Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 hi first of all i don't mind anybody asking me questions, that seems to be the only way i can learn about this, so by all means ask away. right now i feel pretty good, i caught mono about a month ago, i'm in the recovery vase of it now, so i still get tired easily. as far as i know i have no gi problems. they did tell me that i may develop those problems later though. it is my lungs that are affected by it, i have the lungs of an 84yr old & i'm 23. when i was five years old my mom took me to a specialist for failure to thrive. i was five & only weighed 25 lbs. they said i had nesiluff syndrom (it no longer exsists today) and they quite seeing me becuase they thought i would not survive to be six. even though my mom told them i tasted salty & she thought i should be tested. after that it was one doctor passing me off to the next, never doing any tests, i actually scared them. then i was sent to toledo hospital pulminary clinic where they finally diagnosed me. the sweat test showed up postive 3 times but they can't locate the gene and that's where i am now. Quote Link to comment Share on other sites More sharing options...
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