Re: Louie from

[Guest guest]

Louie,

Well, I said I wouldn't mention the subject again, but I must write this

msg. Please, please, please do not change one single thing about the way

you post. I love your posts and I love hearing about your family, as I do

about the others in the group. With this stupid disease, we often miss out

on so much. I can't tell you how many times I've had to cancel plans with

friends or family because I'm in the hospital or even just because I'm

having a particularly bad day (as far as pain, nausea, vomiting, and/or even

my energy level goes). I love to hear about the joys in the lives of the

members. We are more than just people with a serious illness. We are

people with families and friends who try very hard to make the best of what

is often a really bad situation. Sometimes, we are stuck in the hospital

for days (or even weeks) on end. Other times, even a trip to the grocery

store is totally impossible because we are just too sick, in too much pain,

or too weak. Often we must live vicariously through the friends in our

life. When I hear about one of our members having a good day with family or

friends or planning for something fun or exciting, I rejoice with them.

Dealing with CP and often many other health issues at the same time is

tough. Many of us have given up a lot of things that healthy individuals

wouldn't even think twice about. When we do get to do things that bring us

joy, I think we want to share it with our friends even more than if we

didn't have to deal with chronic illness(es). When I hear of someone having

a good day, doing 'normal' things, it gives me hope and brightens my day.

I hope you and the other members will never quit sharing your life and your

joys, as well as your sorrows with the group.

Take care and PLEASE don't change!

By the way - mejane66 - my previous post was unnecessary and I should not

have even acknowledged your post saying that the wedding posts were

'boring'. Please accept my apology because I normally am not a mean

spirited person. I just felt as if you had attacked both my dear friend,

Louie, and me, as well, so I attacked back. I am typically a bigger and

better person than that. I am sorry that I responded and in the future I

will do just as I suggested and either delete or scroll right past any posts

that I am not interested in or that irritate me.