Gale

[Guest guest]

Gale,

Oh Eilish loves the hsp. In the midst of all the tears (mine) she was

complaining about 'why can't I go to the reward (ward). I'm like 'get

your slippers were going home'. And I know she will adore sharing with

other kids, its me who wont.

Re: ADMISSION FIASCO

,

That was a very awful day! I hope that it is a completely different

experience on Thursday. How did Eilish hold up? I'm glad that you

have . He's always so supportive.

Gale

> We left home just after 6am for her admission at 7am. First thing

to

> worry over was the bed situation. Apparently there are no other cf

kids

> in the ward, except those ones in the side rooms. Eilish would

then be

> 'okay' to go into a 4 bed bay with non infectious kids. Apparently

if

> any other cfers with PA etc. come in they will put her in a side

room.

> This is totally against what we have always done. and I

fought

> all morning with the registrar, cf co-coordinator etc. Then at

12.30

> p.m. we were still waiting for her PICC line to be put in. About

12.45

> the god awful registrar came in to tell me the radiography machine

used

> for it had broken down. They were sending her home and to come back

> Thursday. That was the straw that broke the camels back. I

stormed out

> of there and cried all the way home. It was everything on top of

each

> other. Do they think we have nothing better to do than sit there

for 5

> hours for nothing. So is asking his work if he can have

Thursday

> off to take her as I just don't want to take her again. The cf

> registrar phoned me a short time ago to tell me that they will not

put

> Eilish at risk and as soon as anyone with any PA etc. come in she

will

> be moved. The thing is she will love it as for the first time she

will

> have people to play with, but how on earth will we get any sleep let

> alone privacy. Then when poor stays it will probably be with

> other mothers in the room, so they will all feel uncomfortable.

>

> I just hate this crap. So now I am waiting to enrol to up date my

CPR

> certificate before I can do home IV's. You have to have a current

> certificate to be able to do that here. Mine has expired. I feel

so

> totally drained all I want to do is sleep. is taking us out

to

> dinner tonight.

>

> Sorry to moan but it has been a very awful day.

>

> (Australia)

>

>

>

>

[Guest guest]

I mailed that card one week before she was supposed to go to the

hospital the first time. I wonder if the hospital hung on to them

for her or if it always takes ten days to get there.

I hope that the second card that I sent gets there before she goes

home.

I am glad that the card cheered her. I'm sure that the hospital is

getting boring for her.

Gale

> > Oh I forgot to mention all her cultures and bronchoscopy came back

> > clear. So that's over 3 years PA free. Yippee.

> >

> > (Australia)

> >

> >

> >

> >

[Guest guest]

I wonder if she has gotten my cards, I too sent a FL Post card to here the

day it was posted she was going. Then another after all was settled in & a

card in envelope to make sure they got there:):)

I love you all doing so well so quickly though . How nice to get home sooner

if that is possible

Holidays will be so much better when she feels good too

LOVE & HUGS, GrandmomBEV

Re: GALE

I mailed that card one week before she was supposed to go to the

hospital the first time. I wonder if the hospital hung on to them

for her or if it always takes ten days to get there.

I hope that the second card that I sent gets there before she goes

home.

I am glad that the card cheered her. I'm sure that the hospital is

getting boring for her.

Gale

> > Oh I forgot to mention all her cultures and bronchoscopy came back

> > clear. So that's over 3 years PA free. Yippee.

> >

> > (Australia)

> >

> >

> >

> >