To Sonja

[Guest guest]

Dear Sonja,

I don't know about the meds you're taking, but you wrote this: I get

this

awful dryness in my mouth and my gum bleeding occasionally coming and

going (I have perfect teeth and am so thourough with brushing and

cleaning my mouth).

I wonder if the meds you're taking is causing the dryness in your

mouth. Also, if your dentist has checked for gingivitis or something

else, & that's not the problem, your gums could be bleeding if you're

using a toothbrush that's too firm. And again, it might be a side

affect from your meds.

You also wrote: I am still in a position without a doc and waiting

for news

to turn up about a doc who would take my symptoms seriously and help

me

in this djungle of medications, I feel so lost, lonely and an loosing

faith. How will I be able to go on when I can hardly eat anything and

just get weeker.It feel as all of my body is collapsing.

I'm concerned about what I'm hearing in your post. I don't know if

it helps, but I've been where you are. I was living in Atlanta, away

from all family, for 2 years trying to work & mange this illness. I

know what it is to be lonely & lose faith. I just want you to know

that it can get better. Four years ago, I was supposed to have a

feeding tube in my stomach. But here I am, only having had 1

hospitalization in about 2 years. I'm proof that it can get better.

Maybe not perfect, but definately better. Please, stay on this

board, vent to us whenever you need,continue to educate yourself

about this disease, & I'll keep you on my daily prayer list. There's

always someone here to help or just be a sounding board, so I hope

you stay with us.

BTW, check on who's in your area, & find out about good docs near

you. There's a lot of people here who have found some wonderful

docs.

Hugs,

Deanna Tubb

New Mexico PAI Rep