so heavy his upper muscles didn't strengthen. For a while he went through an unusual phase where he wouldn't eat meat if the bone had been removed first. That's over with though.

( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

So...for instance if he says he doesn't have AS what did he say his DX was...will that affect him in school...services? etc.? I know if they said was ADHD again...I wouldn't care unless it affected his services!!!!!!!!

I still don't totally beleive he has AS because he is SOOOOOOOOOOOOOO SOCIAL!!! But I realy don't care if they say he is a BLUE GREEnie...as long as he gets his needs met!

Jan

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

From: and Matt <lisa_leonard@ sbcglobal. net>Subject: ( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!

[Guest guest]

To be perfectly honest I don't know how it would affect his services but at this point in time I don't want to risk his losing anything that he is getting.

( ) At a loss Date: Tuesday, July 8, 2008, 9:40 PM

I guess I don't fit in this group now. My sons diagnoses were changed from AS/bipolar/ADHD to bipolar/ADHD/ ODD/moderate receptive language disorder/severe expressive language disorder. Now I am totally lost on what support group I should be on. This has been a very good group to belong to, very encouraging and willing to listen to the good and not so good. Thanks and take care!