Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Ok as some of you know we did a ? thingy since before X mas. And I thought since we have so many new members I will ask once more and also ask for Part 4 of this.Here first are the first 3 ? we had. If you have not done this yet please do so. Yes we also would like to use your stories in our news letters. 1st ? was : How long did you have RP ?? When where you finally Diagnosed with it?? 2nd? was : How have you dealt with it since ?? What is the worst Part of dealing with RP?? 3th ? was : What kind of support do you have at home ?? How can your spouse or fam,+ Friends help you deal with RP ?? Now part 4 is a little harder but very important also. Part 4 is for your spouse and Family !!! Please ask you spouse and Family to help us get part 4 together. Part 4 : What is the hardest part in dealing with our loved ones RP ?? What could the do to help us to help them ?? Ok so PLEASE everyone ask your Spouse and Family. Now to all, if you have not answered any of the ? please do it now. That is how we all learn to cope with this cRaP. I thank you all. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Ok as some of you know we did a ? thingy since before X mas. And I thought since we have so many new members I will ask once more and also ask for Part 4 of this.Here first are the first 3 ? we had. If you have not done this yet please do so. Yes we also would like to use your stories in our news letters. 1st ? was : How long did you have RP ?? probably for 2 years When where you finally Diagnosed with it?? March 2002-3 months ago 2nd? was : How have you dealt with it since ?? denial What is the worst Part of dealing with RP?? the pain, (physical and emotional) stress, meds and knowing there is no cure for it 3th ? was : What kind of support do you have at home ?? it's so-so, they have NO idea-- but I can't say that I blame them for not understanding, they're learning How can your spouse or fam,+ Friends help you deal with RP ?? just by helping clean and by listening and really trying to understand Now part 4 is a little harder but very important also. Part 4 is for your spouse and Family !!! Please ask you spouse and Family to help us get part 4 together. Part 4 : What is the hardest part in dealing with our loved ones RP ?? What could the do to help us to help them ?? Ok so PLEASE everyone ask your Spouse and Family. Now to all, if you have not answered any of the ? please do it now. That is how we all learn to cope with this cRaP. I thank you all. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Heidi: I was just diagnosed about 8 days ago so everything is too new right now to answer your questions.......Please get back to me again and I will do my best to fill in the blanks. I had my last dose of Pred this morning, so keeping my finger crossed that everything will be Ok tomorrow. Look on the bright side........ Ethel, Effo or FO Ok as some of you know we did a ? thingy since before X mas. And I thought since we have so many new members I will ask once more and also ask for Part 4 of this.Here first are the first 3 ? we had. If you have not done this yet please do so. Yes we also would like to use your stories in our news letters. 1st ? was : How long did you have RP ?? When where you finally Diagnosed with it?? Quote Link to comment Share on other sites More sharing options...
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