New CF Family to the Group from andria, VA!

September 28, 2003

Hello to my new on-line CF Support Group!

My family just rotated here from sville, TN where my Army hubby was

assigned to Ft. , KY.

We have 3 sons: 10, 8, and 6, with my youngest having CF. Diagnosed at 8 mos

after persistent wheezing and reflux.

Henry has had a fairly mild-moderate CF life so far ... no hospitalizations

since infancy, no pseudomonas (that we know of) ... just lots of annoying belly

aches, loose, fatty stools, and constant enzyme changes to get it right ...

smile. He's currently on Pancrecarb ... 7 with meals, 5-6 snacks. He's been

complaining about his throat, swallowing lately ... I'm wondering if reflux

issues are coming back! He's maintained fairly good weight gain so far, but he's

getting tall and thinning out. I wish I could get him to drink some great

CALORIE shakes ... no luck yet.

He loves to play hockey and has recently converted from roller hockey to ice

hockey. I hope that his love for sports continues as exercise seems to be a

great way to get the yucky, thick mucus out of the lungs.

I was very involved with charity work in TN, but taking a little break now ...

smile. I chaired the sville Great Strides Walk for CF for the past 5 years

.... loved it, loved it, and loved it! I encourage those of you out there who

have the time and drive to get involved with your local CF Chapter ... I think

it's very therapeutic too ... it was some of the most personally rewarding work

I've ever done ... knowing that in some small way I was helping to find the cure

for this dreaded disease.

I also coordinated a CF Support Group (monthly) in TN and that was truly

therapeutic ... I'll miss my monthly dinner at Shoney's and chatting with my

fellow Tennesseans CF Families! smile.

I look forward to meeting several of you on-line ... love to hear if there are

any VA/MD/DC CF families on-line.

Have a GREAT week!

Sincerely,

Chastain

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