Jump to content
RemedySpot.com

Re: Drew's Admission

Rate this topic


Guest guest

Recommended Posts

I know your thought is the same as mine. When do they have to be held

accountable? What happens when we are not there to check on everything?

The last time my daughter went in for a tune-up, I took all of her meds with

us in their bottles and the nursing staff just used the meds that we

brought. It was nice in that either way we would have to pay for them but

at least this way I new she was getting the right meds. My daughter was 17

and she has always been aware of what her meds looked like so if they were

not the same, she would say something. Lets hope that the rest of your stay

is much better.

Maybe we should charge the hospital for our expertise in the treatment of

our children.

Tina W., mother of Steph, 17yoa wcf

Drew's Admission

Ok here is the results of the first 24 hours.

This is his 7th or 8th admission in 22 months for a total of around 13

weeks. The docs always think it is an Asthma related exacerbation, but they

treat it as CF.

We are suppose to be on contact isolation until after the throat culture and

nasal culture come back. Gowns and gloves where not worn on every visit over

night!

At 4 in the morning wakes up asking for Milk. The night nurse brings

in the pedisure and enzymes already mixed in the applesauce. I find out this

morning that the lab is sending up clear capsules, not white Ultrase- MT4's.

What are these? , asked Mike,

Nurse Replies, " MS-4's "

Mike, " Okay what are MS-4's? Enzymes I hope!? "

The day nurse and her assistant come in , fully gowned and gloved, and one

of the top nurses on the floor. I stepped out for a minute to get some

coffee and then returned

Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we

had to give him the Prilosic in some apple sauce "

So I give it to him, and he takes it just fine, then the assistant hands me

an oral syringe and says here's his Adeks.

The problem is this is 2.5 ml of a white liquid, not ruby red Adeks.

So I ask, " what is this? " -

Assistant, " Adeks "

Mike, " No Adek is Red " - And I read the label to see that it is Prilosec.

So what was it that they thought was prilosec a few minutes ago. Luckily the

lab had sent up both the day and night dose of prolific, and not a mix up

among patients.

The adek's arrived a few minutes later along with the correct enzymes.

Let's hope day two goes better or better yet they send us home on a PIC line

before Miceale's Birthday party on Saturday.

Mike V.

Link to comment
Share on other sites

I can't remember if I related the story here (maybe just on Cystic-L) but

one time last year I picked up Ricky's Zantac syrup from the pharmacy and

gave it to him and he immediately told me it didn't taste right. Zantac is

super minty and this tasted different. I took it back to the pharmacy and

they told me they'd given him Zyrtec by mistake! That's an allergy

medicine, and Ricky already takes Allegra, so after grouching at the

pharmacist (he sheepishly gave me a refund but didn't do anything else about

his mistake) I called Poison Control and they said he might just be a little

sleepy but that was it. The next day I called the pharmacy manager and told

him about the situation and he told me that there is a great deal of

paperwork and quality control that needs to be done after a mistake like

that. They endangered Ricky's life after all! It seems like these

hospitals should be held to the same standards.

Oh, and about those funky enzymes, they are probably generic. Nobody should

have to take those. The CFF actually advises against them.

Becky mom of Ricky (7) with CF and Andy (5) no CF

Drew's Admission

Ok here is the results of the first 24 hours.

This is his 7th or 8th admission in 22 months for a total of around 13

weeks. The docs always think it is an Asthma related exacerbation, but they

treat it as CF.

We are suppose to be on contact isolation until after the throat culture and

nasal culture come back. Gowns and gloves where not worn on every visit over

night!

At 4 in the morning wakes up asking for Milk. The night nurse brings

in the pedisure and enzymes already mixed in the applesauce. I find out this

morning that the lab is sending up clear capsules, not white Ultrase- MT4's.

What are these? , asked Mike,

Nurse Replies, " MS-4's "

Mike, " Okay what are MS-4's? Enzymes I hope!? "

The day nurse and her assistant come in , fully gowned and gloved, and one

of the top nurses on the floor. I stepped out for a minute to get some

coffee and then returned

Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we

had to give him the Prilosic in some apple sauce "

So I give it to him, and he takes it just fine, then the assistant hands me

an oral syringe and says here's his Adeks.

