Insane regression while sick

[Guest guest]

Hello friends -

Luke picked up a long running bug this week with tons

of snot, fever, and coughing. The strangest thing is

that we ran into a series of behaviors we haven't seen

in several months including increased stimming, lining

things up, headbanging, and aggressiveness.

Has anyone else seen their child roll backwards so

seriously during a sickness?

Complicating matters; a few weeks ago we hit three

months on SCD which, I'm told, can lead to some

regression, and we stopped giving him Nystatin. I'm

considering putting him back on Nystatin, but I hate

the idea of giving him anti fungals without end; it

seems like if this is necessary we aren't really

treating the real issue.

Thanks.

brian

__________________________________________________

[Guest guest]

---Have you tried Sac B ?

In pecanbread , brian scott

wrote:

>

> Hello friends -

>

> Luke picked up a long running bug this week with tons

> of snot, fever, and coughing. The strangest thing is

> that we ran into a series of behaviors we haven't seen

> in several months including increased stimming, lining

> things up, headbanging, and aggressiveness.

>

> Has anyone else seen their child roll backwards so

> seriously during a sickness?

>

> Complicating matters; a few weeks ago we hit three

> months on SCD which, I'm told, can lead to some

> regression, and we stopped giving him Nystatin. I'm

> considering putting him back on Nystatin, but I hate

> the idea of giving him anti fungals without end; it

> seems like if this is necessary we aren't really

> treating the real issue.

>

> Thanks.

> brian

>

> __________________________________________________

>

[Guest guest]

I have seen this exact thing in my son, both pre-SCD and now while he

is on SCD (3 mos). It is awful to watch. We'll be going along so

well, and then I'll see a little sniffle or hint of a cough and get

such a sinking feeling. I wish I knew why it happens or how to

prevent it. My son has had congestion & a cough for a couple of

weeks now, and the awful behaviors show no sign of ceasing.

> >

> > Hello friends -

> >

> > Luke picked up a long running bug this week with tons

> > of snot, fever, and coughing. The strangest thing is

> > that we ran into a series of behaviors we haven't seen

> > in several months including increased stimming, lining

> > things up, headbanging, and aggressiveness.

> >

> > Has anyone else seen their child roll backwards so

> > seriously during a sickness?

> >

> > Complicating matters; a few weeks ago we hit three

> > months on SCD which, I'm told, can lead to some

> > regression, and we stopped giving him Nystatin. I'm

> > considering putting him back on Nystatin, but I hate

> > the idea of giving him anti fungals without end; it

> > seems like if this is necessary we aren't really

> > treating the real issue.

> >

> > Thanks.

> > brian

> >

> > __________________________________________________

> >

[Guest guest]

Here here,

Everytime we catch a virus we have set backs inbehavior and ASD

symptoms. But eating SCDiet, I also now have wittnessed getting over

these viruses faster than before SCDiet. So this is good.

It is frustrating when a child with ASD has set backs. Sometimes I

get so overwhelmed that I want to scream. I just want this over with.

I want the ASD to vanish. I want life to be normal for my little

girl. I don't want her to be different. I am grieving the loss of

the perfect child. Some days I am fine....lately I am struggling with

this.

I need to have more faith and acceptance.

Antoinette mom to KIKI-2 SCD 2/06 CD, colitis, ASD

[Guest guest]

>

> Here here,

>

> Everytime we catch a virus we have set backs inbehavior and ASD

> symptoms. But eating SCDiet, I also now have wittnessed getting over

> these viruses faster than before SCDiet. So this is good.

>

> It is frustrating when a child with ASD has set backs. Sometimes I

> get so overwhelmed that I want to scream. I just want this over with.

> I want the ASD to vanish. I want life to be normal for my little

> girl. I don't want her to be different. I am grieving the loss of

> the perfect child. Some days I am fine....lately I am struggling with

> this.

>

> I need to have more faith and acceptance.

>

> Antoinette mom to KIKI-2 SCD 2/06 CD, colitis, ASD

>

Anntoinette take time to review your SCD history.

After escaping the previous diet (Paleo) which you believed in, you switched

your hopes to

SCD and started with great enthusiasm. Like most of us it was a few steps

forward and a

few steps back. At the start you had full confidence in Elaine. Woth you it has

been a sort

of roller coaster, things were wonderful, things were terrible and then

wonderful again and

now terrible.

You were cautioned that this is often a long difficult journey but you must

admit you had

big plans for SCD before you were barely on it. You also consulted too many

people and

took everyone's advice.

Currently you are on a list that deals outside the realm of SCD as well as with

SCD.

You need several things, foocus, patience and to keep your own counsel.

