Re: Becky/copy of wish foundations

[Guest guest]

Becky,

I went in the link that Kim supplied and copied the following

information.

I hope everything works out, you all need a dream vacation.

Best wishes,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

Wish Granting for Ill Children

Self Help Clearinghouse

Make-A-Wish Foundation

Grants wishes to children with serious illnesses.

E-MAIL: mawf@...

WEBSITE: http://www.wish.org

VERIFIED: 8/23/2002

Sunshine Foundation

International. 25 affiliated chapters. Founded 1976.Annual reunion

for children from around the world with progeria and their families.

Opportunity for children to meet other children with this life

threatening, rare aging disorder. Parents network with other parents

for support between reunions.

WRITE:

Sunshine Foundation

1041 Mill Creek Dr.

Feasterville, PA 19053

CALL:

FAX:

E-MAIL: Kim@...

WEBSITE: http://ww.sunshinefoundation.org

VERIFIED: 8/22/2002

Children's Wish Foundation International

Grants wishes to terminally ill children up to age of 18.

E-MAIL: wish@...

WEBSITE: http://www.childrenswish.org

VERIFIED: 8/23/2002

Dream Factory

Grants dreams for children with a life threatening or critical

illness.

CALL: 1-

VERIFIED: 8/22/2002

Brass Ring Society

Provides wishes and trips to Disney World for children with cystic

fibrosis and other life-threatening illnesses.

CALL: 1-

VERIFIED: 8/23/2002

Give Kids the World Foundation

Working in partnership with Wish organizations, offers a resort

facility in Florida for families with terminally ill children.

CALL: 1-800-995-KIDS

VERIFIED: 8/23/2002

> Becky,

>

> I understand your concern about flying, and as a parent of an

adult

> child with CF, I thank you for thinking of others and not wishing

to

> expose them to B. cepacia.

>

> I also understand why you're so angry. Life really seems to be

> frustrating these days and the disappointing news that Make A Wish

> won't accomodate your travel request seems like one more straw to

add

> to the pack.

>

> Below is a link to a page of other organizations that grant

children's

> wishes. Make A Wish isn't the last hope. My son's CF doctor

contacted

> The Brass Ring Society in 1992 and they planned an amazing and

> memorable event for my son.

>

> The Brass Ring Society didn't give an opportunity to choose

his

> own " wish " -- but that was only because when 's doctor

contacted

> the BRS, he told them that he had a special patient who loved

> baseball, who idolized (former Mets catcher) , and he

> wanted to know if the BRS could arrange something around

and

> baseball.

>

> The BRS flew us the entire family to Florida during spring

training

> during the Florida Marlins inaugrual year. had just retired

> from baseball and was the Marlin's announcer. got to meet

> and the team, and was a batboy for one of their practices.

>

> The BRS provided wonderful hotel accomodations for seven days (the

> hotel had a basket of fruit and welcoming note in our room, and we

got

> free buffet breakfast every morning); the rental car place

provided a

> brand new mini van to drive for the week, the BRS provided about

10

> rolls of film and told us to send the film after the trip so they

> could develop it and send us all copies. The BRS also provided

tickets

> to Disney World, Epcot, and Sea World (the kids liked that best),

and

> gave us $300 to use for food/souvenirs.

>

> This BRS has even bought winter coats for kids who live in the

south,

> whose wish it is to go north to see snow for the first time.

>

> My point is, this is an organization that believes in not tooting

it's

> own horn, they're there for the kids. I'm sure if you explain why

you

> cannot allow Rebecah to fly, they'll do whatever is within their

means

> to get you a rental van if that's what your family needs to

fulfill

> Rebebah's wish.

>

> Remember what the conqueror Hanibal said, " We will find a way, or

we

> will make our own. "

>

>

http://myhealth.memorialmedical.com/library/healthguide/SelfHelp/topi

c

> .asp?hwid=shc99wis

>

> (I noticed that link wrapped to the second line, so be sure to

pick up

> both lines of the link to open the page).

>

> Kim