cfparents-make a wish is full of BS

October 2, 2003

Hi All.We have been dealing with Make a Wish for over 9 months (we had mono

and chicken pox so it took us a while to get better) they came out last

wednesday and told Rebekah that she would be going to disney and they were

finalizing

the trip.Rebekah's doctor called yesterday and told us that Make a Wish had

turned her down because (get this)we asked to go in a van to drive (her idea

was a travel trailer (mobile home) they will be happy to send us on a plane

which would mean NO CAR in an Emergency DUH are they STUPID or what? As if I

want

to be more than 1500 miles from her doctor with NO CAR? My concern over the

plane has to do with cepacia and how to protect my child from other people and

protect other people from her germs (I can see it now I stand at the door of

the plane asking do you have CF or Cancer or an Immunity problem from all the

passengers getting on) also I can just see my 4,6,8,10 year olds sitting for any

trip anywhere it is hard enough in a van where I can stop and get them out to

run off energy that is impossible on a plane.Would any of you want to be

masked (you know the hot sweaty kind that make breathing hard )for a trip from

newyork to florida I don't want to put my kid thru that.I am spitting MAD right

now those people had NO business Lying to my 6 year old by telling her she

would be having a trip(do you know how hard it was to tell her she can't go?

It broke my heart she was getting all excited and looking on the computer

telling me where she wanted to go and what she wanted to do and what characters

she

wanted to see.I don't mean to sound like a whiner but we can just barely keep

our cars on the road this year with bankruptcy and foreclosure on the house

,lawyer bills we couldn't get ourselves to disney if we tried . On top of what

they told us yesterday my 8 year old had an eye appt. she is going to have

surgery to straighten her left eye later this year. My garage just told me my

van I bought one year ago used has a bad engine it needs replacing IF it isn't

one thing it is twenty million others.OK I think I feel a little better but I

am still pissed off at Make a Wish(maybe there new name should be Mess Up A

Wish) .BeckyB.Mama to 8 kids -one who is very upset-2w/cf---Nana to 2

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