Regarding the tests I took several and they were not at all useful to me. Some

of the

parents here will endorse them . I would never bankrupt my family for those

exhorbitant

fees charge for testing.

You also have to give yourself some additional slack as you are attending to

various

dietary needs of a whole family.

Why not put a time limit on how long you will continue SCD? If it then doesn't

meet your

expectations you have, as Elaine always said, the options of quitting, coming

back later or

going to an entirely different diet.

Since when does it come as news that many doctors either never heard of SCD or

don't

understand it? They are usually taught by us their patients.

I have told you over and over that after nearly seven years I am not cured but I

am so

much better than I was and happy to stay on SCD.

Carol F.

SCD 6 years 7 months

[Guest guest]

hi carol,

im just wondering what condition you are treating with SCD? you have

been on it so long and im thinking maybe i have unrealistic

expectations for my daughters recovery? would it be reasonable to

assume that a child with leaky gut and possible candida / strep would

heal at a faster rate than someone on SCD for something more severe

like crohns or colitis??? i am just trying to work out a time frame

in my head so i can focus and have a little direction... my husband

wants a plan and to know how long i am going to try this new venture!

is anyone on the group treating their child for these things and

seeing good progress? how long are you finding it takes to get to

stage 5? we are happy to stay on stage 5 indefinately... but if we

are stuck on cooked fruit and vege for too long it is going to make

the fast approaching summer very difficult!

thanks in advance for sharing!

roweena x

mumma to audrey

food intolerance and leaky gut

>

> >

> > Here here,

> >

> > Everytime we catch a virus we have set backs inbehavior and ASD

> > symptoms. But eating SCDiet, I also now have wittnessed getting over

> > these viruses faster than before SCDiet. So this is good.

> >

> > It is frustrating when a child with ASD has set backs. Sometimes I

> > get so overwhelmed that I want to scream. I just want this over

> with.

> > I want the ASD to vanish. I want life to be normal for my little

> > girl. I don't want her to be different. I am grieving the loss of

> > the perfect child. Some days I am fine....lately I am struggling

> with

> > this.

> >

> > I need to have more faith and acceptance.

> >

> > Antoinette mom to KIKI-2 SCD 2/06 CD, colitis, ASD

> >

> Anntoinette take time to review your SCD history.

>

> After escaping the previous diet (Paleo) which you believed in, you

> switched your hopes to

> SCD and started with great enthusiasm. Like most of us it was a few

> steps forward and a

> few steps back. At the start you had full confidence in Elaine.

> Woth you it has been a sort

> of roller coaster, things were wonderful, things were terrible and

> then wonderful again and

> now terrible.

>

> You were cautioned that this is often a long difficult journey but

> you must admit you had

> big plans for SCD before you were barely on it. You also consulted

> too many people and

> took everyone's advice.

>

> Currently you are on a list that deals outside the realm of SCD as

> well as with SCD.

>

> You need several things, foocus, patience and to keep your own

> counsel.

>

> Regarding the tests I took several and they were not at all useful

> to me. Some of the

> parents here will endorse them . I would never bankrupt my family

> for those exhorbitant

> fees charge for testing.

>

> You also have to give yourself some additional slack as you are

> attending to various

> dietary needs of a whole family.

>

> Why not put a time limit on how long you will continue SCD? If it

> then doesn't meet your

> expectations you have, as Elaine always said, the options of

> quitting, coming back later or

> going to an entirely different diet.

>

> Since when does it come as news that many doctors either never

> heard of SCD or don't

> understand it? They are usually taught by us their patients.

>

> I have told you over and over that after nearly seven years I am

> not cured but I am so

> much better than I was and happy to stay on SCD.

>

> Carol F.

> SCD 6 years 7 months

>

>

>

[Guest guest]

>

> hi carol,

>

> im just wondering what condition you are treating with SCD? you have

> been on it so long and im thinking maybe i have unrealistic

> expectations for my daughters recovery? stay on SCD.

> >

Iam an undiagnosed celiac with chemical sensitivities amd latex allergy.. My

current

omdition is probably as good as it gets as I am also in my seventies and have to

contend

with aging but I am satisfied with how SCD has worked for me.

Carol F.

[Guest guest]

Hi there,

Even if SCD does not " cure " all of us. The releif and succes for my

entire family and so many is significant. We tried many, many ways

of eating before this with no good results....just minimal releif.

SCD is the only one that has worked this well with my family. I

know that it is difficult to realize that their may never be a

complete cure for our ASD children. But the word " recovery " may

need to be redefined for you as well as me.

I had high hopes in SCD would take it all away....we have truly been

blessed though, even though it has not taken it all away. But does

this mean that we have given up on SCDiet....no.