The problem is this is 2.5 ml of a white liquid, not ruby red Adeks.

So I ask, " what is this? " -

Assistant, " Adeks "

Mike, " No Adek is Red " - And I read the label to see that it is Prilosec.

So what was it that they thought was prilosec a few minutes ago. Luckily the

lab had sent up both the day and night dose of prolific, and not a mix up

among patients.

The adek's arrived a few minutes later along with the correct enzymes.

Let's hope day two goes better or better yet they send us home on a PIC line

before Miceale's Birthday party on Saturday.

Mike V.

Link to comment
Share on other sites

It's a good thing has such good parents looking out for him.

The enzymes sound like Pancrecarb. Zach takes them and they are MS-

4's. He was on Ultrase and didn't gain weight and now he is on

Pancrecarb and not gaining weight so I don't think there is probably

much difference between them, but it is best if they stick with the

enzymes that Drew is prescribed.

Hope he gets to come home for the big party!

Good luck!

Sara

> Ok here is the results of the first 24 hours.

>

> This is his 7th or 8th admission in 22 months for a total of

around 13

> weeks. The docs always think it is an Asthma related exacerbation,

but they

> treat it as CF.

>

> We are suppose to be on contact isolation until after the throat

culture and

> nasal culture come back. Gowns and gloves where not worn on every

visit over

> night!

>

> At 4 in the morning wakes up asking for Milk. The night

nurse brings

> in the pedisure and enzymes already mixed in the applesauce. I

find out this

> morning that the lab is sending up clear capsules, not white

Ultrase- MT4's.

>

>

> What are these? , asked Mike,

>

> Nurse Replies, " MS-4's "

>

> Mike, " Okay what are MS-4's? Enzymes I hope!? "

>

>

> The day nurse and her assistant come in , fully gowned and

gloved, and one

> of the top nurses on the floor. I stepped out for a minute to get

some

> coffee and then returned

>

> Nurse, " Dad, he won't take the Orapred, do you want to give it to

him, we

> had to give him the Prilosic in some apple sauce "

>

> So I give it to him, and he takes it just fine, then the assistant

hands me

> an oral syringe and says here's his Adeks.

>

> The problem is this is 2.5 ml of a white liquid, not ruby red

Adeks.

>

> So I ask, " what is this? " -

>

> Assistant, " Adeks "

>

> Mike, " No Adek is Red " - And I read the label to see that it is

Prilosec.

>

> So what was it that they thought was prilosec a few minutes ago.

Luckily the

> lab had sent up both the day and night dose of prolific, and not a

mix up

> among patients.

>

> The adek's arrived a few minutes later along with the correct

enzymes.

>

> Let's hope day two goes better or better yet they send us home on

a PIC line

> before Miceale's Birthday party on Saturday.

>

>

>

> Mike V.

>

>

>

>

>

Link to comment
Share on other sites

OMG! My dad goes to a VA Hospital and this is the kind of thing that

happens there rutinely. It just goes to show that you can NOT leave

your child in the care of the hospital alone. We take shifts staying

with Abby. What hospital do you use?

I hope that is feeling better really soon.

Gale

> Ok here is the results of the first 24 hours.

>

> This is his 7th or 8th admission in 22 months for a total of around

13

> weeks. The docs always think it is an Asthma related exacerbation,

but they

> treat it as CF.

>

> We are suppose to be on contact isolation until after the throat

culture and

> nasal culture come back. Gowns and gloves where not worn on every

visit over

> night!

>

> At 4 in the morning wakes up asking for Milk. The night

nurse brings

> in the pedisure and enzymes already mixed in the applesauce. I find

out this

> morning that the lab is sending up clear capsules, not white

Ultrase- MT4's.

>

>

> What are these? , asked Mike,

>

> Nurse Replies, " MS-4's "

>

> Mike, " Okay what are MS-4's? Enzymes I hope!? "

>

>

> The day nurse and her assistant come in , fully gowned and gloved,

and one

> of the top nurses on the floor. I stepped out for a minute to get

some

> coffee and then returned

>

> Nurse, " Dad, he won't take the Orapred, do you want to give it to

him, we

> had to give him the Prilosic in some apple sauce "

>

> So I give it to him, and he takes it just fine, then the assistant

hands me

> an oral syringe and says here's his Adeks.

