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Hi,

I am new to the list, my name is Cristina, I live in Southern

California and I have two kids. without CF who is in Europe

for a couple of months- he just graduated from college, and

andra () who is 8 years old and has CF. I am very happy to

have joined this list.

Cristina

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Welcome Cristina, My name is and I live in Southern CA also. I have 2

kids, one Nick age 21 nocf and age 19 wcf. She is doing pretty well.

Its nice to have you with us, hope you enjoy the list

love,

from Placentia

New to the list

Hi,

I am new to the list, my name is Cristina, I live in Southern

California and I have two kids. without CF who is in Europe

for a couple of months- he just graduated from college, and

andra () who is 8 years old and has CF. I am very happy to

have joined this list.

Cristina

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  • 1 month later...

In a message dated 11/18/2003 7:30:45 AM Central Standard Time,

momslovex3@... writes:

Cindy

I know what you mean about the odds I have three daughters and two of them

have CF. I never knew it was even in our families. My oldest was 6 years old

before she was diagnosed and my youngest was 1. You just never think it could

happen to you but it does and it can be very depressing but you have found a

GREAT group her with lots and lots of support!!! So if you have any question

this

is the place to ask. Deb A

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Sue,

I didn't know that was diagnosed on Christmas eve. That's

one Christmas that you will never forget. I sobbed for 24 hours non-

stop when my grand daughter was diagnosed. You had two other

children that were probably excited about Christmas and you had to

find the strength to carry on. Wow!

Gale

> Cindy, you definately did not bore me to tears. I think it is

wonderful. It

> is sort of like a testimony that we all have to tell about how our

children

> were diagnosed. My daughter was diagnosed on Christmas Eve, 1991,

only 8 days

> after being born. I, like you, had other " healthy " children. I

did not even

> know what the disease was. I had heard of it and there was a boy I

went to

> elementary school with who had it but I knew nothing about it.

> Thank you for sharing your story with me. Good luck with your

son. There

> are so many exciting things going on right now with cf. ,

who at present

> is home from school with " a touch of pneumonia " is supposed to

start gene

> therapy in December. Hopefully, there will be a cure soon. They

told me when

> was born that if one of my three had to have cf it was

better that

> did since just prior to her birth they had discovered the

gene that causes

> cf and there is now hope. You will be amazed at some of the people

on this

> site. You know the current life expectancy for cfers, but you

won't think they

> included some of the people on this site. People can live long

healthy lives

> with cf. It is really amazing. Welcome!!!!!!!

>

> Sue Pettit

> mom to (17 wocf) driving and being the most responsible 17

yo I have

> ever seen, (13 wocf) playing football, band, and whatever

else he can

> get into, and (11 wcf) into all sports, running full speed

doing all

> she can and still doing great---diagnosed at 8 days of age at

LeBonheur

> Childrens Medical Center in Memphis, Tennessee, now seeing Doctor

Lyrene (and other

> wonderful folks of course) at UAB Children's Hospital

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