Prior to SCD our daughter suffered from deleriums, stimming,

seizures....they are all gone now. So even if she is never " neuro-

typical " at least we have greatly improved her quality of life! I

can't imagine being on that road that we where on prior to SCD.

Never ever again will we venture down that road. As much as I

complain about the problems we still have...nothing today is the

h*** that we came from!

Sincerly, Antoinette and (comfirmed celiac) parents to three

kids (supposed Celiac, colitis, Ibs, add, adhd, asd and more) All of

us SCD 2/06

[Guest guest]

thanks for the reply!

what can you eat now? how quickly did you progress through the stages?

roweena x

>

> >

> > hi carol,

> >

> > im just wondering what condition you are treating with SCD? you have

> > been on it so long and im thinking maybe i have unrealistic

> > expectations for my daughters recovery? stay on SCD.

> > >

>

> Iam an undiagnosed celiac with chemical sensitivities amd latex

> allergy.. My current

> omdition is probably as good as it gets as I am also in my

> seventies and have to contend

> with aging but I am satisfied with how SCD has worked for me.

>

> Carol F.

>

>

>

[Guest guest]

Hi Roweena,

It was very important to keep a food journal when introducing new

foods. The stages are very important guidelines for some. Everyone

but our daughter advanced to harder to digest foods rather fast. Our

daughter is still eating cooked and peeled at seven months out. We

are all individual. As I said before we still can not tolerate

beans, or the peanuts so we do not eat them att all. None of us.

I would say follow the guidlines of the book to a T. Even if your

daughter does not have comfirmed GI disease. If it helps use the

stages. Making sure that what is ingested is always digested and

not sitting in the gut to ferment the bad gut guys. Some find

enzymes helpful with this. But I suggest that you follow the

guidlines of those who know how to introduce them slowly if you go

this route. Not everyone tolerates everything the same.

Antoinette and family celiac, colitis, add, adhd, asd and more(scd

2/06)supp: vitamins, fish oils, calcium, (tomorow starting colustrum

and enzymes)

[Guest guest]

hi antoinette,

thanks for the reply... we use enzymes so i will definately keep

that up and will be sticking to the stages and going slow... we have

been treating my daughter with diet of some sort since she was 1yr

and 10mths so these sorts of methods are not new to us.

will keep you posted!

roweena x

mumma to audrey 3 yrs

food intolerance (leaky gut) and behaviour issues

>

> Hi Roweena,

>

> It was very important to keep a food journal when introducing new

> foods. The stages are very important guidelines for some. Everyone

> but our daughter advanced to harder to digest foods rather fast. Our

> daughter is still eating cooked and peeled at seven months out. We

> are all individual. As I said before we still can not tolerate

> beans, or the peanuts so we do not eat them att all. None of us.

>

> I would say follow the guidlines of the book to a T. Even if your

> daughter does not have comfirmed GI disease. If it helps use the

> stages. Making sure that what is ingested is always digested and

> not sitting in the gut to ferment the bad gut guys. Some find

> enzymes helpful with this. But I suggest that you follow the

> guidlines of those who know how to introduce them slowly if you go

> this route. Not everyone tolerates everything the same.

>

> Antoinette and family celiac, colitis, add, adhd, asd and more(scd

> 2/06)supp: vitamins, fish oils, calcium, (tomorow starting colustrum

> and enzymes)

>

>

>

[Guest guest]

, I have read that olive leaf extract works just as well as

Nyastin and it is natural. I was told to give it to my son with

Houston's No Phenol enzyme. I did and it works well. Here is a site

where you can read more about it. http://www.danasview.net You might

have to do a search for olive leaf extract on her site to find the

information. My son just got over the same type of cold and myself

too. It was HORRIBLE! My son was not getting much better and myself

either and then I remembered that olive leaf extract is a natural

anti-viral and I started us both on it and it made a huge

difference. My chest was all congested and my throat itchy and took

400mg 3 times a day and it cleared it up.

Trish

>

> Hello friends -

>

> Luke picked up a long running bug this week with tons

> of snot, fever, and coughing. The strangest thing is

> that we ran into a series of behaviors we haven't seen

> in several months including increased stimming, lining

> things up, headbanging, and aggressiveness.

>

> Has anyone else seen their child roll backwards so

> seriously during a sickness?

>

> Complicating matters; a few weeks ago we hit three

> months on SCD which, I'm told, can lead to some

> regression, and we stopped giving him Nystatin. I'm

> considering putting him back on Nystatin, but I hate

> the idea of giving him anti fungals without end; it

> seems like if this is necessary we aren't really

> treating the real issue.

>

> Thanks.

> brian

>

> __________________________________________________

>