Re: Pseudocyst / enzyme relationship to Jeppe

July 5, 2004

Jeppe,

I was reading the description of your pseudocysts that you wrote to .

Are you saying that you already had large pseudocyst that was 11 cm. and

the doctor drained it down to 6 cm. and two days later it was operated on and

removed? So the pseudocysts that you have now are new ones? Is that

correct?

I find this discouraging. One would hope that once the first pseudocysts were

removed, that would be the end of problems of this sort. As you may

remember, I have two pseudocysts now that I've had for 3 years. They keep

getting smaller, and then larger. So far, no surgeon will operate on them, but

if I were to consult another surgeon, perhaps that would change and he would

chose to operate. For me, it doesn't seem worth the risk of the surgical

operation to remove them, if there is a chance then, of even more developing.

This is just my personal opinion in regards to my own situation, though, and

certainly not a criticism of your circumstances. I'm just trying to figure this

all

out for myself, in regards to whether or not I should seek another opinion in

my own case. It is the belief of my doctor that because of my pancreas

burnout, that if my pseudocysts were gone I would no longer have any

pancreas pain. Naturally this is a scenario that I would love to envision, as

dealing with my brittle diabetes now is enough work all on it's own. I'd love

to

eliminate at least one of the problems in my life.....wouldn't we all?

I look forward to hearing more about this from you when you have time.

Think good thoughts,

Heidi

PS - mine feel just as yours, except I've not had one that is soft. Since all

of

my pancreas is atrophied and hard anyway from the calicification, it is

difficult

to deliniate the outlines of the pseudocysts when they are smaller, but the

largest is easily felt.

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI

Note: All comments or advice are based on my personal opinion or

experiences only, and should not be substituted for a professional medical

consultation.

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