Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 Hi, I am new to the list, my name is Cristina, I live in Southern California and I have two kids. without CF who is in Europe for a couple of months- he just graduated from college, and andra () who is 8 years old and has CF. I am very happy to have joined this list. Cristina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Welcome Cristina, My name is and I live in Southern CA also. I have 2 kids, one Nick age 21 nocf and age 19 wcf. She is doing pretty well. Its nice to have you with us, hope you enjoy the list love, from Placentia New to the list Hi, I am new to the list, my name is Cristina, I live in Southern California and I have two kids. without CF who is in Europe for a couple of months- he just graduated from college, and andra () who is 8 years old and has CF. I am very happy to have joined this list. Cristina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 In a message dated 11/18/2003 7:30:45 AM Central Standard Time, momslovex3@... writes: Cindy I know what you mean about the odds I have three daughters and two of them have CF. I never knew it was even in our families. My oldest was 6 years old before she was diagnosed and my youngest was 1. You just never think it could happen to you but it does and it can be very depressing but you have found a GREAT group her with lots and lots of support!!! So if you have any question this is the place to ask. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Sue, I didn't know that was diagnosed on Christmas eve. That's one Christmas that you will never forget. I sobbed for 24 hours non- stop when my grand daughter was diagnosed. You had two other children that were probably excited about Christmas and you had to find the strength to carry on. Wow! Gale > Cindy, you definately did not bore me to tears. I think it is wonderful. It > is sort of like a testimony that we all have to tell about how our children > were diagnosed. My daughter was diagnosed on Christmas Eve, 1991, only 8 days > after being born. I, like you, had other " healthy " children. I did not even > know what the disease was. I had heard of it and there was a boy I went to > elementary school with who had it but I knew nothing about it. > Thank you for sharing your story with me. Good luck with your son. There > are so many exciting things going on right now with cf. , who at present > is home from school with " a touch of pneumonia " is supposed to start gene > therapy in December. Hopefully, there will be a cure soon. They told me when > was born that if one of my three had to have cf it was better that > did since just prior to her birth they had discovered the gene that causes > cf and there is now hope. You will be amazed at some of the people on this > site. You know the current life expectancy for cfers, but you won't think they > included some of the people on this site. People can live long healthy lives > with cf. It is really amazing. Welcome!!!!!!! > > Sue Pettit > mom to (17 wocf) driving and being the most responsible 17 yo I have > ever seen, (13 wocf) playing football, band, and whatever else he can > get into, and (11 wcf) into all sports, running full speed doing all > she can and still doing great---diagnosed at 8 days of age at LeBonheur > Childrens Medical Center in Memphis, Tennessee, now seeing Doctor Lyrene (and other > wonderful folks of course) at UAB Children's Hospital Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.