Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 I know your thought is the same as mine. When do they have to be held accountable? What happens when we are not there to check on everything? The last time my daughter went in for a tune-up, I took all of her meds with us in their bottles and the nursing staff just used the meds that we brought. It was nice in that either way we would have to pay for them but at least this way I new she was getting the right meds. My daughter was 17 and she has always been aware of what her meds looked like so if they were not the same, she would say something. Lets hope that the rest of your stay is much better. Maybe we should charge the hospital for our expertise in the treatment of our children. Tina W., mother of Steph, 17yoa wcf Drew's Admission Ok here is the results of the first 24 hours. This is his 7th or 8th admission in 22 months for a total of around 13 weeks. The docs always think it is an Asthma related exacerbation, but they treat it as CF. We are suppose to be on contact isolation until after the throat culture and nasal culture come back. Gowns and gloves where not worn on every visit over night! At 4 in the morning wakes up asking for Milk. The night nurse brings in the pedisure and enzymes already mixed in the applesauce. I find out this morning that the lab is sending up clear capsules, not white Ultrase- MT4's. What are these? , asked Mike, Nurse Replies, " MS-4's " Mike, " Okay what are MS-4's? Enzymes I hope!? " The day nurse and her assistant come in , fully gowned and gloved, and one of the top nurses on the floor. I stepped out for a minute to get some coffee and then returned Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we had to give him the Prilosic in some apple sauce " So I give it to him, and he takes it just fine, then the assistant hands me an oral syringe and says here's his Adeks. The problem is this is 2.5 ml of a white liquid, not ruby red Adeks. So I ask, " what is this? " - Assistant, " Adeks " Mike, " No Adek is Red " - And I read the label to see that it is Prilosec. So what was it that they thought was prilosec a few minutes ago. Luckily the lab had sent up both the day and night dose of prolific, and not a mix up among patients. The adek's arrived a few minutes later along with the correct enzymes. Let's hope day two goes better or better yet they send us home on a PIC line before Miceale's Birthday party on Saturday. Mike V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 I can't remember if I related the story here (maybe just on Cystic-L) but one time last year I picked up Ricky's Zantac syrup from the pharmacy and gave it to him and he immediately told me it didn't taste right. Zantac is super minty and this tasted different. I took it back to the pharmacy and they told me they'd given him Zyrtec by mistake! That's an allergy medicine, and Ricky already takes Allegra, so after grouching at the pharmacist (he sheepishly gave me a refund but didn't do anything else about his mistake) I called Poison Control and they said he might just be a little sleepy but that was it. The next day I called the pharmacy manager and told him about the situation and he told me that there is a great deal of paperwork and quality control that needs to be done after a mistake like that. They endangered Ricky's life after all! It seems like these hospitals should be held to the same standards. Oh, and about those funky enzymes, they are probably generic. Nobody should have to take those. The CFF actually advises against them. Becky mom of Ricky (7) with CF and Andy (5) no CF Drew's Admission Ok here is the results of the first 24 hours. This is his 7th or 8th admission in 22 months for a total of around 13 weeks. The docs always think it is an Asthma related exacerbation, but they treat it as CF. We are suppose to be on contact isolation until after the throat culture and nasal culture come back. Gowns and gloves where not worn on every visit over night! At 4 in the morning wakes up asking for Milk. The night nurse brings in the pedisure and enzymes already mixed in the applesauce. I find out this morning that the lab is sending up clear capsules, not white Ultrase- MT4's. What are these? , asked Mike, Nurse Replies, " MS-4's " Mike, " Okay what are MS-4's? Enzymes I hope!? " The day nurse and her assistant come in , fully gowned and gloved, and one of the top nurses on the floor. I stepped out for a minute to get some coffee and then returned Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we had to give him the Prilosic in some apple sauce " So I give it to him, and he takes it just fine, then the assistant hands me an oral syringe and says here's his Adeks. The problem is this is 2.5 ml of a white liquid, not ruby red Adeks. So I ask, " what is this? " - Assistant, " Adeks " Mike, " No Adek is Red " - And I read the label to see that it is Prilosec. So what was it that they thought was prilosec a few minutes ago. Luckily the lab had sent up both the day and night dose of prolific, and not a mix up among patients. The adek's arrived a few minutes later along with the correct enzymes. Let's hope day two goes better or better yet they send us home on a PIC line before Miceale's Birthday party on Saturday. Mike V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 It's a good thing has such good parents looking out for him. The enzymes sound like Pancrecarb. Zach takes them and they are MS- 4's. He was on Ultrase and didn't gain weight and now he is on Pancrecarb and not gaining weight so I don't think there is probably much difference between them, but it is best if they stick with the enzymes that Drew is prescribed. Hope he gets to come home for the big party! Good luck! Sara > Ok here is the results of the first 24 hours. > > This is his 7th or 8th admission in 22 months for a total of around 13 > weeks. The docs always think it is an Asthma related exacerbation, but they > treat it as CF. > > We are suppose to be on contact isolation until after the throat culture and > nasal culture come back. Gowns and gloves where not worn on every visit over > night! > > At 4 in the morning wakes up asking for Milk. The night nurse brings > in the pedisure and enzymes already mixed in the applesauce. I find out this > morning that the lab is sending up clear capsules, not white Ultrase- MT4's. > > > What are these? , asked Mike, > > Nurse Replies, " MS-4's " > > Mike, " Okay what are MS-4's? Enzymes I hope!? " > > > The day nurse and her assistant come in , fully gowned and gloved, and one > of the top nurses on the floor. I stepped out for a minute to get some > coffee and then returned > > Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we > had to give him the Prilosic in some apple sauce " > > So I give it to him, and he takes it just fine, then the assistant hands me > an oral syringe and says here's his Adeks. > > The problem is this is 2.5 ml of a white liquid, not ruby red Adeks. > > So I ask, " what is this? " - > > Assistant, " Adeks " > > Mike, " No Adek is Red " - And I read the label to see that it is Prilosec. > > So what was it that they thought was prilosec a few minutes ago. Luckily the > lab had sent up both the day and night dose of prolific, and not a mix up > among patients. > > The adek's arrived a few minutes later along with the correct enzymes. > > Let's hope day two goes better or better yet they send us home on a PIC line > before Miceale's Birthday party on Saturday. > > > > Mike V. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 OMG! My dad goes to a VA Hospital and this is the kind of thing that happens there rutinely. It just goes to show that you can NOT leave your child in the care of the hospital alone. We take shifts staying with Abby. What hospital do you use? I hope that is feeling better really soon. Gale > Ok here is the results of the first 24 hours. > > This is his 7th or 8th admission in 22 months for a total of around 13 > weeks. The docs always think it is an Asthma related exacerbation, but they > treat it as CF. > > We are suppose to be on contact isolation until after the throat culture and > nasal culture come back. Gowns and gloves where not worn on every visit over > night! > > At 4 in the morning wakes up asking for Milk. The night nurse brings > in the pedisure and enzymes already mixed in the applesauce. I find out this > morning that the lab is sending up clear capsules, not white Ultrase- MT4's. > > > What are these? , asked Mike, > > Nurse Replies, " MS-4's " > > Mike, " Okay what are MS-4's? Enzymes I hope!? " > > > The day nurse and her assistant come in , fully gowned and gloved, and one > of the top nurses on the floor. I stepped out for a minute to get some > coffee and then returned > > Nurse, " Dad, he won't take the Orapred, do you want to give it to him, we > had to give him the Prilosic in some apple sauce " > > So I give it to him, and he takes it just fine, then the assistant hands me > an oral syringe and says here's his Adeks. > > The problem is this is 2.5 ml of a white liquid, not ruby red Adeks. > > So I ask, " what is this? " - > > Assistant, " Adeks " > > Mike, " No Adek is Red " - And I read the label to see that it is Prilosec. > > So what was it that they thought was prilosec a few minutes ago. Luckily the > lab had sent up both the day and night dose of prolific, and not a mix up > among patients. > > The adek's arrived a few minutes later along with the correct enzymes. > > Let's hope day two goes better or better yet they send us home on a PIC line > before Miceale's Birthday party on Saturday. > > > > Mike V. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2003 Report Share Posted November 18, 2003 Day 2. We were moved to another room. The " B " side that has about twice the room of an " A " side and a much better bed (bench seat with 3 inches of foam) for dear old dad to sleep in. So far we have no roommate on the A side. On our last admission I could jump on a WIFI network from the local University, but they have since locked it down, so now I am dialed up. Good news is that every room on the 9th floor will have internet access by January. Part of the Star Bright program I'm told. No issues today. We are off contact isolation. Every nurse, assistant, and therapist that has come in has used the foam soap. I did ask one of the Therapist about their use of disposable nebs and the Canadian study. Anyone have the link to this? She wanted to know more about it. They toss the nebs kits each day. Bad News: 4 attempts at a PIC line today and none were successful. No news on their plans for tommorow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Let hope for fat juicy veins so that there is a success on the picc line. Trying more than once is not fun. By the time you leave there I am sure the 3inches of foam will have diminished to 1 inch. Keep your spirits up and hope you will be going home soon. Tina W., mother of Steph, 18yo wcf Re: Drew's Admission Day 2. We were moved to another room. The " B " side that has about twice the room of an " A " side and a much better bed (bench seat with 3 inches of foam) for dear old dad to sleep in. So far we have no roommate on the A side. On our last admission I could jump on a WIFI network from the local University, but they have since locked it down, so now I am dialed up. Good news is that every room on the 9th floor will have internet access by January. Part of the Star Bright program I'm told. No issues today. We are off contact isolation. Every nurse, assistant, and therapist that has come in has used the foam soap. I did ask one of the Therapist about their use of disposable nebs and the Canadian study. Anyone have the link to this? She wanted to know more about it. They toss the nebs kits each day. Bad News: 4 attempts at a PIC line today and none were successful. No news on their plans for tommorow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 At our CF Clinic, they put the child to sleep in radiology and then put in the PIC line. Is that the way it is normally done? They said that the PIC line insertion is too traumatic for a child that is awake. Also, they hold still when they are sleeping. Gale > Let hope for fat juicy veins so that there is a success on the picc line. > Trying more than once is not fun. > > By the time you leave there I am sure the 3inches of foam will have > diminished to 1 inch. Keep your spirits up and hope you will be going home > soon. > > Tina W., mother of Steph, 18yo wcf > > Re: Drew's Admission > > > Day 2. > > We were moved to another room. The " B " side that has about twice the > room of an " A " side and a much better bed (bench seat with 3 inches > of foam) for dear old dad to sleep in. So far we have no roommate on > the A side. > > On our last admission I could jump on a WIFI network from the local > University, but they have since locked it down, so now I am dialed > up. Good news is that every room on the 9th floor will have internet > access by January. Part of the Star Bright program I'm told. > > No issues today. We are off contact isolation. Every nurse, > assistant, and therapist that has come in has used the foam soap. > > I did ask one of the Therapist about their use of disposable nebs > and the Canadian study. Anyone have the link to this? She wanted to > know more about it. They toss the nebs kits each day. > > Bad News: 4 attempts at a PIC line today and none were successful. > No news on their plans for tommorow. > > > > > Quote Link to comment Share on other sites More sharing options...
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