>

> The problem is this is 2.5 ml of a white liquid, not ruby red

Adeks.

>

> So I ask, " what is this? " -

>

> Assistant, " Adeks "

>

> Mike, " No Adek is Red " - And I read the label to see that it is

Prilosec.

>

> So what was it that they thought was prilosec a few minutes ago.

Luckily the

> lab had sent up both the day and night dose of prolific, and not a

mix up

> among patients.

>

> The adek's arrived a few minutes later along with the correct

enzymes.

>

> Let's hope day two goes better or better yet they send us home on a

PIC line

> before Miceale's Birthday party on Saturday.

>

>

>

> Mike V.

>

>

>

>

>

Link to comment
Share on other sites

Day 2.

We were moved to another room. The " B " side that has about twice the

room of an " A " side and a much better bed (bench seat with 3 inches

of foam) for dear old dad to sleep in. So far we have no roommate on

the A side.

On our last admission I could jump on a WIFI network from the local

University, but they have since locked it down, so now I am dialed

up. Good news is that every room on the 9th floor will have internet

access by January. Part of the Star Bright program I'm told.

No issues today. We are off contact isolation. Every nurse,

assistant, and therapist that has come in has used the foam soap.

I did ask one of the Therapist about their use of disposable nebs

and the Canadian study. Anyone have the link to this? She wanted to

know more about it. They toss the nebs kits each day.

Bad News: 4 attempts at a PIC line today and none were successful.

No news on their plans for tommorow.

Link to comment
Share on other sites

Let hope for fat juicy veins so that there is a success on the picc line.

Trying more than once is not fun.

By the time you leave there I am sure the 3inches of foam will have

diminished to 1 inch. Keep your spirits up and hope you will be going home

soon.

Tina W., mother of Steph, 18yo wcf

Re: Drew's Admission

Day 2.

We were moved to another room. The " B " side that has about twice the

room of an " A " side and a much better bed (bench seat with 3 inches

of foam) for dear old dad to sleep in. So far we have no roommate on

the A side.

On our last admission I could jump on a WIFI network from the local

University, but they have since locked it down, so now I am dialed

up. Good news is that every room on the 9th floor will have internet

access by January. Part of the Star Bright program I'm told.

No issues today. We are off contact isolation. Every nurse,

assistant, and therapist that has come in has used the foam soap.

I did ask one of the Therapist about their use of disposable nebs

and the Canadian study. Anyone have the link to this? She wanted to

know more about it. They toss the nebs kits each day.

Bad News: 4 attempts at a PIC line today and none were successful.

No news on their plans for tommorow.

Link to comment
Share on other sites

At our CF Clinic, they put the child to sleep in radiology and then

put in the PIC line. Is that the way it is normally done? They said

that the PIC line insertion is too traumatic for a child that is

awake. Also, they hold still when they are sleeping.

Gale

> Let hope for fat juicy veins so that there is a success on the picc

line.

> Trying more than once is not fun.

>

> By the time you leave there I am sure the 3inches of foam will have

> diminished to 1 inch. Keep your spirits up and hope you will be

going home

> soon.

>

> Tina W., mother of Steph, 18yo wcf

>

> Re: Drew's Admission

>

>

> Day 2.

>

> We were moved to another room. The " B " side that has about twice

the

> room of an " A " side and a much better bed (bench seat with 3 inches

> of foam) for dear old dad to sleep in. So far we have no roommate

on

> the A side.

>

> On our last admission I could jump on a WIFI network from the local

> University, but they have since locked it down, so now I am dialed

> up. Good news is that every room on the 9th floor will have

internet

> access by January. Part of the Star Bright program I'm told.

>

> No issues today. We are off contact isolation. Every nurse,

> assistant, and therapist that has come in has used the foam soap.

>

> I did ask one of the Therapist about their use of disposable nebs

> and the Canadian study. Anyone have the link to this? She wanted to

> know more about it. They toss the nebs kits each day.

>

> Bad News: 4 attempts at a PIC line today and none were successful.

> No news on their plans for tommorow.

>

>

>

>

>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...